Eric S Peeples

HIE registries are so incredibly important for figuring out the best diagnostic and treatment modalities for these kids. @HopeforHIE @BetsyPilon

NEW PROJECT ALERT! Building Education for HIE through AI 💛🩵💙 Facing a diagnosis of neonatal or pediatric-acquired HIE can be filled with uncertainty, and it often feels like learning about a new world that you didn’t know existed. This burden of seeking educational resources and support to help you understand a complex diagnosis like HIE and how best to help your child often feels like it is solely on your shoulders. In partnership with researchers from the University of Nebraska (IRB #0092-24-EX), we are collaborating on a project to better understand the educational and support needs of the Hope for HIE community. Specifically, we are hoping to understand how AI may be used and developed into a tailored, personalized, and accessible educational resource using what is called large language modeling (LLM). The study team is looking for 10 participants to engage in three (3) 1-hour video interviews via teleconferencing software, with the option to serve as beta testers when the tool is developed in future project phases. Participants will be compensated for their time and participation. The in-depth interviews aim to better understand the facilitators and barriers the Hope or HIE community faces when seeking educational information and support programming around HIE. If you aren't selected for an interview, or don't have the time to be a part of the interviews, fill out the survey anyway to be a part of the beta testing team! SIGN UP NOW! ➡ Hopeforhie.org/chatHIE #HopeforHIE #HIE #HIEresearch #Education #HealthLiteracy #HypoxicIschemicEncephalopathy #HIEawareness #HIEawarenessMonth #TransformingHope #AI #AIeducation #PatientAdvocacy #PatientEducation #NeoTwitter #NeuroTwitter #NICU