Julie Flygare รีทวีตแล้ว
WATCH: Day 2 of #AxiosHouse at SXSW is live! Tune in to hear conversations looking at the role of media in shaping society's approach to health and wellness.
x.com/i/broadcasts/1…
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Julie Flygare
12.6K posts
Julie Flygare
@RemRunner
President & CEO @Project_Sleep, Author of Wide Awake & Dreaming: A Memoir of #Narcolepsy, #MedX Scholar, #TEDx Speaker, @BrownUniversity @BCLaw Alum.
Los Angeles, CA เข้าร่วม Ocak 2010
5.1K กำลังติดตาม5.9K ผู้ติดตาม
Julie Flygare รีทวีตแล้ว
Can inaccurate TV portrayals actually delay diagnosis? Our community’s story just hit national news. @FastCompany published a major piece on @NBC's portrayal of #narcolepsy in #Stumble: fastcompany.com/91446176/stumb…
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Can we reach 2000 signers? With 1 in 2,000 people living with narcolepsy, it would be SO meaningful, especially since the majority of people living with narcolepsy are UNDIAGNOSED so unaware of what they are up against. c.org/P64B9D55H6
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What does #narcolepsy look like? Spoiler alert: not like this! @nbc’s new show #Stumble repeats a tired Hollywood trick — the plank fall + thud. Please share my analysis and sign our petition: c.org/P64B9D55H6
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Can we reach 1000 signers in 48 hours? Please sign this petition to show Hollywood that the #narcolepsy community is strong and deeply concerned about inaccurate portrayals of this serious neurological condition. Thank you for your support.
SIGN AND SHARE: c.org/P64B9D55H6
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Dear Hollywood: We are tired of the tired trope. Please sign and share this -- as #narcolepsy is a fascinating, complex condition, and NBC now has the opportunity to educate millions and dismantle long-held misunderstanding and stigma through responsible, informed storytelling!
Project Sleep@project_sleep
Mockumentary mocks disability community? Last night, #Stumble premiered on NBC & Peacock with a prominent, inaccurate portrayal of #narcolepsy. URGENT: please sign our petition asking NBC to reduce misunderstanding instead of reinforcing tired stereotypes: c.org/P64B9D55H6
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We're live!! Join us to hear Maha Awad's #Narcolepsy Story Sharing Event! youtube.com/live/bdHkZNpJz… via @YouTube
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Julie Flygare รีทวีตแล้ว
September 22, 2025, marks the 7th annual #WorldNarcolepsyDay, a day dedicated to raising awareness about narcolepsy on a global scale.
🏅 Today, we honor the incredible #narcolepsy community. Learn more: project-sleep.com/world-narcolep…
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Julie Flygare รีทวีตแล้ว
Happy #WorldNarcolepsyDay today 9/22! We are so grateful for an amazing community of people living with #narcolepsy, supporters, scientists, doctors, and industry partners—we can break down barriers together! Get involved: project-sleep.com/world-narcolep…
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Julie Flygare รีทวีตแล้ว
Julie Flygare รีทวีตแล้ว
First Colbert, now Kimmel.
Last-minute settlements, secret side deals, multi-billion dollar mergers pending Donald Trump's approval.
Trump silencing free speech stifles our democracy. It sure looks like giant media companies are enabling his authoritarianism.
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Julie Flygare รีทวีตแล้ว
"He's so personable & it's just refreshing to see that there's a human that is willing to put others before himself & also understand that this isn't about party-line politics. It's about people."
@RobSandIA in Davenport last night. #IAgov qctimes.com/news/local/gov…
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Julie Flygare รีทวีตแล้ว
New study this week again confirms: permanent Standard Time—not permanent Daylight Saving Time—is best.
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Julie Flygare รีทวีตแล้ว
About last week, WOW! What an experience! Honored to represent @project_sleep, share my personal and professional experience and attend historic orexin agonist presentations!
Project Sleep@project_sleep
Reflecting on an amazing #WorldSleep2025 in Singapore! 🌏 Over 4,000 researchers & clinicians gathered — and we were thrilled to share patient voices + witness historic #narcolepsy orexin agonist trial results from @TakedaPharma & @Alkermes. The future of sleep is bright!💙
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🇸🇬 Singapore!! #WorldSleep2025 @worldsleepsociety kicked off Saturday. Grateful to share my OG #narcolepsy presentation during a fantastic course and to represent @project_sleep. See our involvement: project-sleep.com/world-sleep-20…
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Julie Flygare รีทวีตแล้ว
🎥 Tonight’s the night!
Join us at 6:30 PM EDT for a LIVE webcast on narcolepsy & IH—tailored for NPs & PAs in sleep, cardio, neuro & pulm.
🎓 Register FREE for #CME/#CE credit: cmeo.me/WC-111
#SleepMedicine #LiveCME #Narcolepsy @RemRunner
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Edgar Castro Tello's Sleep Apnea Story Sharing Event youtube.com/live/otNDa0utx… via @YouTube @project_sleep
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