We’re moving, but never stopping! Please follow our corporate handle at @AmylyxPharma to stay connected with us.
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CENTAUR ALS Study
80 posts
CENTAUR ALS Study
@CentaurStudy
Inactive account. Please follow @AmylyxPharma for more on Amylyx' ALS clinical trial and other important updates for those with neurodegenerative diseases.
Joined Eylül 2018
62 Following170 Followers
We’ve moved to @AmylyxPharma, where you can find all the latest news and insights from Amylyx. We look forward to continuing to connect with you.
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To streamline our communications, we’ve decided to keep all updates in one place. Follow our corporate handle, @AmylyxPharma, to stay up to speed with all announcements and exciting news to come.
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The @CentaurStudy team appreciates the opinions & feedback that we receive from pALS & we are always looking for ways to make our clinical trial a better experience for you. Check out the poll below to contribute your thoughts about clinical trials! #ALS #clinicaltrials #pals
I AM ALS@iamalsorg
It’s a revolutionary idea: a poll on clinical trials that actually asks pALS for their experiences and thoughts. Take 15 minutes now. Change the way we think about clinical trials forever. Better trials start with you. @alstdi @ipsos bit.ly/2GqlWB9
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Considering a clinical trial but have questions? Check out this link to ALS Clinical Trials 101 then inquire with us if you're interested in participating in @CentaurStudy ! #ALS #clinicaltrials #ALSResearch massgeneral.org/als/research/?… …
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CENTAUR ALS Study retweeted
As Radicava (edaravone) use becomes more common, we want to remind everyone that the @CentaurStudy does NOT exclude participants who are currently taking Radicava or plan to begin at any point during the study! #ALS #ALSResearch #clinicaltrials @NEALSConsortium @alsassociation
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Today is a good day to try something new. How about considering an ALS clinical trial? Check out the @CentaurStudy phase II clinical trial that is still currently enrolling ALS participants! #ALS #clinicaltrial #locn" target="_blank" rel="nofollow noopener">clinicaltrials.gov/ct2/show/study…
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A few memebers of the @CentaurStudy team had the great pleasure of meeting @bsw5020 a few months ago. We can't wait to see what comes of your efforts with #IAMALS ! @iamalsorg #ALS #FindACure #ALSResources
Chicago Tribune@chicagotribune
It started when he couldn’t grasp a pen. Diagnosed with ALS at 37, former Obama staffer hopes to use campaign skills to raise funds for a cure: trib.al/0t8DJ7W
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Have you or someone you know been diagnosed with either familial OR sporadic ALS? If so, they may be eligible to participate in @CentaurStudy , as we enroll both types! #ALS #ALSresearch #clinicaltrials #MND
CENTAUR ALS Study@CentaurStudy
5-10% of ALS cases are familial & due to mutated genes. In the @CentaurStudy , we include both individuals diagnosed with familial and sporadic ALS. Want more info? Email us at MGHCentaurStudy@mgh.harvard.edu #ALS #ALSresearch #clinicaltrials #Neurology
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CENTAUR ALS Study retweeted
Stephen faced ALS w/rare bravery. He worked tirelessly to create a community unified to find answers & develop a cure. He took part in, supported & advanced ALS research. We miss him deeply & carry on our work bolstered by the memory of his vision & bravery.
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Sharing is so important! The more people we can reach, the faster we can enroll eligible study participants & complete trials to move onto the next phase! We ask that you please share & retweet our #clinicaltrial information to reach the wider #ALS community! @alsassociation
CENTAUR ALS Study@CentaurStudy
There is a large online and social media presence in the ALS community, share our posts with your community and pALS that may be interested in clinical trials! #CENTAURStudy #ALS #MND #ALSResearch #FindACure #Clinicaltrials @alsassociation
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@CentaurStudy is still hard at work screening & enrolling every day, which means YOU'VE still got time to ask questions & see if you may be eligible! Email us at MGHCentaurstudy@mgh.harvard.edu or contact someone at your nearest site! #locn" target="_blank" rel="nofollow noopener">clinicaltrials.gov/ct2/show/study… #ALS #clinicaltrials
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If you or someone you know been diagnosed with definite #ALS with symptoms starting <18 months ago, you may be eligible to participate in @CentaurStudy ! See a list of other criteria at our website, & contact the site closest to you for more info! #locn" target="_blank" rel="nofollow noopener">clinicaltrials.gov/ct2/show/study…
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We appreciate all our PALS' families & caretakers! They help PALS get to study visits, administer study drug, support their decisions, & SO much more! Thinking about #clinicaltrials ? Sit down with your family or caretaker & check out @CentaurStudy & if it might be right for you!
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@NEALSConsortium patient webinars are a great source of information about ALS clinical trials, including how they work, who they target, & what patient outcomes are involved. Check out the link below to see if you may be interested in participating! #ALSResearch #clinicaltrials
CENTAUR ALS Study@CentaurStudy
Have you attended any of the CENTAUR @NEALSConsortium webinars?? They are each recorded and available with the link below! You can follow up with any questions at MGHCentaurStudy@mgh.harvard.edu #ALS #NEALS #clinicaltrials ow.ly/Lcuq50jqrZG
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New year, new opportunities! If you've been considering participating in a clinical trial, maybe this is the year you go for it! If interested in seeing if you may be eligible for @CentaurStudy email us or check out the inclusion/exclusion criteria on #locn" target="_blank" rel="nofollow noopener">clinicaltrials.gov/ct2/show/study…
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The @CentaurStudy Open Label Extension is available to ALL study participants who complete the core study! This gives PALS an opportunity to continue on the trial while taking active study drug (no placebo option) for up to 52 weeks! #ALS #ALSResearch #clinicaltrial @alsadvocacy
CENTAUR ALS Study@CentaurStudy
One great thing about the @CentaurStudy is that it includes an Open Label Extension portion, in which participants will be given active drug for up to 52 weeks with fewer study visits after completing the double-blind study! #ALS #ALSresearch #clinicaltrial #openlabelextension
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Want to participate in @CentaurStudy but not sure if there is a participating site near you? Check out #locn" target="_blank" rel="nofollow noopener">clinicaltrials.gov/ct2/show/study… & expand "show 25 study locations" to see all 25 of our study sites and their contact info! #ALS #clinicaltrials #ALSResearch #FindaCure
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The @CentaurStudy would like to wish you a safe & happy holiday with friends & family! We will be returning after the holidays ready to work hard & continue enrolling! Don't hesistate to reach out at this time & we will get back to you as soon as we can! #EndALS #HappyHolidays
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CENTAUR ALS Study retweeted
The Stephen Michael Gleason Congressional Gold Medal Act (S.2652) just passed the House! We were honored to support this important initiative to #HonorGleason. #ALS #MND #OurALSCommunity
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