AUNT study of people living with #sicklecelltrait #SCT making waves at #ASH25. NASCC thanks @BeamTx for funding support.
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National Alliance of Sickle Cell Centers
132 posts
National Alliance of Sickle Cell Centers
@nascc_org
Official Twitter account of the National Alliance for Sickle Cell Centers. Providing support to centers around the nation in the pursuit of equitable treatment.
Katılım Şubat 2021
130 Takip Edilen420 Takipçiler
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National Alliance of Sickle Cell Centers retweetledi
@seethal_jacobmd was featured on Cheat Codes: A Sickle Cell Podcast during a live panel at the @nascc_org along with @PayalDesaiMD @PTMcGann @Andy_Ellner
Listen to the episode, here: go.iu.edu/8vUL
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National Alliance of Sickle Cell Centers retweetledi
Courtney Lawrence (@CLawrenceMD): Honored to Team Up with BET on Blood at @AABB 2025
@RedCross |@BCAbloodcenters | @nascc_org | @terumobct
hemostasistoday.com/insight/courtn…
#AABB2025 #BleedingDisorders #Blood #Health #Hematology #Hemostasis #HemostasisToday #Medicine #Thrombosis #MedEd #MedX
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Excited to be with Dr. Jenkins @SCDAAorg discussing the national recommendations for management of acute pain in #sicklecelldisease
#sicklecellmatters #individualizedcareplans
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We must TREAT pain in #sicklecelldisease quickly and aggressively. We must STOP measuring pain. We need to measure causes of pain (inflammation, hemolysis, adhesion) to measure the effect of new tx. @US_FDA it’s time to use a new endpoint. #TogetherWeCan
pfizer.com/news/announcem…
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National Alliance of Sickle Cell Centers retweetledi
@nascc_org and so excited to see a full room of amazing people working to improve outcomes and care for #sicklecell because #sicklecellmatters
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QME
So excited to see the rooms full of people from #sicklecellcenters working to improve outcomes in #sicklecell. #Nascc2025 #sicklecellmatters
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National Alliance of Sickle Cell Centers retweetledi
The room is full here at the @nascc_org meeting in Stowe, Vermont. Over 300 people in attendance to discuss topics related to Sickle Cell Disease. Looking forward to an exciting week ahead. #NASCC2025 #sicklecellmatters #sicklecellcenters2025
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We are excited about our partnership w/ #Quilthealth. They share our commitment to reimagining how people access healthcare. Our missions align in putting people first, removing barriers, & using technology to drive real change. #peoplefirst #sicklecell #accesstocare
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National Alliance of Sickle Cell Centers retweetledi
Big news from @QuiltHealth: We raised $6 M in seed funding (led by @MaCVentureCapital) & partnering with @nascc_org to launch a platform that:
🧪 Expands trial access
📈 Boosts patient/provider insights
🧩 Tackles care disparities
Read more: newswire.com/news/digital-h…
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#EHA2025
Multidisciplinary care is key to improving outcomes in #sicklecelldisease @pfizer symposium
#SCD #HealthCareAccess and #sicklecellcenters are key
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We have to improve #accesstocare by increasing #sicklecellcenters so people living with #sicklecelldisease have #healthcare and #healthopportunies for better #healthoutcomes
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@jkw4444 @nascc_org That's great news! How widely available is this treatment now?
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National Alliance of Sickle Cell Centers retweetledi
#RareDiseaseDay2025 highlights unseen struggles of the survivors. #SickleCellDisease, a life-threatening rare genetic disorder, remains underrepresented in research & care.
HemexDx is committed to #earlydiagnosis of SCA. Let’s raise #awareness & drive innovation!
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Congratulations to our fearless leader!!! 💗 @cececalhounMD The epitome of Black Girl Magic!!!!
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@HustleBitch_ Methylene blue probably
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RFK Jr was caught on camera spiking his in-flight drink with this liquid.
Can you name what it is?
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National Alliance of Sickle Cell Centers retweetledi
Can we get our ethical vectors and moral compasses aligned for cell and gene therapy and #RareDisease including #sicklecelldisease
@nascc_org
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