Kathryn Bryant Knudson

This Friday is a monumental event for the LGMD community. Join us in the Externally-led Patient-Focused Drug Development meeting for types 2A, 2C, 2D, 2E, 2F, and 2I. Go to lgmdpfdd.com Friday to view starting at 10:00 EDT.

@DrMakaryFDA Awesome job!!! Thank you!

FDA is proud to have approved another gene therapy. We are committed to regulatory flexibility when it comes to novel technologies. We must modernize our processes to meet the needs of patients.

@SaveAmericaNew Yes

BREAKING: Trump announces his plan to eliminate taxes on Social Security benefits. Do you support this? YES or NO?

@RFK_JR_ I like your statement! Speak up for those without a voice. Our motto at Speak Foundation is to help desperate families living without a cure for LGMD. Be the voice for those who can’t.

@united Everytime I have a bad experience with your airline, I am gonna post about it. Waiting over 45 minutes after everyone has ALREADY left the plane for my wheelchair to be brought up. I don’t need to message you; your airline needs to do better for the disabled.

The “ALS RespCare Course” is a free, accredited US National Online ALS Respiratory Care Course that covers respiratory care for people living with amyotrophic lateral sclerosis (ALS) and related disorders. Learn more at: alsrespcare.com/homepage.php

Thanks to @RepMikeLevin for cosponsoring the SSI Savings Penalty Elimination Act, bipartisan legislation that raises outdated #SSI asset limits to $10k/person & 20k/couple - indexed to inflation moving forward. Support the bill 👉: votervoice.net/MDA/Campaigns/…

@united Please train your staff to understand disabled air travelers. We are in 2024 not 1976.

@united Why is it that your staff are never trained well enough for a wheelchair user at the gate? Seriously, I thought you guys were up on the issues. Your whole staff look clueless like they never met a disabled air traveler.😂😂😂😂😂

Carol Abraham, President & Founder of @LgmdAwareness, shares her thoughts on the value of the 2024 MDA Clinical and Scientific Conference: “There is no other conference like this that brings the whole neuromuscular community together in one place." #MDAconference

@FLBlueCares see my other post…I don’t think you care and furthermore if this doesn’t get reversed I am going to escalate this on social media and go high with this issue!!!!!!

@FLBlue I am pretty shocked you denied my MRI today. I think I would like to escalate this publicly because this is very concerning that my doctor has recommended this diagnostic test.

@piersmorgan I believe Harry is standing up for his wife in a system he was forced into as a child. I think they were both very polite in how they expressed their feelings. Harry said the decision to leave was his own.

Imagine being the Royal Family still grieving the loss of your great Matriarch just a few weeks ago, and now having to endure two relatives who deserted royal duty & Britain for riches in America, publicly trashing you as racists & liars week after week? It’s so disgusting.

If prescribed, why should someone living with NMD start ventilation support at night? These are just a few interrelated reasons. #BreathingMuscleWeakness #MuscularDystrophy #NeuromuscularDisease

AskBio is a proud sponsor of The Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting, which will give patients living with limb-girdle muscular dystrophy the opportunity to share their perspectives with the FDA and other stakeholders. Register today. #LgmdAwareness

Our next issue of LGMD News distributes September 1st! In it, you will find everything you need to know about the upcoming LGMD EL-PFDD meeting, as well as an interview with Dr. Jerry R. Mendell! Sign up to receive it at thespeakfoundation.com/lgmd-patient-n…!

@Delta @Braves Are you working to become the last place airline? I swear Spirit is better.

Say hello to the World Champions plane! Today, we celebrated The @Braves’ 2021 World Championship win with the dedication of a newly designed 738 aircraft. Nothing but love for our hometown team ❤️️

@Delta Can you please answer the phone? I have tried calling your disability services number and there is no answer. I am flying out and literally the Worst. Service. Ever. I can’t get anyone to handle my disability issue. It is going on 5 hrs of my time.