Texas Rare Alliance

501 posts

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Texas Rare Alliance

Texas Rare Alliance

@txrare

TX Rare is dedicated to improving access and health outcomes for nearly 3 million Texas #raredisease patients through education and advocacy.

Austin, Texas Katılım Aralık 2018
601 Takip Edilen443 Takipçiler
Sabitlenmiş Tweet
Texas Rare Alliance
Texas Rare Alliance@txrare·
Our Founder & President, @khrystalkdavis took a strong position against PBMs in her op-ed calling for reform. Since PBMs emerged, patients face increasing barriers to access and pay more out of pocket for the medications they need. bit.ly/3Gsb3LK
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Texas Rare Alliance
Texas Rare Alliance@txrare·
There is an alarming shortage of some injectable drugs for #cancer and other life-threatening diseases, the result of misdirected government policies. It’s time for #340B reform. Put patients first. is.gd/Bwte7J
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Texas Rare Alliance
Texas Rare Alliance@txrare·
“Earlier this month, Grassley told Reuters the #PBM system was ‘an opaque operation. Transparency brings accountability, and there’s no accountability.’” is.gd/j0vFVu
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Texas Rare Alliance
Texas Rare Alliance@txrare·
#PBM compensation and the list price of a medicine create an incentive for #PBMs to prefer higher list prices. Delinking this compensation arrangement could save an estimated $39.9 billion over a 10-year period. is.gd/KE21tN
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Texas Rare Alliance
Texas Rare Alliance@txrare·
A big thank you to our own Senator @JohnCornyn for joining with the 24 cosponsors of the #MCED Screening Coverage Act to create a pathway for early cancer detection for Texans on Medicare.
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Texas Rare Alliance
Texas Rare Alliance@txrare·
@JohnCornyn has joined 24 of his colleagues in cosponsoring the Medicare #MCED Screening Coverage Act, which will ensure America’s seniors will have timely access to early detection technologies. Thank you, Sen. Cornyn!
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Texas Rare Alliance
Texas Rare Alliance@txrare·
Lean how the #340B program is potentially and unnecessarily encouraging the purchase of higher-priced prescription meds, which may inflate costs for patients. is.gd/qx1QhG
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Texas Rare Alliance
Texas Rare Alliance@txrare·
@JohnCornyn has joined 24 of his colleagues in cosponsoring the Medicare #MCED Screening Coverage Act, which will ensure America’s seniors will have timely access to early detection technologies. Thank you, Sen. Cornyn!
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Texas Rare Alliance
Texas Rare Alliance@txrare·
Drug discounts that benefit only #PBMs should be shared with patients. We hope this important #PBMreform is top of mind for @SenFinance members as they discuss #PBM accountability and PBM overcharging of patients. Thank you, Sen. @JohnCornyn for your attention to this issue.
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Texas Rare Alliance
Texas Rare Alliance@txrare·
Drug discounts that benefit only #PBMs should be shared with patients. We hope this important #PBMreform is top of mind for @SenFinance members as they discuss #PBM accountability and PBM overcharging of patients. Thank you, Sen. @JohnCronyn for your attention to this issue.
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