BEAST

@EDSawareness1 Thank you for all that helpful information. I will look into everything and leave no stone unturned. Just want to make the right decisions moving forward for my wife and our family.

@30_thebeast And any doctor should be able to order genetic testing. Invitae has a good EDS panel. See also the EDS Toolkit for doctors at: gptoolkit.ehlers-danlos.org

#EDS, #HEDS, #VEDS My wife’s rheumatologist keeps wanting her other doctors to make the request to go to a different medical location to get the testing, but they all say, it needs to be her. If anyone has any information please help. Thank you

@EDSawareness1 My wife’s rheumatologist keeps wanting her other doctors to make the request to go to a different medical location to get the testing, but they all say, it needs to be her. If anyone has any information please help. Thank you

@EDSawareness1 #EDS, #HEDS, #VEDS Hello #EDS community, here in Southern California it is very difficult to find some where to get the genetic testing done even as a cash patient. Can anyone help direct us to someone locally that might be able to help

#EDS, #HEDS, #VEDS Hello #EDS community, here in Southern California it is very difficult to find some where to get the genetic testing done even as a cash patient. Can anyone help direct us to someone locally that might be able to help?

🚨 Giveaway alert 🚨 RT + like for a chance to win a #BroncosCountry mural poster ⬇️

Over the course of a lifetime, we face only a few moments where the decisions we make and the actions we take will shape our history for years to come.  This is one of them.

“Freedom is not free. We have to work at it. Nurture it. Protect it. Even sacrifice for it.”

BREAKING: STATEMENT BY PRESIDENT OBAMA AND MRS. OBAMA The killing of Alex Pretti is a heartbreaking tragedy. It should also be a wake-up call to every American, regardless of party, that many of our core values as a nation are increasingly under assault. Federal law enforcement and immigration agents have a tough job. But Americans expect them to carry out their duties in a lawful, accountable way, and to work with, rather than against, state and local officials to ensure public safety. That’s not what we’re seeing in Minnesota. In fact, we’re seeing the opposite. For weeks now, people across the country have been rightly outraged by the spectacle of masked ICE recruits and other federal agents acting with impunity and engaging in tactics that seem designed to intimidate, harass, provoke and endanger the residents of a major American city. These unprecedented tactics—which even the former top lawyer of the Department of Homeland Security in the first Trump administration has characterized as embarrassing, lawless and cruel—have now resulted in the fatal shootings of two U.S. citizens. And yet rather than trying to impose some semblance of discipline and accountability over the agents they’ve deployed, the President and current administration officials seem eager to escalate the situation, while offering public explanations for the shootings of Mr. Pretti and Renee Good that aren’t informed by any serious investigation—and that appear to be directly contradicted by video evidence. This has to stop. I would hope that after this most recent tragedy, administration officials will reconsider their approach, and start finding ways to work constructively with Governor Walz and Mayor Frey as well as state and local police to avert more chaos and achieve legitimate law enforcement goals. In the meantime, every American should support and draw inspiration from the wave of peaceful protests in Minneapolis and other parts of the country. They are a timely reminder that ultimately it’s up to each of us as citizens to speak out against injustice, protect our basic freedoms, and hold our government accountable.

The killing of Alex Pretti is a heartbreaking tragedy. It should also be a wake-up call to every American, regardless of party, that many of our core values as a nation are increasingly under assault.

We all saw what happened today with our own eyes. Yet Trump’s administration continues to lie to our faces. We need an independent investigation and accountability NOW.

Today, the House voted to give DHS more funding. But we will not give up, we must continue to demand more. I introduced the Melt ICE Act to end funding for immigrant detention and monitoring, cripple immigration enforcement, and return funds to our communities. Let’s continue organizing!

What is happening in Minnesota has to stop. Another person shot, another set of lies from DHS instead of a real investigation. Senate: DO NOT FUND ICE AND CBP. Trump and his cult party are stealing our democracy— right in front of our eyes—violating our rights and killing people in our streets.

Donald Trump won’t be President forever. Kristi Noem won’t be Secretary forever. We will hold every single person responsible for these criminal actions accountable.

They will never take our humanity no matter how hard they try.

Rep. @AOC: “ICE is attacking 🇺🇸 citizens, kidnapping 5-year-olds and using them as bait to open doors, and violating constitutional rights by busting into their doors… They deserve to be defunded." (H/T @MeidasTouch)

When I’m the Governor of California, ICE is out.

Today’s murder of Alex Pretti by ICE, just weeks after Renée Good was murdered, is a moral and constitutional reckoning for our country. This is state violence carried out by a fascist, authoritarian regime. We have the power to stop this and we must exercise it.

Don’t let this White House lie to you. Believe what you see. Alex Pretti was trying to help a woman off the ground. Then immigration agents tackled, shot, and killed him. It’s time for them to get the hell out of MN.

Alex Pretti was murdered.