@DavidLloydUK I can’t send a reply via DM, I’ve lost the ability to do this since I tried to reply to you today. Can you share an email or contact number?
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miss t
125 posts
@tracey_rich Hi Tracey, we are sorry to hear your experience with us has not been a good one. Please DM us quoting your membership number and experience so we can get in touch. Thank you
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@DavidLloydUK I would appreciate someone to call me to discuss the appalling customer service I have received from David Lloyd. Please do not ask me to go via the app to log a call, I really don’t want more of the same!!
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@DandG_Support On your website I was told to call an 0334 number to book tumble dryer repair.On both occasions I have waited for callback to be cut off. This service is appalling, please can someone contact me to arrange a repair. I cannot book online no availability in area.
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@jordanolner @GenBecouarn @HM_Passport I think we are unlikely to receive ours according to the person I just spoke to on the helpline. I’m totally devastated, have highlighted to our MP who is hopefully going to try and pursue it later today but I think the deadline is too tight 😢
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@tracey_rich @GenBecouarn @HM_Passport Im in the same position, docs initially received 24/9 and last Thursday when I’d hoped it would be approved the requested further proof of name change which I sent straight away and was delivered Friday. So worried about how much longer it will take now. Due to fly 1/11 😰
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Please allow up to 10 weeks to process your passport application when applying from the UK. This also includes applications for a child.
↪️ow.ly/GeCs50GcONf
#PlanAhead #CheckYourPassport
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@GenBecouarn @HM_Passport Our docs were received on the 23/9 but there was an issue with one of the details. Since sent birth certificate etc. And numerous calls/emails. I’ve literally never been so stressed. We are bootle office.
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@tracey_rich @HM_Passport Please let me know how you get on? We fly Wednesday also. When were your docs received and do you know what office is dealing with yours?
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miss t retweetledi
2/2. The @PandasPans charity have published a response to the BPNA consensus statement, outlining the errors in the statement & demonstrating that the statement is fundamentally flawed and exhibits astounding bias.
@BPNA_org @BPNATrainees #PANS #PANDAS
panspandasuk.org/post/pans-pand…
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@passportwaiting anyone any idea what time passport office closes. Ie; is anyone receiving updates after 17.00 or is this when processing ceases for the day?
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miss t retweetledi
#tourettes is not rare yet theres minimal medical care available in the UK. Lots of areas have NO care and families left with no where to turn. Pls sign the petition petition.parliament.uk/petitions/5753… retweet to help us change this #TogetherWeAreStronger #TourettesAwareness21 @GazGShore
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miss t retweetledi
We're not coping. Over 3 months since out of hospital with an eating disorder amongst other life threatening conditions and here she is. Still bed ridden, still in the UAE. Who can help us get home to England?#PANDAS @maudsleyhealth @MattHancock @JamesDuddridge @PMoodyFCDO
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@JaneBir31840744 My daughter has suspected #PANS #PANDAS. Sudden onset of tics, behavioural changes, separation anxiety, rage. Three weeks of anti inflammatory and she has managed to finally return to school after months of seizures. #bpna you really should listen to the voice of our children
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miss t retweetledi
@NurseDiane2020 @BPNA_org how would you feel if it was YOUR child? If you felt there was something organic going on causing terrifying intrusive thoughts, depression, panic, tics etc... would you happily pop them on CAMHS waiting list & watch them suffer for months/years??
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miss t retweetledi
@JaneBir31840744 Yes I have a four year old with suspected #PANS #PANDAS Desperately trying to get help on the #NHS but no luck six months in. He has #tics #anxiety #OCD #eatingrestrictions and more and he is losing his childhood.
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miss t retweetledi
@JaneBir31840744 Yes, daughter with PANDAS. Now 8y, a few residual issues so awaiting a private paed neurologist appointment but she had a major episode with complete personality change aged 5y which was transformed and almost completely resolved by penicillin.
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miss t retweetledi
@OperationOuch @cbbc @xandvt @DoctorChrisVT @Dr_Ronx My son bitten by a tick aged seven now living with immune mediated issues/pans/encephalitis.. has taken seven years to almost uncover all the causes.. he’s extremely brave and courageous..
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miss t retweetledi
miss t retweetledi
Pls consider covering #Pans #Pandas on @thismorning you will get a big response from your viewers & it will help many who don’t realise that a virus may have triggered a change in their child’s behaviour. My daughter is improving with Antibiotics @Josiestweet @Matthew_Wright
Joanne Holloway@CharmingAngelCo
@Josiestweet Type #panspandashour 2 see many lionesses & some lions roaring not only 4 their children but 4K families in @PandasPans support group. We also roar 4 those who yet may be confronted by horror of #pans #pandas or who are lost right now wondering what has happened 2 their child
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miss t retweetledi
This makes me so angry - a child suffering unnecessarily and being robbed of their childhood by NHS failures. Her story is sadly not unique #panspandashour #PANS
Mel Payne@melpayne77
My daughter was unable to function. She could not walk from one side of a room to the other due to #ocd. Azithromycin gave her her life back but this has been stopped and she's prescribed antipsychotics & SSRIs. Now she is unable to attend school.
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miss t retweetledi
@PaulaScottUK @Josiestweet @AlisonHammond @emmakennytv @thismorning @realmissfiona This is so true @PaulaScottUK I wish I’d known 3 yrs ago that a virus, for our daughter EBV & Strep can trigger neuropsychiatric symptoms. Those affected need a quick diagnosis & treatment instead many go misdiagnosed or undiagnosed for years. It is 💔 it needs to be in the media
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miss t retweetledi
The onset of PANDAS / PANS can be sudden, sometimes there can be a gradual build up and then an explosion and some people may have micro flares before a big flare. #panspandashour #PANDAS #PANS can be triggered by #Lyme
youtube.com/watch?v=Pcz5WD…
YouTube
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