Dr. Bexi
370 posts

Dr. Bexi
@bexiphd
Sjogren's (SHOW-grins) skin care & more. Revitalise your skin from the outside in and within w/Bexi's, everything your skin needs, and nothing else.
Northern California เข้าร่วม Haziran 2022
141 กำลังติดตาม250 ผู้ติดตาม

@Rheumat_Aravind Sjogren's is not a disease "where the body forgets to lubricate". Perpetuating this myth actively harms patients.
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💧 When tears don’t flow and the mouth runs dry… it’s more than dehydration.
Think Sjögren’s Disease — a systemic autoimmune disorder where the body forgets to lubricate.
Here’s an easy mnemonic you’ll remember: DRY EYES.
👇 Infographic below.
#Rheumatology #Sjogrens #MedEd #FOAMed #MedTwitter @DrAkhilX @IhabFathiSulima @DurgaPrasannaM1 @SjogrensForum @SjogrensOrg

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@Rheumat_Aravind The Schirmer's test is not a good indicator of whether somebody has Sjogren's disease. Tear production varies from day to day.
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Did you know that abnormal sweating is indicative of autonomic nervous system dysfunction (dysautonomia)?
bexiphd.com/blogs/news/no-…

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@arianek @sWitchDomme @PutrinoLab @NeuroSjogrens @SarahSchaferMD @ArthrDietitian Then sit in as hot a bath as I can stand with 2 cups of Dead Sea Salts. Finally finish with very gentle movement, whatever you can stand.
I do this over 2-3 hours.
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@arianek @sWitchDomme @PutrinoLab @NeuroSjogrens @SarahSchaferMD @ArthrDietitian Yes. Here's what I do: hydrate w/coconut water, 4-5 rounds of Wim Hof breathing hydrate w/legs elevated above my head. I lie on the floor with my calves & feet on the couch.
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@ArthrDietitian @SarahSchaferMD @arianek @jenn_smo @SjogrensOrg @NeuroSjogrens @elisa_comer @SjogrensCa @CrunchyAllergy I just turned in my slides!
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@SarahSchaferMD @arianek @jenn_smo @SjogrensOrg @NeuroSjogrens @bexiphd @elisa_comer True! I want to see what the speakers at the @SjogrensCa conference bring to the #sjogrens table. Looking forward to @bexiphd and @CrunchyAllergy talks. There is one by a hematologist, which is new to me.
canadahelps.org/en/charities/s…
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@loriinreallife @KristinaRevay @SarahSchaferMD @georgedemirakos @arianek @SjogrensOrg @NeuroSjogrens @ArthrDietitian @jenn_smo @elisa_comer You're welcome.
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@KristinaRevay @SarahSchaferMD @georgedemirakos @arianek @SjogrensOrg @NeuroSjogrens @ArthrDietitian @jenn_smo @elisa_comer I'm hoping this will cause a bigger shift and be the start of a dramatic, seismic shift: bexiphd.com/blogs/news/the…
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@SarahSchaferMD @georgedemirakos @arianek @SjogrensOrg @NeuroSjogrens @bexiphd @ArthrDietitian @jenn_smo @elisa_comer Im tired of being patient as I slowly die of this. Nope! We need a dramatic, seismic shift.
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@ACRheum @MayoClinic @ClevelandClinic @HarvardHealth
Sjogren’s disease affects more than just the moisture-producing glands in your body.
Inadequate medical education is the main reason that Sjogren’s disease is misunderstood and neglected.
bexiphd.com/blogs/news/the…
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Women’s health is less researched than men’s because women are considered more complicated to study than men.
Because research informs how doctors recognize, manage, and treat disease, women receive poorer health care than men do.
bexiphd.com/blogs/news/wom…

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I felt great at the time of this picture, but felt awful for 2 days after.
#sjogrensdisease and #dysautonomia may be invisible and rarely talked about but that doesn't mean they don't greatly reduce my quality of life and aren't common.


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@ArthrDietitian @ACRheum @NeuroSjogrens @arianek @aesjogren @bexiphd @SarahSchaferMD @elisa_comer @SjogrensOrg @Dysautonomia Why aren’t they masking at conferences to reduce their risk of Sjogrens themselves? Do they want to be a patient provider advocate because getting COVID at a conference could help with that 🤗
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Excited to attend @ACRheum #ACR24 in person for the 1st time. What questions would you ask the researchers and clinicians about #Sjögrens?
@NeuroSjogrens
@arianek
@aesjogren
@bexiphd
@SarahSchaferMD
@elisa_comer
@SjogrensOrg
@Dysautonomia
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@ArthrDietitian Please talk about this at the ACR. The failure to recognize, diagnose, and treat Sjogrens dysautonomia is a travesty. We are missing one of the most prevalent and disabling systemic manifestations of the disease.
More common in SSA neg, but impacts both.
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💯
About 50% of people with Sjogrens have some form of dysautonomia. This is not part of routine assessment or research studies. It is a major cause of disability, which can be extreme.
Sjögren's Ireland@SjogrensIrl
Dysautonomia, POTS, Orthostatic hypotension often can go hand in hand with #Sjogrens. We urgently need more Drs to learn how to test & treat these debilitating symptoms.
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@ArthrDietitian @ACRheum @NeuroSjogrens @arianek @aesjogren @SarahSchaferMD @elisa_comer @SjogrensOrg @Dysautonomia Do researchers & clinicians recognize the need for large landscape studies of Sjogren's that determine the etiology & progression of Sjogren's BEFORE guidelines & therapies are developed? bexiphd.com/blogs/news/why…
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