Amy Goldstein

@cam_mito @lhonuk @lhonsociety @CureADOA @adoaa_lindsey @LHONCanada @LHONpoince @UMDF @4Lilyfoundation @LondonMito @MitoResearch @Moorfields @NeringaJurkute @DrJoshHarvey @GilhooleyMJ Ok to circulate in the US?

Just a reminder that this q/aire for patients with #LHON & #ADOA is still live: redcap-ide-cam.org.uk/surveys/?s=PAJ… @lhonuk @lhonsociety @CureADOA @adoaa_lindsey @LHONCanada @LHONpoince @UMDF @4Lilyfoundation @LondonMito @MitoResearch @Moorfields @NeringaJurkute @DrJoshHarvey @GilhooleyMJ

This is the best interview I have EVER seen. Ever; ever; ever; nothing comes close. Douglas Murrey has a heart – and mind – of gold. And what unfolds in this seven-minute clip is something you need to watch for yourself. (Once you see it halfway through, you’ll know exactly what I’m referring to.) But he articulates something which I have been trying to share for the past month: The Nazis, as fundamentally evil as they were, believed that they were engaging in a necessary evil for an ultimate good; they still had a spark of humanity at their core; thus, their main flaw was that they believed the ends justified the means; even though they fully believed in the “result” of a world without Jews, they were still fundamentally opposed to the “actions” they were taking. This is what motivated the Nazis to find ways of circumventing the existential moral decay they were entering, and allowed them to get creative by using the gas chambers, mass shootings (in the BACK of the head – to avoid direct facial contact), and other passive forms of mass annihilation, while also having as few Nazis as possible actually involved in these acts of murder; they then encouraged those individuals who were involved in this atrocity of mass murder to get drunk every night in order to wash away the person they started seeing in the mirror. Thus, the existential decay of these individual Nazis actively involved in the mass murder of the Jewish People was simply seen as another layer of “the ends justify the means.” They were the epitome of “Western” evil. Hamas is the exact opposite. This IS their value system. They prize death, murder, rape, suicide missions, and everything that opposes the very foundation of values and truth to begin with. The events of October 7th was not an end to a means… there is no future goal… this IS the goal. They are the epitome of an evil the likes of which we have never before seen. Please – I know this is social media and some people only watch 60-second soundbites; but please, please, please watch this brilliant interview. Douglas Murray – you are a credit to everything worth being credited.

Amy Goldstein, @divakarmithal, and Melissa Walker talking at #CNSAM about #MitoDisease and Child Neurology’s Future. Let’s make the future now. @ChildNeuroSoc @LurieChildrens @ChildrensPhila

Dr Amy Goldstein discussing insightful data about secondary mitochondrial disorders in non-primary mitochondrial disorders at @ChildNeuroSoc annual meeting. @CHOP_Research @ganetzky1 @MommasaurusJess @UMDF @AndreaGropman

Ten years ago I met @AMYMITODOC on a @UMDF Energy for Life Walk & decided to reprogram #iPSCs from pts with #mtDNAdepletion syndromes. Our first report modeling #POLG-related neurological disease is finally in press at AJP! And #PINK1 protects! ajp.amjpathol.org/article/S0002-… @ASIPath

So excited to share our new mitochondrial neuroimaging paper describing and classifying atypical forms of MELAS. Thank you to my great mito expert friends for this great collaboration. ajnr.org/content/early/…. @TheASNR @The_ASPNR @spinacademics @UMDF @Mito_News

@AlePrigio @EJPRareDiseases @AWartiovaara @OlePless @zarathustra2020 @uni_lu @radboudumc @UMDF @HHU_de @UniklinikDUS Wonderful news for the entire community! Congrats!

I am delighted to announce that @EJPRareDiseases will fund our Consortium CureMILS. With @AWartiovaara, @OlePless, @zarathustra2020, Antonio del Sol @uni_lu, Werner Koopmann @radboudumc, International Mito Patients @UMDF, @HHU_de, @UniklinikDUS ejprarediseases.org/index.php/fund…

Today @UMDF launched a grant cycle targeting KSS/CPEO forms of mitochondrial disease. Details and RFP can be found at UMDF online portal. Submissions are due 9/30/2020. Good luck! bit.ly/umdfportal

I wrote out some thoughts on how to make this moment a real turning point to bring about real change––and pulled together some resources to help young activists sustain the momentum by channeling their energy into concrete action. @BarackObama/how-to-make-this-moment-the-turning-point-for-real-change-9fa209806067" target="_blank" rel="nofollow noopener">medium.com/@BarackObama/h…

#Neurology #MedEd #NeurologyMorningReport #medtwitter

Amazing show of support!

Dr Jane Newman, who is a physiotherapist within the WCMR, has been involved in the development of physiotherapy guidelines for people with mitochondrial disease. Jane recently discussed the aim of this guidance with The Lily Foundation. You can read more… ift.tt/38bS6fo

#mitomed2019 has begun!!! Doug Wallace will give the opening keynote; meeting keeps getting better every year!

I need to schedule a date with Elise!!!!

Dr. Morris @TexasChildrens explains how when #raredisease patients advocate for themselves and tell their doctors what they need, doctors have an easier time getting what is needed to help the patients. #LivingRareForum

@medhumchat My role is to be a physician, but to also bear witness to the experience I am having with that patient. We are sharing a (sometimes very intense) human experience and it is the greatest privilege and burden in medicine. #medhumchat

Q 3: What role does writing play in your life? #medhumchat

Mitochondrial Medicine Society incoming president Amel Karaa gives Lifetime Achievement Awards to founding members Bob Naviaux and Richard Haas #mitomed2018

Martin Picard just gave a very nice shout out to @amyvincent for her work on mito network in human muscle #mitomed18

So incredible to hear stories of patients with Mito disease and carers here at #euromit2017 @MitoResearch