Susanne Driffield
2.1K posts

Susanne Driffield
@s_driffield
Mum to my DMD superhero Joe. All views are my own.
Ayr, Scotland เข้าร่วม Temmuz 2013
1.2K กำลังติดตาม555 ผู้ติดตาม

Having safely made it to Dover following his 87 mile run from Marble Arch, Sam is now swimming the English Channel and will then jump on his bike at Calais for the 181 mile trip to Paris! You can read more about his incredible challenge for @MDUK_News here musculardystrophyuk.org/about-us/stori…


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@RevRichardColes Love Cote but our local one in Harrogate closed down!
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Susanne Driffield รีทวีตแล้ว

We wrote to the Health Secretary @neilcgray some 2 weeks ago pleading on behalf of these young boys for a drug that will give them some quality of life, before it is too late- We were ignored, it is beyond cruelty to ignore these children, when the drug is available @ScotGovFM

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@sarajcox I only put this up yesterday in our downstairs loo but suspect it could be a contender! 🤣

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@RaeA_Smith @MotabilityOps It isn’t down to Motability, it is a car lease which is affected by interest rates, car supply along with the vehicle manufacturer. Frustrating nonetheless.
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Anyone notice @MotabilityOps has cut back on amount of cars can choose from with no advance payment? People need cars to fit wheelchairs, if you don’t have money for advance payment which many don’t living with disabilities/unpaid carers what are they meant to do?
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Susanne Driffield รีทวีตแล้ว

🧵Over half of people with muscle wasting and weakening conditions receive Personal Independence Payments (PIP).
It's a lifeline.
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ITVPolitics@ITVNewsPolitics
The Work and Pensions Secretary Liz Kendall has outlined radical changes to the benefits system to get more people into work and cut spending. "Millions of people who could work [are] trapped on benefits", Kendall told MPs in the House of Commons itv.com/news/2025-03-1…
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Susanne Driffield รีทวีตแล้ว

🗣️ Have your say!
Help shape our 10-year vision to transform the lives of people with muscle wasting and weakening conditions 🌍.
📋 Take our short survey and share your views: loom.ly/F45mAwg
⏳ Closes Monday, 17 February.
#HaveYourSay

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Susanne Driffield รีทวีตแล้ว

"The social care system is broken", says Graham.
He lives with MD and his social care was reduced last year. This story shows the devastating reality of social care cuts — leaving people feeling invisible and unsupported.
This isn't just numbers on a budget - it's lives.
Sky News@SkyNews
🗣️ "The social care system is broken." @NickMartinSKY meets a couple who are dealing with the fallout of that system ⬇️
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Susanne Driffield รีทวีตแล้ว

Looking for support? 🧡
Our Muscle Groups connect people living with muscle wasting or weakening conditions. Find one near you.
These groups offer a supportive space to connect, share experiences & meet others who understand your journey.
Read more: loom.ly/vLTI_YM

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Susanne Driffield รีทวีตแล้ว

We’re delighted that @NICEComms has recommended vamorolone (Agamree) for people aged four and over with Duchenne muscular dystrophy in England. 👏
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Susanne Driffield รีทวีตแล้ว

🚨 Your donation has double the power this week! Every £ you donate will be doubled by our donors.
Over 110,000 people in the UK live with muscle wasting conditions. It can be exhausting and lonely.
Make a difference: loom.ly/yCGAwVE
#GivingTuesday
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Susanne Driffield รีทวีตแล้ว

🚨NEWS🚨
Government to consider increasing £30k limit for Disabled Facilities Grant following a claim for judicial review from a 6-year-old Disabled child and his family
irwinmitchell.com/news-and-insig…
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