Long Covid Land

For years #LongCovid patients have been reporting that organized, malign actors were targeting them on social media with the goal of silencing them and erasing our disease. Many LC patient accounts have been targeted and subjected to mass reporting resulting in suspensions. /1

Read, watch, and listen to stories from #LongCovid patients, caregivers, and families, and share yours at longcovidland.com

"Dara's Health Journey" longcovidland.com/daras-health-j… #LongCovidAwarenessMonth #LongCovidHeartbeats

On March 15, as a member and event co-coordinator with @CanCovSoc , I was interviewed at our Long COVID Awareness Day event Queen's Park in Toronto — covered by @CBCNews. Six years sick. Formerly a teacher. Largely housebound. This is what Long COVID looks like. 2 million Canadians are living this. We need research, funding, and a cure immediately. 🩵 #ILCAD2026 #LongCOVIDAwareness

@JasonS1269 Yep!

Probably a good idea.

Read, watch, and listen to stories from #LongCovid patients, caregivers, and families, and share yours at longcovidland.com

"My Covid Experience" longcovidland.com/a-former-nurse… #LongCovidAwarenessMonth #LongCovidHeartbeats

Despite their best efforts...

Read, watch, and listen to stories from #LongCovid patients, caregivers, and families, and share yours at longcovidland.com

"My (not so) Patient Testimony" longcovidland.com/my-not-so-pati… #LongCovidAwarenessMonth #LongCovidHeartbeats

@envidreamz The audio and video stories are all captioned. It would be nearly impossible to do so for a space that can be 2 or 3 hours or longer with multiple speakers.

@LongCLand Thanks for clarifying 🤗❤️

Wait… are people seriously out here thinking Long Covid is cured by checking into a luxury spa for a few days?! Just relax on a lounge chair, get spa treatments, sip a painkiller cocktail, and someone waves a magic wand and then you are magically cured!! 🪄 Someone should probably let the millions of people still sick with Long Covid know.

I'm a bit embarrassed about posting this because I recorded it in a hurry during a busy week, and did it off the cuff without notes to reproduce that live spaces feel, but I know some people missed it and wanted to hear it, so here it is with subs.

🚨 The federation grows ! On this 15th march, we are proud and energized to announce that the pioneering group 🔥International Long COVID Awareness🔥 is joining forces with Long Covid Rise Up. Their voice makes us stronger. We are done with unchecked spread and no treatment.

This is so, so sad. Where is the sense of urgency to try and help all of the people whose lives have been stolen? We are failing each other.

@LCawarenessInt @LongCLand @LongCovidCan_Co @LongCFoundation @CovidSaferSF @NotOstriching @_REiCOP @SEMG_ES @AIREyVIDA2021 @ongdesinflamate Eskerrak:💚 @Araba @PuenteBizkaia @PVasco_EuskoL @AthleticClub @OSIEECruces @bilbao_udala

#LongCovid #ILCAD #covid #world #health #longcovidawarenessday

Read, watch, and listen to stories from #LongCovid patients, caregivers, and families, and share yours at longcovidland.com

"Invisible Aches" longcovidland.com/invisible-ache… #LongCovidAwarenessMonth #LongCovidHeartbeats

In honor of Long COVID Awareness week, we are launching our first patient video. Finding Your Path Forward: Acceptance and Commitment for Individuals Living with a Chronic Illness. Living with a chronic illness can feel like a constant struggle.

Read, watch, and listen to stories from #LongCovid patients, caregivers, and families, and share yours at longcovidland.com

"The Fabric is Torn" longcovidland.com/the-fabric-is-… #LongCovidAwarenessDay #LongCovidHeartbeats