Long Covid SOS @longcovidsos.bsky.social

#LONGCOVIDAWARENESSDAY Stop scrolling 1️⃣ Read our open letter 2️⃣ Use our template to write to your MP 3️⃣ Demand funding for #LongCovid research Six years after the start of the pandemic millions are still living with Long Covid. On #LCAD26 we ask UK policymakers for…

Long-Term Thyroid Complications Post-COVID-19: A Systematic Review 🚨COVID-19 didn’t just hit your lungs, it may even hijack your Thyroid for life. ➡️This systematic review from Quatar examines long-term thyroid complications following COVID-19 infection, analysing 28 studies involving 419 patients drawn from a pool of over 408,000 COVID-19 cases. ➡️Overview of their findings: 1. Thyroid disorders: Subacute thyroiditis (SAT, most common hyperthyroid issue, n=80), thyrotoxicosis (n=35), hyperthyroidism including Graves’ disease (n=23), isolated high T3/T4, hypothyroidism (n=147, often subclinical or Hashimoto’s-related), central hypothyroidism, and non-thyroidal illness syndrome (NTIS), 2. Patterns: Many cases (especially SAT and thyrotoxicosis) can be transient, resolving within months. However, autoimmune conditions like Graves’ or Hashimoto’s frequently persisted or recurred, 3. Incidence: SAT risk was significantly elevated post-COVID (HR 1.93–2.30 vs. controls), some studies noted 6.8% incidence within 3 months post-recovery, 4. Mechanisms: Direct viral damage via ACE2 receptors on thyroid cells, cytokine storm suppressing the hypothalamic-pituitary-thyroid axis, post-viral autoimmunity (molecular mimicry), vascular injury, and neuroendocrine disruption, 5. Limitations: Data from 18 countries, but many studies lacked full hormone/autoantibody details or long follow-up, limiting incidence estimates, 6. Recommendations: Review recommends routine thyroid function screening (TSH, free T4/T3) in the months after recovery, especially for severe cases or those with ongoing symptoms, and calls for integrated long COVID care! ➡️This review highlights COVID-19 as a multisystem disease with lasting endocrine effects, particularly in severe or symptomatic survivors. ‼️Sadly, this review remains silent on vaccines and reinfections impact, leaving open the critical question of how they may alter the trajectory of COVID-triggered autoimmune thyroid disease. ‼️Nonetheless, COVID-19 can trigger persistent autoimmune thyroid destruction that may even never fully resolve, turning a respiratory virus into a lifelong endocrine threat for many survivors. ‼️So, this review establishes that COVID-19 can permanently reprogram thyroid immunity in a subset of survivors, making systematic endocrine surveillance a necessary part of post-infection follow-up! You’re warned again! #AvoidSars2 #AvoidReinfections mdpi.com/2076-2607/14/3…

Many people continue to live with the effects of long COVID. We have a responsibility to acknowledge this condition, to listen to those affected, and to champion the research needed to advance treatment and rehabilitation. @WHO is working closely with governments and partners to translate emerging evidence into practical, effective guidance to support those living with long COVID.

Our paper is (finally) out in @CellRepMed: antibodies from #LongCOVID patients transfer symptoms to mice, pointing to a potential causal role for autoimmunity: cell.com/cell-reports-m… @amsterdamumc @UMCUtrecht 1/12

Autoantibodies as drivers of #LongCOVID ➡️ Compelling new evidence strengthens the autoimmune hypothesis of long COVID. Transfer of patient-derived IgG induces pain-associated behaviours in mice—suggesting a causal, not associative, role. Key experiment: ➡️ Total IgG from long COVID patients → injected into mice ➡️ Result: mechanical hypersensitivity (allodynia) This recapitulates a core clinical feature—chronic pain. ➡️ Strikingly, pathogenicity is durable: IgG collected 2 years later from persistently symptomatic patients → still induces pain in vivo Implies long-term stability of autoreactive clones. 1/

A review of 49 MRI studies shows that COVID-19 is associated with structural and functional brain changes. ➡️ Abnormalities are most commonly seen in the frontal, temporal, and parietal lobes, as well as the limbic system and subcortical regions. ➡️ These findings suggest widespread brain involvement, not limited to a single area. ➡️ The changes may explain both acute neurological symptoms and long-term effects (LongCOVID). 👉 COVID-19 is not just a respiratory disease—it has measurable, widespread effects on the brain academic.oup.com/cercor/article…

"Autoantibodies implicated as drivers of long COVID in new study" "What is really striking," say both co-leads of the study, "is that three independent research groups have recently reported similar findings..." medicalxpress.com/news/2026-03-a…

'It's like I'm still living in a Covid lockdown' bbc.in/3PqDJhq

One last post to highlight this survey. If you have #ME/CFS or #Longcovid and have tried hyperbaric oxygen please complete this survey. All experiences important. You can stop and complete at a different time allowing you to pace. Thanks @PhysiosForME physiosforme.com/post/new-surve…

Press release Long Covid groups are urging urgent action following the @covidinquiryuk module 3 report, which confirms widespread and ongoing failures in healthcare. #LongCovid #CovidInquiry #Covid19 #LongCovidAHPs

Today's #CovidInquiry report into healthcare is a victory for everyone at higher risk. Baroness Hallett accepted our key points: Covid is airborne The NHS must improve ventilation And vulnerable people must be empowered and have the right to wear better masks -not abandoned 1

The Covid Inquiry has published its report into the impact of the pandemic on healthcare systems. Its conclusions are shocking and must lead to change before it is once again too late. 🧵 1/10

The Covid Inquiry’s Module 3 report shows the NHS was pushed to the brink — but key workers with Long Covid are still left without answers.
We need accountability. We need action.
#LongCovid #KeyworkersDeserveBetter #CovidInquiry

Here is the link to the @covidinquiryuk Chair's statement regarding the Module 3 report youtu.be/GTv9YhYlLsw?fe… #LongCovid #CovidInquiry #Covid19

Today the @covidinquiryuk Module 3 report is released. We were proud to be core participants alongside other #LongCovid groups. This represents a huge amount of work by people who are themselves unwell. Sending solidarity to the community today 💙

The Long Covid groups call on policymakers to ensure the findings of the report are implemented and result in meaningful change for people with #LongCovid End 🧵

We particularly emphasise the Inquiry’s finding that ringfenced Long Covid research funding stopped in 2021. We continue to call for dedicated research funding for LC: Longcovidsos.org/researchfunding

🧵 Today the #LongCovid groups call for urgent action in response to the #CovidInquiry Module 3: Healthcare report which confirms widespread and ongoing failings. @LC_Physio Long Covid SOS Long Covid Support Long Covid Kids Longcovidsos.org/post/covidinqu…