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Somethng happened today.
I have nothing to say now, except that some of you you have placed losing bets on you’re futures. I will no longer participate.
Goodbye.
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LC Barbarian V2.0
3.7K posts
LC Barbarian V2.0
@D_Bone
I’m out! Enjoy the Records!
Valhalla Bergabung Aralık 2024
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Sadly, despite the internal conflicts, the whole conversation about any of this has become an echo chamber.
You all got duped.
All of you.
Myself included.
Yes, Vasser is my first name@Vasserbee
Long Covid Peeps here fall into 2 categories: 1) those who work hard to help, share knowledge and respectfully debate, and b) those who belittle and lie about others to shut down any voices but their own echo chamber. Ask yourself, who are the group b people helping?
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@tryna_do_rite I know. iI’s somethng but also nothing.
It’s a hard pill to swallow.
Maybe in 6 more years people will understand why I’ve been saying for the last 3.
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I'd feel better about the teal-lit buildings and "solidarity" if I knew we wouldn't be disabled tomorrow. -If I knew there was any solution tomorrow. If I knew we'd have our lives back, tomorrow.
But there is no change coming unless we make it happen and what I've seen is not "Making It Happen"
So I promise you this....
When you wake up tomorrow with #LongCovid, you're as f*cked as you were this morning.
Guus@guustweet
I’d really like to become a little less aware. I find myself not really having much to say today. #LongCovidAwarenessDay. Six years in, it feels like we’re still having to repeat the same things over and over, with little tangible change in day to day to life for most of us. 🧵
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@D_Bone @AlbaDocherty Sorry for my naivete, what do you mean "makes over $2m"?
And is that money related to LC somehow?
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"ME/CFS needs research. No excuses!"
This is what these depraved fkn MFing assholes do on #LongCovidAwareness Day.
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@NotOstriching @whydecieve It’s so easy to see.
They got what they needed.
I
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LC Barbarian V2.0 me-retweet
@D_Bone @whydecieve You were 🎯 about many things but thinking in particular re a recent comment about how the researchers don’t “need” the patients anymore….and they’re not at all concerned with letting it show… x.com/notostriching/…
NotOstriching@NotOstriching
Did ANY of the “top” LC researchers & Foundations post on their timelines to acknowledge #LongCovidAwarenessDay ? I’ll wait…. Feel free to post below.. I think the list is pretty short or non-existent?! And then they or their orgs come fundraising amongst patients? 🙃
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#LongCovidAwarenessday has now become the most triggering day of the year for me.
Now it’s over, and we’re back to “baseline triggered” with zero solutions, in our seventh year and counting.
Anyone want to buy a tee-shirt?
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@AlbaDocherty Relax homie! This is how folks self diagnose with a fantasy disease.
How else are people gonna round up the gullible and ignorant and ask for money?
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Poison. But no way to stop it because it’s coated with sugar.
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@westron__wynde Many have started down that road.
They gate-kept access.
It’s not the heel position, it’s a call to action to reject fraud - which I understand is futile, but this is only Twitter.
Everyone with an his disease in the heel position.
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@D_Bone The one thing I don't get man, why don't you and your people start an org and show everyone how it's done? Not a criticism, you seriously should. I don't understand why this hasn't happened? Being in the heel position infinitely telling everyone else what they've done wrong
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I’d say this is strange, but it’s not.
They were, are and will forever be frauds.
Am I bitter? Yes - They wasted our f*cking time, divided up community, decentralized the conversation, confused people and now - the shit show is virtually irreparable.
And many of them are perfectly healthy.
Alba ࿐@AlbaDocherty
Long Covid Awareness Day & the Moonshot astroturfs that lied about Long Covid research needs & fk'd everyone didn't say one word. 🚀 Michael Peluso, Lisa McCorkell, Chris Maddison, Sawyer Blatz, Daniel Lewis, Sita, Olenka Sayko, "NPI", Elisa, Claudia Sherman, sooo many more...
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@CovidComunidad It’s complicated, but yes many have profited.
We still have no solutions to this problem. Zero.
And it’s only getting worse for us.
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@D_Bone Amigo ¿Qué pasa allá con todas estas personas? Eso es algo que no se ve en México u otros países de Latam ¿buscan lucrar con nuestra condición?
Español
@cb_grl Um yeah…
Everything from that account has been calculated.
I don’t blame them, it’s a financial strategy.
But it’s gross to celebrate if you have LC and you give a damn about others with it.
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@D_Bone Frankly, Twitter has a schedule post feature. This was a CHOICE.
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