Fibromyalgia National Health Organization

The Fibromyalgia National Health Organization, formerly the Support Fibromyalgia Network, is committed to becoming a powerful symbol of hope for those affected by fibromyalgia. We empower our community through shared knowledge and innovative solutions to improve patient outcomes. As we expand our efforts, we pledge to ensure that groundbreaking collaborative care models are accessible to all #fibromyalgia patients, providing them with the support and resources they need to thrive. #nonprofitorganization

Firima et al. assert that the elevated prevalence of chronic pain and high-impact chronic pain, associated with chronic conditions, supports the need for integrative chronic care involving pain management. Learn more in #PainReports bit.ly/4rup174

1) Two age peaks: a fascinating paper confirmed two peaks for when people get ME/CFS: around 16 years old and in the mid thirties. The early onset in adolescence was associated with severe ME/CFS, an infectious onset, and having relatives with the disease. A brief summary...

Those at risk for dementia who ate more meat had a more favorable trajectory for cognitive aging. (Correlation. You can’t do a Ribeye Controlled Trial. More details in the letter)

Characterizing a patient's immunome might make misdiagnosing autoimmune diseases a thing of the past. Here are the results of this exciting discovery. \ The Discovery: Combining DNA sequencing with artificial intelligence, Stanford scientists identified with near 99% accuracy which of the 593 blood donors in their study had: - been recently vaccinated for the flu - Type 1 Diabetes - COVID-19 - Lupus - HIV or were healthy controls. \ DNA Sequencing and AI: They did this by training a machine learning framework using the DNA sequence of genes that encode the following from patients with known immunological states: - B cell receptors (BCR) - T cell receptors (TCR) - CD3 (helps activate T cells) It seems like only 3 genes are being analyzed. However, there are tens of thousands of unique BCR and TCR genes in your blood (~1 unique DNA sequence per T and B cell). The snapshot of different BCR and TCR combinations can inform a pre-trained machine learning framework of the patient's immunological state with nearly 99% accuracy. \ Potential Benefits: Scientists could theoretically train this technology to find BCR and TCR sequence patterns in other difficult-to-diagnose conditions, including but not limited to: - Autoimmune forms of arthritis - Autoimmune encephalitis - PANDAS/PANS - Sjogren's - Lupus - MS - etc. This could: - improve patient outcomes - save billions in healthcare costs - take the guesswork out of specific diagnoses IF this technology becomes mainstream, it won’t happen overnight. More data, research, and grit are needed to extend this to the full spectrum of diseases we care about. If you found this informative, please give it a like and share! Read the paper here: science.org/doi/10.1126/sc… Watch our YouTube video: youtube.com/watch?v=Q9KjBA…

Brain mechanisms supporting nonpainful multisensory hypersensitivities associated with core disease symptoms in youth with chronic primary pain: journals.lww.com/pain/abstract/… via @PAINthejournal

Mood changes aren’t always “just mental health." Sometimes they're rooted in infection and inflammation. 🧠 Join the @BrainInflCollab for a webinar on March 26 to explore how conditions like PANS, Long COVID, ME/CFS, Chronic Lyme, and other chronic illness conditions impact mood and behavior, and why these symptoms often don’t respond to traditional treatments. Register here: zoom.us/webinar/regist… 📅 March 26, 2026 ⏰ 2:00 PM CT/3:00 PM ET This is for everyone - patients, caregivers, clinicians, and advocates who want deeper insight and better answers.

Being diagnosed with multiple sclerosis at 24, Grace thought she was going to become bedridden from the disease. At 44, she became our first patient with MS to receive CAR T‑cell therapy being studied to slow disease progression. #MSAwarenessMonth More: cle.clinic/3NyLwJk

Chronic Pain & Mitochondrial Dysfunction youtu.be/BqRd-z5R8_Y?si…

Colorectal cancer is one of the most diagnosed cancers among Veterans, that’s why VA made colorectal screening easier than ever for Veterans to access either at home or in a VA facility. No matter how you get screened, the most important step is to do it. Talk with your VA care provider about the options that are right for you.

These seasonal favorites are at their peak this month, so be sure to add them to your grocery list! 🥦🧅🍓

Lopez et al. find that nearly 40% of adults in the United States (102M people in 2022) experienced pain requiring treatment with prescription medication: 80M and 29M with acute or chronic pain, respectively. Learn more in #PainReports bit.ly/4tFPzUt

A fellow youth advocate gave me this bracelet, and I wear it with pride alongside my badge. Thank you Lily! On tough night shifts in the busy Cardiac PCU, it quietly reminds me to keep going. Most people don’t notice it, but last night, a patient did. She was in the hospital for another reason, but she also lives with chronic pain. She told me that seeing my bracelet brought her comfort. That meant a lot to me. It showed me that advocacy can happen in small ways, helping someone feel safe, understood, and less alone. I’m still not sure exactly where my path is going, but I know I’m learning to be a better advocate for patients at the bedside. Moments like this remind me why that’s important. By mid-May, I’ll have finished one part of this journey!

@PainWarriorsdoc @forgrace @PACRiseUp @lawhern1 @fibrocanada @FibroCoach Congrats!! We will continue to share!

Woo hoo ! Pain Warriors movie is now even more accessible around the world, many channels are FREE . Please support our community outreach by helping #givepainavoice for all #painwarriors @forgrace @PACRiseUp @lawhern1 @fibrocanada @FibroHealthOrg @FibroCoach

@Duderichy The article incase anyone wants to read it outsideonline.com/outdoor-advent…

Monocyte-derived IL-10 drives sex differences in pain duration | Science Immunology science.org/doi/10.1126/sc…

@FibroHealthOrg Hi everyone! I’m a student at the University of Liverpool conducting a study into FIBROMYALGIA FLARES. Please take part in the study as it is completely anonymous and will take approximately 10 mins! livpsych.eu.qualtrics.com/jfe/form/SV_1X…

1) Todd Davenport and his colleagues from the Workwell foundation published new data on 2-day exercise testing in patients with Long Covid. These showed reductions in workload and VO2 max on the second test, similar to ME/CFS patients.

Calling all New Yorkers! If you have #LongCOVID and would like to be a part of this exciting trial exploring low dose rapamycin as a potential therapy, please reach out to the @CoRESinai team. This trial will deepen our understanding of immune dysfunction in LongCOVID. Plz help!

Brain scans in ME/CFS and Long COVID have found changes in glutamate and GABA, the chemicals that control brain activity. Multiple studies now suggest disrupted excitation and inhibition may be linked to brain fog, fatigue, and sensory symptoms. Let’s breakdown in simple terms.