Texas Bleeding Disorders Advocacy Coalition

HB 999 passed unanimously out of the Senate! Thank you @FourPriceTX @DrSchwertner for protecting patient access and ensuring #allcopayscount #txlege

Thank you @DanPatrick for your longtime support of the hemophilia community. We look forward to a quick passage of HB 999(Rep. Price)-an agreed to bill between patients & healthplans-ensuring payments made by or on behalf of a pt count toward their deductible & out of pocket cost

Thank you @FourPriceTX for continuing to fight for Texas patients and ensuring access to lifesaving drugs #hb999 #bleedingdisorders @lonestarbdf @TomOliverson

Such an important issue! Thank you @FourPriceTX! #hb999 #txlege

Such an important issue - thank you @FourPriceTX and the Committee!

Thank you @PeteSessions for a great meeting discussing HR 830 and copay accumulators that are hurting our community. Thanks for taking so much time to really dive into the issues and have such a great conversation!

Thank you @TomOliverson for taking time out of your day to meet with many of the advocates we brought to the Capitol today. Thanks for your support of the bleeding disorders community!

Thrilled to be a part of this lunch and learn today! Ensuring access for Texans with many chronic conditions! @lonestarbdf @TexcenBD #txlege

@KhrystalKDavis of @TexasRare: “The choice is whether to allow patients to access innovative, life-improving medications that allow them to be home with their families, or pay more later when #DelayedCare requires higher-cost emergency and critical care.” #TxLege

Thank you @txhbi and @DonnaHowardTX for your commitment to access for Texas patients!

Good morning from the Texas Capitol! Excited to be participating in the @txhbi Luncheon today!

Join THBI for a Patient Advocate Luncheon & Expo w/ @ACSCANTexas, @AmericanLungTX, @AsOneFoundation, @TxDisabilities, @DMLCHWS, @Immunize_USA, @NAMITexas, @RegardingCancer, @BleedingTexas, @txrare, #txlege, to discuss healthcare challenges. RSVP today! thbi.com/2022patienteve…

The #txlege can help patients stay healthy. Please allow Texans to stay on the medications that keep them stable @SamHarless126 #PBMReform

Mason is 16yrs old, he loves to play video games. When he was 8yrs old he had his first, spontaneous knee bleed.He had to have 3 knee surgeries in 2016, at 10yrs old. #txlege please ensure kids like Mason have access to their medication! @TomOliverson @SamHarless126 @VoteGiovanni

Doctor @MattieRheumMD gave a master class in how #PBMs are impacting patient’s access to the life-saving drugs they need. #TXLege we hope you’re listening!

Our current witness is David Balat, Director of Right On Healthcare with the Texas Public Policy Foundation who is focused his testimony on the increased price Texans pay for healthcare in Texas. His testimony is there is great variability and no consistency in pricing. #txlege

Dr. Cliff Porter is up now, Managing Partner and Founder of Direct Primary Care and family care physician is talking about the costs of specific drugs, generic and brand name and the difficulty people have in getting their prescriptions. #txlege

Texans can't access healthcare if they can't afford to pay their #OOPcosts,copays or deductibles,which leads to patients missing doctor's appointments,rationing meds, &not getting prescriptions filled.#TXLege #bleedingdisorders @TomOliverson @DadePhelan @SamHarless126 @RepWalle

On 8/4&5,the Interim Committee on Healthcare Reform will be meeting to discuss how to make healthcare more accessible.We will be sharing on social media throughout the hearings. Pls repost & retag the lawamkers on your accounts. Social media is powerful.Your voice will be heard!

Had a great lunch and learn at the Capitol today, meeting with staff from so many legislative offices. We shared what life is like with a bleeding disorder and discussed the harmful effects of #copayaccumulators and #nonmedicalswitching on patients with rare diseases.