searching for answers

@DiaryofaSickGrl Yes, and we hung out irl in 2011 and 2012 and are still friends.

Have you ever had an online friendship last more than 3 years?

@sysbadm1n So rare to encounter someone else who practices bengston. Adding the metronome is genius for those of us with wandering minds.

@Funkadelick2 @RyanDBledsoe Try this x.com/sysbadm1n/stat…

When you speak of the Holy Spirit with a humble heart, orbs of light appear.

@seeksboston26mi This sort of love is so beautiful to see 💛

Long Covid has taken so much from me & the ensuing stage IV cancer will end my life eventually. Next month will be our anniversary, 29 months since my cancer diagnosis. 2 years since I re-committed to the amazing Mrs SBM. Perhaps the best two yrs of my life #LongCovidAwareness

@amymitchellart @crunchybuns669 Thank you 🙏🏽 I didn't realize there was a TA1 oral form. I have a source for subq and plan to start that after I get acclimated to HCQ

Thymogen alpha 1 (oral form) had a modest effect, so far as I can tell. I would rather try the injectable form. But that currently can't be prescribed. Tollovid is the herbal protease inhibitor and immune modulator. Contains gromwell root and soy lecithin. It's processed differently than typical Xi Cao and whole gromwell root herb preparations, according to manufacturer. I tried gromwell root tincture when tollovid wasn't available, but it didn't have the same effect. My thyroid function ended up suppressed- I believe that was connected because Xi Cao is used to treat hyperthyroidism in TCM.

AIDS. Covid causes Acquired Immune Deficiency Syndrome. I had to learn that the hard way. Mask up so you don't too.

@ProperChels34 I pray you make it back to Colorado one day.

@atranscendedman Most of us are in debt and have used any savings that we had years ago. This is a huge added stress to being bedbound/brain damaged.

@atranscendedman I havent left my home except for medically necessary appoints since 03/2020. 22hrs/day in sensory deprivation. Poor/destitute would be homeless without help. We all need access to Medicaid & some sort of income. My family is paying all my bills.

I’m talking to the NIH next week about what it’s like to live with Long COVID. What’s the one thing people still don’t understand and the part that really needs to be seen and said out loud?

@MelRoBuilds I feel ya. It's hard to get these boomers to understand that therapeutic doses are not what is typically recommended on the bottle. And then they get scared to up the dose.

Gonna depend on the case. (Not universal.) The fella that I call Parkinsons-Bub started with one 100mg thiamine mononitrate pill a day and it took us months to convince him to increase dose, and then finally upgrade to benfotiamine nearly 10 months later. He's currently at 900mg of benfo, and thats not yet the correct dose either yet. Just a very stubborn fella. Any change (at all) is very difficult for him.

Im dead serious about using $9 bottles of vitamin b1 tablets as the Boomer-friendly intro into taking control of their own health Can always try more stuff later. Big barrier is just getting them to take a non- doc- prescribed- pill

@amymitchellart @crunchybuns669 Did you see any benefit from TA1? Also what herbal protease inhibitor? 🙏🏽

@crunchybuns669 COVID depleted my T and B cell counts by 30-50% after my first infection. It took HIV antivirals, mAbs, and an herbal protease inhibitor to bring them back. My point is the acquired immune deficiency from COVID acts like a new AIDS. #COVAIDS

@HollyMars2 Sorry 😪. When did you get the novavax? I have severe neuroinflammation from infection, two of my LC doctors recommend pea+lut (mirica or epitech). There are other things like plasmalogens and phosphatidylcholine that people have had succes with too.

What type of doctor do you go to for help with neuroinflammation from covid vaccine? Is it a neurologist? It seems to get worse with each passing day. The past two days it’s felt like my brain is on fire. I’m sitting here with an ice pack now, but it’s not helping. Thanks

🚨: First paralysed human treated with stem cells has now regained his upper body movement

@JasonS1269 Haven't driven since infection march 2020. Dizziness, vision loss, not enough energy for cognitive processes and coordination, convulsions were some my first issues. Still cant even ride in vehicle without seizure symptoms

Probably a good idea.

@AnyAnagram We never took ours out 😭

I don't want to put the air conditioning on when it is still winter time.

@Earth___Crisis @kananaskinyeti Even more at their whim now that we are disabled/chronically ill . 😪

@kananaskinyeti Coming to this realization by like age 10 definitely helped me keep my humanity compared to my peers, unfortunately im still at the whim of all these fuckin psychos...

My best accomplishment in this life was overcoming the bad capitalist socialization of my youth so as to regain enough of my humanity to refuse to participate in the mass infecting of the population with a novel and damaging virus.

@OriiionInOrbit Sorry to hear you still havent gotten the medicine that you need. Rage.

@thevoidinspace there's a chance we could surgically fix it in the future but a lot of things would have to go right for that to happen. if i can get my lupus fully in remission for awhile they'll consider it but it would be too dangerous now.

i can’t believe you can fully tear an acl and if you aren’t a candidate for surgery you can just….. live without an acl? i have to wear a brace forever and i can’t do anything that twists my leg and i have to relearn how to walk.

@CPoppino ♥️

@thevoidinspace @m0ldilocks Moved out of the city, back home to Idaho with clean air and food, exercise, got off all the meds they kept giving me for random symptoms. Probably the biggest help though was doing an oxygen sauna twice per week for a few months to detox, and drinking alkaline water.

Mold. You know what mold is? It's in the Bible. Leviticus 14. Over 3,000 years ago, God stopped handing down commandments to say, "Hey, if you see greenish or reddish spots going deep into your walls? Get out. Scrape everything. Throw the stones outside the city." He said if it comes BACK after you fix it... tear the whole damn house down. That's God. In the Bible. Leviticus 14:33-47. With a mold remediation protocol. And we look at that and go, "wow, ancient people were so primitive." Meanwhile in 2026, your landlord is painting over black mold and your doctor is telling you you're anxious. Over 3,000 years ago they knew to quarantine the house, remove the contaminated stones, scrape the walls, and if it persisted... demolish it. Today we're arguing about whether mold makes people sick. We didn't advance past Leviticus on this. We didn't even reach Leviticus. A Bronze Age priest had a better mold response protocol than your insurance company. Think about that.

@AdvancedTweaker Gut health is where TCM shines. Im so glad you found relief!

This is incredible. I've struggled with hydrogen sulfide SIBO since mid-November. Diarrhea, extreme fatigue, dizziness, dehydration, brain fog, etc. every single day for months. Tried all kinds of often expensive things - oregano oil, berberine, Rifaximin, pepto bismol with molybdenum, alone or in combination. Rifaximin is the only one that sort of moved the needle. I'm not the only one - this type of SIBO is notoriously hard to treat and can take even a year. That Traditional Chinese Medicine herb combo I started taking because I ran out of Maraviroc - the things I did not take for SIBO at all - nuked it. A week after starting, my diarrhea blew up and then completely disappeared. No more rumbling, no sulfur burps for at least a week now. I still can't believe this.

@CPoppino @m0ldilocks How did you heal? I didn't think my house had mold, but just found black mold behind some shower tiles. Slum lord special.

@m0ldilocks You aren't wrong. My landlord did just that. Painted over it, re-carpeted over it. Took years of my life away from me, deathly ill and fighting to heal myself (which I thankfully have).