Can You Hear Us? (CYHU)

Our new video podcast #NF2andYou is now live with a special welcome from Director, Jess! Follow the link and subscribe to our channel 👍 #NF2 #RareDisease #NeurofibromatosisType2 youtu.be/iV9tlggcM70

A mega milestone and a new epic opportunity for NF2ers!! Today marks the 10-year anniversary of the book launch for ‘NF2: Our Journeys’ @NF2CanYouHearUs are looking to produce another book please email us on joanne@nf2biosolutions.org if interested in having your story in it

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Do you want to contribute to NF2 research? Bangor University researcher, Suzi McGowan, is recruiting for participants to study how NF2 affects identity. If you want to find out more and get involved, visit our website for further details canyouhearus.co.uk/research/nf2-r… #NF2 #UK

Shine A Light on NF2 this #WorldNF2Day with our amazing range of shop products. Help raise awareness in your community & support the wider NF community this #WorldNFAwarenessMonth – show your support and look great at the same time! bit.ly/3v5OyWA #EndNF

There is always a way #BridgingCommunication #DAW2021

To celebrate #DAW2021 we’re sharing our #NF2andYou podcast episode ‘Everything you Need to Know About Lipspeakers’ with @LipspeakerUKThis has been our most popular episode so far! Check it out youtu.be/W0SLtF19Pz8

Excellent tips from @SignHealth on how to communicate with deaf #patients #DeafAwarenessWeek2021 #NF2 signhealth.org.uk/resources/lear…

Great article on @Limping_Chicken ‘10 ways to deal with deafness (that I wish I’d known)’ from Teresa Garretty #DeafAwarenessWeek2021 limpingchicken.com/2015/09/18/ter…

We’ve got boxes of our #BSL alphabet bookmarks going out to businesses this week. It’s not too late to order your free pack - send us a message and we’ll post some out 📦 #DeafAwarenessWeek2021 #DAW2021

@nf2biosolution1 @j_buttimore 🙏🏻🙏🏻🙏🏻

Getting the best out of your clinic appointment can be difficult, tune in to the lastest podcast from our friends at CHYU as they catch up with @j_buttimore NF2 Nurse at Addenbrookes. #nf2

This week is #DeafAwarenessWeek2021 and the theme for this year couldn’t be more apt ‘Coming Through it Together’. What are you doing to celebrate? #NF2

This week we’re catching up with the amazing Juliette Buttimore to chat about how #NF2 patients can get the most out of their clinic experience and ongoing relationship. Episode drops on our YouTube channel this Thursday #NeurofibromatosisType2 youtube.com/channel/UCrLGt…

The sun is out and it’s time for the weekend. Hope you have a great one folks 🤟🏻 #WeekendVibes #FridayFeeling

@nf2biosolution1 Well done Dylan 💪🏻🥳

Well what can we say! An amazing 2 days fundraising Dylan has completed 95 laps and 47 miles, remainder next week at his football club. Support from neighbours, friends, scout groups, oscars friends, school familes, Family We have so far raised £5717. ❤❤❤

@Smart_Climbing We’ve had great feedback on this. Really appreciate your time and knowledge 🙏🏻

@NF2CanYouHearUs Ooh it’s out! Well done Suzi :)

Absolutely delighted to have been joined by Consultant Clinical Psychologist @Smart_Climbing to breakdown #Anxiety for our #NF2AndYou #Podcast check it out youtu.be/mNJyPgqQGFM

This is so true #OccupationalTherapy #Wellbeing #Independence

Bangor Uni Researcher is conducting #research to explore ‘Identity & NF2’ and is currently recruiting for participants. If you have a diagnosis of #NF2 for longer than 12 months and are interested in taking part, you can find more info here canyouhearus.co.uk/research/nf2-r…

Our latest #NF2andYou podcast explores #Pilates which has been found to be significantly beneficial for neurological conditions, spine health, and balance. A must for anyone with #NF2. Check it out #NF2 youtu.be/YMaAIeeJ40k

As Wales takes great steps in policy planning for Rare Disease care, it’s great to see @NervetumoursUK offering the first specialist NF nurse’s service in Wales. Affected by NF and living in the region? find out more nervetumours.org.uk/news/first-spe…