@HollyBullardFL @JoanAlker1 It so corrupt, they bill full pay kidcare as medicaid. Yet, say it not technically a medicaid or chip plan. Yet, my son does not get the same benefits as chip or medicaid.
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Erin Booth
51 posts
"I just have to conclude that (Gov. Ron DeSantis) really wants to not do the expansion. I think he's going to try everything he can to leave office without expanding KidCare, which was the bipartisan will of the Legislature," (Georgetown CCF Exec Dir @JoanAlker1) Alker said.”
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@FLHealthJustice Thank you for all you do for kids like Landon.
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The KidCare expansion could give thousands of Florida kids affordable coverage—premiums starting as low as $17 instead of $250+. FHJP is working to make sure families don’t have to wait.
Learn more: bit.ly/47iacg3
#KidCare #FloridaKids #AccessToCare #FHJP
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@JoanAlker1 They also raised the full pay rate by 15 dollars and gave us less than a month notice. Told us to make sure that we are responsible in making sure our bank knows of change in payment amount if automatically withdrawal. I have the letter.
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Florida is violating federal law for children covered by CHIP and thousands are losing coverage. The Trump Adminstrarion is not enforcing the law.
wusf.org/health-news-fl…
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@ACintheDC My son is one the kids featured in this story. AHCA FL reached out to me and acted like this is not happening. They told me they need to look into it and get back to me. I will believe it when I see it. They didn't even know the 300 percent passed 2 years ago.
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“FL Healthy Kids has delivery systems that are designed for healthy kids,” Freedman said. Families who have kids w special needs get disenrolled... because they're no longer eligible for #Medicaid, & they get moved over to FL Healthy Kids. The systems are different. It's not good
Joan Alker@JoanAlker1
In Florida the challenges for very sick kids continue... Medically Unnecessary: Kids with complex needs moved to state insurance that doesn’t help health.wusf.usf.edu/health-news-fl…
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@CaseyDeSantis @SamGarrison155 Florida wanted to kick my son off medicaid in the middle of his cancer treatment. He was 7.He a cancer survivor on full pay kidcare and can't get the therapies he needs from the side effects of cancer treatment. He has a brain injury, and can't get the rehabilitation services.
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Thank you to Rep. @SamGarrison155 for joining us yesterday at Wolfson Children's Hospital in Jacksonville.
I greatly appreciate your service to our state and your dedication to improving outcomes and care for those in the fight against cancer!
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@crampell Yes, they don't care about childhood cancer. My son is a childhood cancer survivor. The NCI budget for childhood cancer is 8 percent. My son has so many side effects from the 60 years old treatment.
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I mistakenly thought the Senate was able to pass all the pediatric cancer provisions that House GOP cut after Musk's tantrum. But only a small funding extension for existing program ultimately passed. The more significant other provisions (top 4 items below) didn't make it
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Sick children are desperately in need of Florida's Healthy Kids (ie CHIP) expansion.
You can see videos of them telling their stories here:
floridahealthjustice.org/child-health/
Joan Alker@JoanAlker1
New: @CMSGov has approved Florida’s CHIP 1115 waiver to expand eligibility to 300% FPL. Florida has 30 days to accept the offer and finally get the expansion up. But state has to comply with federal law re 12 mos continuous coverage for kids. medicaid.gov/medicaid/secti…
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@JoanAlker1 @FLPhoenixNews The sad part is that our legislative branch voted for this almost two years ago. Holding family hostage, it hard to afford 260 a month for one child.
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Children will have to continue to wait for desperately needed health coverage.
Thanks but no thanks: State turns down Florida KidCare waiver approval floridaphoenix.com/briefs/thanks-… via @FLPhoenixNews
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@AHCA_FL @JasonWeidaFL @GovRonDeSantis Who going to pay for the children,surely not the state. You kicked off millions of children off of medicaid, including my son with a life threatening condition. Kidcare expansion was passed in 2023,yet still have not increased to 300 percent.@BarbieHardnHall @FLHealthJustice
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Agency Secretary @JasonWeidaFL joined @GovRonDeSantis in Clearwater to discuss the dangers of Amendment 4.
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@USRepKCastor My son is one of them. A cancer Survivor with so many health issues. Yet they will not even let us have kidcare CMS. I am left paying close to 300 dollars a month, so my son has insurance. Kidcare full pay is only for healthy kids.
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In Florida, the DeSantis Administration stripped between 500K - 600K children from their coverage during the Medicaid unwinding, many of whom were still eligible.
The Keep Kids Covered Act would act as a bulwark against these harmful state policies.
castor.house.gov/news/documents…
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Kids across the country deserve access to reliable, stable health coverage so they can grow into healthy adults.
