🅚🅐🅨 💜💦

Finally! You can get your fix of Joe Hayden and his hypnotic, dulcit tones🎙🎧📓 Here via #YouTube youtu.be/9dyvXmgFm8Q #JoeHayden #VoiceActor #VoiceOver #ASMR #ShortStory #shortstorywriter instagram.com/p/BzVfmzvhJti/…

🗳️ for your favorite article of the year in AJNR! If you liked “Consensus Guidelines on Diagnostic Brain and Spine Imaging of Spontaneous Intracranial Hypotension,” …it is one of the nominees! 😉 Vote here: bit.ly/ajnrvoting

Harry lost his job, mobility & independence. He was told it was Parkinson’s. After 2+ years of advocating for himself, he got the right diagnosis: NPH. Today, he’s rebuilding his life! This Parkinson’s Awareness Month, we’re sharing Harry’s story: hydroassoc.org/people-view/ha…

@CSFleaks Its "Informed consent" it is a strict legal and ethical requirement for medical treatment, procedures, and research. Valid consent must be voluntary, informed, and given by a person with the capacity to decide. Treating someone without this consent can lead to legal action.

@Assidens I think it is not yet fully settled whether this is legally mandatory or not. From an ethical standpoint, however, it is clearly obligatory even if cPDPH, the need for blood patches, etc., are rare.

#Ineedhelp 🙏 I will be posting several surveys here in the near future and would appreciate your input. I am especially interested in responses from SIH / cPDPH physicians, but also highly informed patients, other healthcare professionals, and even legal experts. Please🩵💫🙏🙏

@CSFleaks It 'should' be mandatory! I wasn't informed neither verbally or on consent form that PDPH was a risk when I had my spinal injections. I also wasn't informed the drug/proceedure is not licensed for use anywhere the spine. I would have refused if I'd known the risk.

Question: Is it mandatory to inform patients about risks and complications such as chronic PDPH in the case of an accidental dural puncture during epidural anesthesia?

apply to this one of a kind fellowship!! @spinalCSFleak

Tonight on BBC Newsnight - these women share the horror of the sexual abuse Jeffrey Epstein subjected them to and the truly damaging effect it's had on every aspect of their lives Jena Lisa Jones, Wendy Pesante, Joanna Harrison, Chauntae Davies and Lisa Phillips were groomed by the paedophile who they describe as a 'master manipulator' Some were as young as 14 years of age when he initially assaulted them. Some were raped on his private island or at his ranch in New Mexico. One woman who wishes to remain anonymous ('Nikki') told me he drugged her and she believes raped her while she was unconscious for 12 hours All were either vulnerable girls and/or young women with dreams he claimed he could help them realise. We brought them together for a BBC Newsnight special which you can watch tonight on BBC 2 at 1030 We brought them together for a BBC Newsnight special which you can watch tonight on BBC 2 at 1030 They also gave me their reaction to zero arrests of anyone in the US despite the masses of new information released in the Epstein files; whether US authorities shld now be helping UK police forces in their enquiries into the ex-Prince and Lord Mandelson; and they all have very poignant and powerful messages for survivors of sexual abuse around the world Please do watch if you can 1030pm BBC 2 & BBC News (& later on iplayer)

@Saintbarca Aww, super cute 😍

New addition to the family yesterday. Basil came from the RSPCA, re-named by Melanie. He’s had a bit of a hard time but he’s lovely. Only the second time he’s even seen me but he seems to be comfortable with both Melanie and I already.

This is why many disabled people are rightly concerned about Assisted Dying. If AD is funded and available but a wheelchair ramp isn’t, what does that say about the attitudes towards disabled people?

That’s nonsense because many of the people who get what he calls welfare do in fact Work. And much of this total is paid to pensioners in return for their national insurance and they would certainly not consider it welfare. But it’s fake statistics like these that can influence peoples beliefs.

"The most severe pain condition in medicine." 💔 It’s time we talk more about Cluster Headache. Current treatments are often ineffective or hard to access, but the community is ready for change. 75% of patients surveyed are willing to join clinical trials to help find better solutions. Let's support the search for better treatments. 🤝 ✨ Are you living with cluster headache? What research would you like to see in the future? Let us know in the comments! #ClusterHeadacheAwareness #ChronicIllness #PainManagement #Neurology #HealthSupport

Spinal CSF-venous fistulas almost always arise from meningeal diverticula. The diverticular size can vary from tiny (submillimeter) to massive (think dural ectasia). At least one-third of diverticula change size when a fistula forms ⁦@spinalCSFleak⁩ pubmed.ncbi.nlm.nih.gov/41730631/

@ThisisMEtweety @Tanni_GT @BuDs_UK Yes, absolutely. I've been refused pain management services locally, as they said I was "palliative care only" but GP said in Lincolnshire palliative care only available for terminal patients. Whereas my cond is life limiting by around 12yrs, but not classed as terminal 🤷‍♀️🤦‍♀️

@Tanni_GT @BuDs_UK I think many/most people think that palliative care is always end of life care. It isn’t. I myself realised this only recently & I’m comparatively knowledgeable about the UK health system due to my work. Do you think this confusion could be playing into this sentiment?

One of the things that came up in the debate yesterday was that AS should be considered part of palliative care. If it does then it becomes normalised and it can expand

@Tanni_GT @TheNotDeadYetUK Thank you for everything you are doing on this 🙏

@Assidens @TheNotDeadYetUK I have amendments on this as the bill isn’t clear.

Our new polling reveals deep public concern over the safety of the Scottish Assisted Suicide Bill for disabled people. @Tanni_GT bit.ly/415pQaJ

@TheNotDeadYetUK @Tanni_GT So can't get Palliative care either. And just to add insult to injury: if I end my life myself, my life insurance won't pay out either🤦‍♀️ I'm ten years in, with still no effective treatment. We are abandoned in terrible limbo.

@TheNotDeadYetUK @Tanni_GT The whole thing is a tragic mess. Just heard about a young woman in Canada with one of my conditions has just ended her life via MAID😢 We are so vulnerable. Despite the cond being life limiting (by 12 yrs ave) its not classed as terminal, so life insurance won't pay out, cont..

@sarasiobhan I'm not sure it needs to be A level though 🤷‍♀️ In other news.... I'm Welsh, live in England and don't have A level English 😳

@sarasiobhan ....People to learn English if they want to live in the UK forever. Because this helps people talk to others, find jobs, and understand rules. If someone can speak and read English well, it is easier for them to take part in everyday life.

The utter state of us.

Let’s compare SIH to “Iatrogenic and Post-Dural Puncture CSF Leaks” by @LeviChazen from @HSpecialSurgery! #ASSR26 #neurorad #spinerad #neuroradiology

Tomorrow we lift the 9.30am restriction on bus passes, letting older and disabled people travel whenever they want. It was good to thank the GM Older and Disabled People’s Panels for pushing for it. A positive change powered by the people - exactly how politics should work! 🙌🏻