LoneStar_BleedingDisorders

🌟 Featured Coalition Member 🌟 "I am honored to be a part of BD SUMHAC's work. Bleeding disorders are complex and we need to support the whole patient. Education is key and I'm excited to be able to make a positive change for our community." - Melissa Compton @lonestarbdf

Thank you for continuing to support the bleeding disorders community! Your help over the last 6 years has been crucial to improving the lives of people with bleeding disorders!

HB 999 passed unanimously out of the Senate! Thank you @FourPriceTX @DrSchwertner for protecting patient access and ensuring #allcopayscount #txlege

Thank you @DanPatrick for your longtime support of the hemophilia community. We look forward to a quick passage of HB 999(Rep. Price)-an agreed to bill between patients & healthplans-ensuring payments made by or on behalf of a pt count toward their deductible & out of pocket cost

Today we testified on #HB999, ensuring all copays count. Thank you @FourPriceTX and to the HRC Committee. @TomOliverson @RepWalle @RepJamesFrank @DonnaHowardTX @SamHarless126 @RepToniRoseTX @BucyForTexas @DrGregBonnen @StephanieKlick @EddieMoralesJr #txlege

Thank you @PeteSessions for a great meeting discussing HR 830 and copay accumulators that are hurting our community. Thanks for taking so much time to really dive into the issues and have such a great conversation!

@KhrystalKDavis of @txrare: ‘The choice is whether to allow patients to access innovative, life-improving medications that allow them to be home with their families or pay more later when #delayedcare requires higher-cost emergency and critical care.’ #txlege @SamHarless126

Thank you @txhbi and @DonnaHowardTX for your commitment to access for Texas patients!

Good morning from the Texas Capitol! Excited to be participating in the @txhbi Luncheon today!

Tomorrow evening at the George, we would love to see you there! @JohnCornyn @tedcruz @RepMcCaul @JacksonLeeTX18 @DanCrenshawTX @LouieGohmertTX1 @RepKevinBrady

Just posted a photo instagram.com/p/ChKV30ZrG2U/…

Dr. Cliff Porter is up now, Managing Partner and Founder of Direct Primary Care and family care physician is talking about the costs of specific drugs, generic and brand name and the difficulty people have in getting their prescriptions. #txlege

Mason is 16yrs old, he loves to play video games. When he was 8yrs old he had his first, spontaneous knee bleed.He had to have 3 knee surgeries in 2016, at 10yrs old. #txlege please ensure kids like Mason have access to their medication! @TomOliverson @SamHarless126 @VoteGiovanni

Doctor @MattieRheumMD gave a master class in how #PBMs are impacting patient’s access to the life-saving drugs they need. #TXLege we hope you’re listening!

Texans can't access healthcare if they can't afford to pay their #OOPcosts,copays or deductibles,which leads to patients missing doctor's appointments,rationing meds, &not getting prescriptions filled.#TXLege #bleedingdisorders @TomOliverson @DadePhelan @SamHarless126 @RepWalle

On 8/4&5,the Interim Committee on Healthcare Reform will be meeting to discuss how to make healthcare more accessible.We will be sharing on social media throughout the hearings. Pls repost & retag the lawamkers on your accounts. Social media is powerful.Your voice will be heard!

We are so excited to be kicking off our 2022 TBDC! First one in 3 years!! #tbdc22

Just posted a photo instagram.com/p/CgPThqsL1EU/…

Just posted a photo instagram.com/p/Cftm1nDLtY3/…

Happy Birthday to our very own Amanda Wolgamott!! She is not only our chapter’s board president, but the Team Captain for Hank’s Heroes. Thank you for all you do for Lone Star!!! instagram.com/p/CfbpPojrVSS/…