That is why I introduced the Keep Kids Covered Act with @RepCaraveoMD to improve health outcomes, lower costs & support families across the country 🏥🩹
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What are you guys doing besides kicking off cancer kids off medicaid? My son is a cancer survivor. I am drowning in debt. I have to take days off to take my son to doctor appointments. Full pay kidcare does not have CMS and unaffordable. @BarbieHardnHall @JoanAlker1
Jason Weida@JasonWeidaFL
Today I had the privilege of participating in the @LiveLikeBella Pediatric Cancer Research Symposium. I want to thank First Lady @CaseyDeSantis for being a pivotal force in supporting organizations like Live Like Bella, which assists families dealing with childhood cancer. Her unwavering dedication to these initiatives spreads hope and support to families across Florida.
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@JasonWeidaFL @LiveLikeBella @CaseyDeSantis What are you guys doing besides kicking off cancer kids off medicaid. My son was one of them. I have to work to keep a roof over my son head. I am drowning in debt. I have to take days off to take my son to doctor appointments. Full pay does not have CMS
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Today I had the privilege of participating in the @LiveLikeBella Pediatric Cancer Research Symposium. I want to thank First Lady @CaseyDeSantis for being a pivotal force in supporting organizations like Live Like Bella, which assists families dealing with childhood cancer. Her unwavering dedication to these initiatives spreads hope and support to families across Florida.
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@JoanAlker1 The medical complex children kicked off medicaid CMS in FL were mostly referred to Full pay kidcare 260 dollars a month and copays. You can't be one day late or you don't have health coverage the next month. Medically Complex children families don't have a lot of options.
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Leaders of states with large Medicaid child enrollment declines such as Texas Florida and Georgia claimed that families were moving to private coverage. Yet the data show NO increase in private coverage for kids during the same period.
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The first data on coverage levels for Q1 2024 from NHIS is here 🧵
The news is terrible for kids whose uninsured rate went up MORE than adults from 4.2% in Q1, 2023 to 5.2% in Q1, 2024
800,000 more uninsured kids; clearly a result of Medicaid unwinding
cdc.gov/nchs/data/nhis…
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A link to the American Cancer Society about pediatric cancer research is not a resource. You were willing to kick my son off of medicaid during his cancer treatment. Your full pay kidcare plan took away his OT, PT and speech. You care more about fetuses than kids with cancer.
Florida AHCA@AHCA_FL
Caregivers play a crucial role in the cancer care team, providing patients with advocacy, companionship, & invaluable support. FLCancerConnect.com offers Floridians valuable resources to empower them in their caregiving roles.
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@JoanAlker1 or helping families with disabilities get adequate coverage through kidcare full pay. Landon lost all his rehabilitation services last month. It called Deny care that all they been doing.
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Breaking: State of Florida flies an appeal in case to challenge 12 mos continuous coverage for kids in CHIP nationwide.
The case was dismissed in May by a judge appointed by Trump.
State has NOT implemented CHIP expansion passed by legislature in 2023.
Bad link in prior tweet.
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Erin Booth retweetledi
DeSantis' lawsuit against the federal government was a direct attack on Florida's children. Despite the federal government footing the majority of the bill, he's jeopardizing #CHIP, essential healthcare for our kids, all for ideological warfare. #flapol #medicaid
McCourt School@McCourtSchool
Did you know Florida and Arizona have some of the highest rates of uninsured children? As both states work to widen the safety net, their differing approaches reveal an ideological divide. More from @GeorgetownCCF's @JoanAlker1: washingtonpost.com/health/2024/06…
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New kidcare site is a joke, you can't even access it on your phone. They want payment on the first, or your child will not have insurance next month. Yet, they create access barriers for children's healthcare. My son needs healthcare, he a medically complex child.
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@dchangmiami @KFF @GeorgetownCCF The new kidcare site does not work on a phone. It tells me Landon qualifies for cms and to call. When I call they say he does not because he on full pay. You have to pay by the first or your child is not insure the next month. It like they are doing it on purpose.
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Annual @KFF & @GeorgetownCCF survey of Medicaid & CHIP officials shows actions taken to improve systems plus key eligibility, enrollment, renewal policies & procedures for every state (except Florida, which did not to respond).
kff.org/a9d6e44/
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This is how my husband, "Dads". He gave him years of chemo each night.
You know what he can't do with him is run or ride a bike because your full pay kidcare plan does not cover his therapies (PT, OT) He was a healthy child before we were told he had cancer at 5 years old.
Jason Weida@JasonWeidaFL
I've had a lot of job titles over the years. But my favorite title by far is Dad! Thrilled to take part in this new series "How I Dad"! #ResponsibleFatherhoodMonth
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