
Ian Hill
688 posts

Ian Hill
@IanHill7
Dad to 3 amazing kids. Occasional blogger on life as parent of a child with a rare chromosome disorder #idic15
North West, England Katılım Ekim 2011
492 Takip Edilen150 Takipçiler


@Mr_Jimbob Massive bags of ready salted "holiday crisps" just taste different and hit better.
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Bravo @bushontheradio winning bronze in the bouldering at the Olympics. Dunno why they're giving credit to a guy called Jakob

Warrington, England 🇬🇧 English

@ManchesterGigss @wearejames When you are scanning through tweets and clips from last night and randomly find a video of yourself just living in the moment 😂
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@Mr_Jimbob @wearejames As gigs go, that was off the scale and made better being just metres from the stage. Just superb.
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There aren’t many bands who can have moments like this with an arena full of people!
@wearejames doing what they do best in Manchester last night. 🌸❤️
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@wearejames Can't wait, hoping you play "Tomorrow" it'd be the perfect way to close a 2 year chapter and open a new better one 🙏🤞
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Ian Hill retweetledi

Did you know, 16 babies are born w/a rare chromosome or gene disorder every day in the UK? At UNIQUE, we're here to offer support & advice. Follow us for stories & updates on rare chromosome & gene disorders and join us in celebrating Rare Disease Day this year ! #UniqueAndRare

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When on the way to OT you find these in the pocket of your winter coat from last year the omens aren't good @AlternativeMUFC #heartburn incoming

Urmston, England 🇬🇧 English

@davidjfielding1 @wearejames David, did you notice how much standing tickets were for Mcr?
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The pre-sale for the 2024 tour is now open to those eligible. You can still pre-order the signed CD via Townsend Music to gain access. Good luck to everyone trying to get tickets and thank you to all that have pre-ordered the CD so far. Nothing But Love x
Townsend@TownsendMusicUK
Pre-order a Signed CD of the forthcoming @WeAreJames studio album from this store to receive ticket pre-sale access to James' upcoming UK tour 🎟 Pre-sale starts tomorrow - 9.30am BST Wednesday 4th October 🌸 ↳ james.tmstor.es
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Arctic Monkeys smash their Glastonbury 2023 headline slot: full setlist here:
radiox.co.uk/artists/arctic…
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@CabbageGrrl Stay positive, his words literally came from nowhere. Even though they are limited they are a joy to hear and 12 months ago I couldn't have imagined him whispering "daddy".
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Oh this blog made me cry! My daughter also has IDIC15 like Matthew. At the moment she struggles to communicate, but we hope that one day she too may say her first words. Well done Matthew!
Ian Hill@IanHill7
Did you watch #ThereSheGoes last night? If so, you'll have heard @Unique_charity mentioned. They're a superb charity & #rarechromoday an annual initiative to raise awareness & donations to support the work they do. A post from my blog to mark the day. dadsviewof15q.wordpress.com/2023/06/21/rar…
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Did you watch #ThereSheGoes last night? If so, you'll have heard @Unique_charity mentioned. They're a superb charity & #rarechromoday an annual initiative to raise awareness & donations to support the work they do. A post from my blog to mark the day.
dadsviewof15q.wordpress.com/2023/06/21/rar…
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@terryflewers In the same sense as the construction of La Sagrada Familia is?
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#ThereSheGoes got me thinking, what does #rarechromo #rarechromosome look like? Sheer determination like this, carrying a stick way too big for him but carry it he must 😂 #idic15 #dup15q

Sale, England 🇬🇧 English
Ian Hill retweetledi

If you've received a diagnosis of a rare #chromosome or #gene disorder for your child, as the Doctor on #ThereSheGoes says, do get in touch with us at Unique. We can help and we are there for you. See rarechromo.org
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#ThereSheGoes It still hits true and depicts the realities & little moments life throws up as a #rarechromo parent. It just keeps on delivering & removing the mystery of our world & a shout out in the episode for @Unique_charity too 😊 #idic15 #dup15q
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Hi @PureGym is the air conditioning not working properly in Manchester Stretford or have you just turned it down/off to save costs? Although, them having all the windows open (again) and letting all the hot air in from outside doesn't really help either!
Sale, England 🇬🇧 English

@ThomasDonnan_ @BBCiPlayer It's a fabulous depiction of life with a rare chromosome kid. The dark & often brutal days of realisation & diagnosis, the highs of little-big achievements and the unending joy in the most unlikely of places.
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So. I’ve just finished #ThereSheGoes on @BBCiPlayer and hand on heart, I have never loved a series more. I’ve laughed, sobbed, connected with the lives of this wonderful family and loved their story! This is why I’m an actor! Stories like this are so beautiful! X
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