Natalie

I spent my entire wedding day exploring Yosemite in a wedding dress and hiking boots. Thanks to a “mild” covid infection in 2022, I can now barely walk and spend every day in a darkened bedroom. If you have your health, please listen…

being chronically ill is pushing yourself to your limits, experiencing pain and symptoms that would send a healthy person to the ER, genuinely harming yourself to push through, just to be told you’re not doing enough by people who fall apart completely when they get a cold lol

If I had known that just one SARSCoV2-infection would annihilate my ability to exert myself, I would have worked less and hiked more. No one will thank you for overtime when you are sick and disabled. My 4th #LongCovid sickaversary was just a few days ago. Still sick. No cure.

@Dfrizz007 🫂💔

May 9th 2021 i died. today is my 5-year anniversary. please God let that asteroid hit and soon. i have very little left in the tank to fight.

Very severe should be the poster child for #mecfs, but today it’s thought of as an exception. 1 in 4 are bed-bound: this is not an exception. This is my contribution to shifting the messaging. When people think of ME/CFS, the image of a bed-bound human, isolated in a dark room should come to mind. The rest is on Instagram. instagram.com/p/DXb19uIjcwl/… #mecfs #longcovid

Very severe #mecfs should be the poster child for the disease. Not its most “mild” stage. The messaging needs to shift. I worked on a post for weeks to represent stage 3 & 4, & asked for input from other sick people and healthy people. This post is now up on insta. #longcovid

This one made me cry. People are so numb to all of the death, disability and suffering but behind every data point is a person and this data point was a kid.

🚨🚨🚨 The chronic illness space on this platform is deteriorating rapidly. A fringe group of so-called physicians and academics are espousing psychosomatic narratives around ME/CFS, Long COVID, and MCAS…processes rooted in biology that are ravaging millions.

"Ramble On" is 56 years old and Robert Plant just walked onto The Late Show and made it sound like he wrote it this morning.

ME/CFS shows the highest impact on family members’ and partners' quality of life among conditions so far studied using the FROM-16 questionnaire

Why does Ativan/Lorazepam work so well in #MECFS? Immediately, you’ll hear folks shout, “IT’S A MAST CELL STABILIZER.” Yes, we know. But for those of us without MCAS, it’s still extremely effective. Central nervous system depressant, yes. Why can’t researchers manipulate that drug and combine it with another? If I took 10mg of Ativan a day, I could probably lead a normal life. Or make the drug safer. I dunno. Just thinking out loud since some of us don’t have 15-20 years to wait for an approved treatment.

@hecubian_devil I think the reason disabled ppl have nightmares like this is, in my case my covid infection left me homebound, took my career, I have a chair to use the shower at age 39, yet we’re still relentlessly harassed for our illness w zero community support, even our dreams are mocked

Absolutely disgraceful this is currently the top post on the Long Covid Awareness Day trend. You have to be such a deeply broken person to mock awareness of people with chronic illness.

A group of my very dear friends came together to make this post, thank you to @alexandrite113 & Fran I’m not sure you’re on Twitter, and everyone who contributed. #longcovidawareness #longcovid

Our economic system, our government, will not help you when it is your turn to suffer long term effects from repeated Covid infections- whether that looks like migraines, POTS, heart damage, stroke, autoimmune disease or another diagnosis. Protect yourself and others

Wish I had more energy to write a real Long COVID awareness day article or thread but I don’t. In Nov ‘23 I caught COVID, I went on to become homebound & have never recovered. I was vaccinated & boosted. Debilitating migraines are just one of the issues I developed from COVID.

People say "you don't look sick." That's because you don't see the 23.5 hours I spend in bed to get those 30 minutes sitting. Long COVID isn't invisible. You're just not looking. #LongCOVID #InvisibleIllness #ChronicIllness

Before Covid, I was the co- owner of a real estate firm, active mom, volunteer on a couple of boards, exercised daily, hosted a monthly book club, traveled, loved loved live music shows & exploring new restaurants. Now, I’m trapped in Long Covid hell #LongCovidAwareness

today is #LongCovid Awareness Day. i got Covid in June 2022. by the end of the year i was completely disabled & then bedbound for over 2 years. i haven’t been able to work in 3 years. there are still no official cures or treatments. wear a mask. prevention is all we have now. 😷

Almost 6 years ago I caught COVID. I have spent the last half of my twenties bedbound. I need a wheelchair for occasional Dr appointments. My doctors have told me my quality of life is similar to that of an end stage cancer patient. We need treatments. #LongCovidAwarenessDay

#longcovidawarenessday Over 4 years ago, a single Covid infection destroyed my entire existence. I was young, healthy, happy, active, energetic & intelligent. I was in my prime & had everything going for me. Within weeks of my infection, I lost my ability to care for myself as 🧵