@Vanguard_Group
It's now March 4th and Quicken issue still not fixed. Is there a timeframe? This is major inconvenience.
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Brian Drachman
21 posts
Brian Drachman
@philimd
Cardiologist at Penn Presbyterian Medical Center, Philadelphia, PA
new jersey Katılım Mart 2011
16 Takip Edilen107 Takipçiler
Shortage of PYP in the Philadelphia area. Not available until May. Does anyone have experience with HDP as a substitute?
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@sarahcud @MasriAhmadMD @cardiooncCMB @maz_hanna @MarthaGrogan1 @Ron_Witteles @Amyloidosis_ARC Similar case: 70 yo, on tafamadis for 1 year (outside diagnosis). 2nd opinion. PYP scan grade II, H/CL 1.3. Repeat echo by me: Not classic amyloid. Endo bx negative. I stopped tafamadis. Remember, PYP specific only when clinical picture suggests TTR (and light chain -)
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@MasriAhmadMD @cardiooncCMB @maz_hanna @MarthaGrogan1 @Ron_Witteles @Amyloidosis_ARC And is it PYP planar or SPECT? We’ve even been fooled by SPECT, and with SPECT/CT saw the tracer was in fact in blood pool (images to come later today!)
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Amyloid experts, need your help. EMB - (5 samples, Venous approach IVS/RV, and good accurate path lab), PYP + (grade 2, H/L 1.3 3 hr, spect ... no blood pool false +). Does this really exist, how common. ... EMB NPV ? @maz_hanna @MarthaGrogan1 @Ron_Witteles @Amyloidosis_ARC
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@ProthenaCorp ending the Long-term extension phase of the prx004 study effective immediately to move forward with their next trials despite strong objections from several investigators. This means patients doing well on the drug will no longer receive it. Disappointing.
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@MarthaGrogan1 @pfizer @AdamCastano @maz_hanna @MasriAhmadMD @MKIttlesonMD @Ron_Witteles @VincentRK @P4AD_ @frederickruberg @Amyloid_Planet @vsanchorawala @Amyloidosis_ARC @AmyloidosisSupp @drjohnm @HeartOTXHeartMD @Drjhoffmanmiami I recently calculated how much @pfizer made last year on appropriate prescriptions from our institution’s patients alone. The result is staggering!
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@Pfizer: please listen! Or tell us why this is wrong. @AdamCastano @maz_hanna @MasriAhmadMD @MKIttlesonMD @Ron_Witteles @VincentRK @P4AD_ @frederickruberg @philimd @Amyloid_Planet @vsanchorawala @Amyloidosis_ARC @AmyloidosisSupp @drjohnm @HeartOTXHeartMD @Drjhoffmanmiami
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@BrettSperryMD @MarthaGrogan1 @maz_hanna @Ron_Witteles @MasriAhmadMD @Drjhoffmanmiami @VincentRK @edwardmillermd @MathewMaurer @stuchman1 @vsanchorawala @AmyloidosisSupp @Amyloid_Planet @ldandersonjr I usually call it a “cousin” of cancer...whatever that means!
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Patient with AL Amyloidosis asks if they have cancer. Your response?
@MarthaGrogan1 @maz_hanna @Ron_Witteles @MasriAhmadMD @Drjhoffmanmiami @VincentRK @edwardmillermd @MathewMaurer @philimd @stuchman1 @vsanchorawala @AmyloidosisSupp @Amyloid_Planet @ldandersonjr
Kansas City, MO 🇺🇸 English
#Pfizer announced today they are terminating their free genetic screening program for TTR amyloid /THAOS in 3 weeks. Another punch in the gut for our patients. Fortunately, other companies are being more considerate.
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@MarthaGrogan1 Also seeing more and more “positive” PYP scans from outside labs that aren’t really diagnostic. Blood pool etc. Need to be careful with standardizing PYP interpretations.
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It would not be at all unreasonable for insurance companies to request a second opinion or some sort of review to confirm diagnosis of ATTR #amyloidosis before approving tafamidis. Life threatening mistake to miss AL.
James Hoffman@Drjhoffmanmiami
@maz_hanna @MarthaGrogan1 @BrettSperryMD @Amyloidosis_ARC A real risk- on tafamidis trial, were multiple steps to ensure no misdiagnosed AL pts were treated- in the flood of PYP scans being done, there is real risk of AL patients getting funneled towards tafamidis. Patients should ideally all get at least looked at in amyloid centers.
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@MarthaGrogan1 @Ron_Witteles @maz_hanna @BrettSperryMD @DorbalaSharmila @vsanchorawala @VincentRK Agree with @MarthaGrogan1. These are simple tests with high diagnostic accuracy. The should be always checked in the work up of our patients. This is the message we should be getting to our colleagues!
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All diagnostic tests have limitations but that does not mean we should not do them. @Ron_Witteles @maz_hanna @BrettSperryMD @DorbalaSharmila @vsanchorawala @VincentRK
Juan Lopez-Mattei, MD@onco_cardiology
@afshinfarzan @Ron_Witteles @hvanspall @AmitRPatelMD @vass_vassiliou @purviparwani @iamritu @IAmDrIbrahim @MarthaGrogan1 @cshenoy3 Not to add insult to injury, but limitations of sFLC: “Using the conventional κ/λ ratio, 36.4% of the ratios were abnormal, in the absence of monoclonal gammopathy.” academic.oup.com/ajcp/article/1…
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Hanging out in Sweden with @MarthaGrogan1 trying to wipe out amyloidosis!
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Manhasset looks like a war zone. Trees, wires, utility poles all over the place. Searingtown road still closed.
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We still have power. Thank goodness for underground power lines
#sandy
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@Mitsubishi3D -I have a rear projection set. Convergence chip failed. Heard common with the brand. ?solution
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I've got a Mitsubishi rear projection TV that has a convergence failure. Heard it is common with this brand. ???
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