OBX Sweet Memories

Do you remember when you joined X? I do! #MyXAnniversary

When doctors said "It's all in your head," we said, "It's all in the research." For over 35 years, we've been standing with Lyme patients when no one else would. Stand with us now by becoming a member today: lymedisease.org/members/join-s…

Repost if you feel the same.

💚Hmmmm...should I be offended people don't quite fully understand? Or should I connect with YOU, the people who know exactly what this sentence means and refrain from beating my head against a wall? Source: @PALyme1

Here is another thing used against pain Pts. You’re never allowed to miss an appointment. It doesn’t matter if you’re sick which makes no sense considering they’re literally chronic illness patients.

Nicole @RealMalachowski says that everything that she needed to be a good fighter pilot--such as discipline, focus, commitment, determination, and confidence--are the traits and the characteristics she needed to survive the worst depths of her illness. lymedisease.org/podcast-nicole…

Proud to be publishing this book with my daughter! Based on the journal she kept during the worst years of her #Lyme disease experience.

@SeddighEllie @APainPrincess It's like a never ending nightmare! I just want it to stop!

@APainPrincess I'm just tired of not having the life I once made #ChronicPain stole that life just left me to deal with #pain of all sorts 😞😔

“I’m tired of being tired…tired of being in #pain. I’m tired of having to budget my limited supply of energy. I’m tired of always having to say no. I’m tired of my brain not being able to find the words…I’m tired of no one understanding.” buff.ly/3oMTemV #chronicillness

From our upcoming video podcast. I want to know what’s so funny. They all seem to be in on some inside joke. Here you have a primary care doctor, who actually wants opioids to be illegal so he doesn’t have to deal with “these patients.” #stigma #medicallyabandoned #pain

The worst thing was when I was gaslit, called a hypochondriac, & sent to a psychiatrist for anxiety & depression. Told the ID Dr's "I'm depressed bcuz I'm SICK, not SICK bcuz I'm depressed." 20 yrs for dx. #chronicillness #chronicpain #CFSME #autoimmune

@RideOutLyme And what about if everyone closest to you has left you alone and inspiration is a foreign word to people nowadays to me anyways. They would rather kick me when I'm down and then beat me up for not staying motivated. Just grasping for something to give me some kinda of comfort

Something to remember 💭

#TheQuietEpidemic is NOW STREAMING on AppleTV, Prime Video, and Vimeo On Demand! Right in time for #LymeDiseaseAwarenessMonth. Please share this news far and wide. Thank you all for your continued support. You are not alone, and your story matters!

Find someone who will be your strength when you need it most. 💚 #rideoutlyme #powerthru2cure #strongertogether #lyme #lymewarrior #lymedontkillmyvibe #soulcycle #paloalto #lajolla #manhattanbeach #losangeles #boston #wellesley #nyc #cycling #charityride

And the rest 💚 #lyme #lymedisease #lymediseaseawareness #lymewarrior #chronicillness #chroniclyme #spoonie #lymelife #invisibleillness #lymedontkillmyvibe #lymefighter #lymeawareness #chronicfatigue #chronicpain #lymesucks #chroniclymedisease #lymetreatment #lymie #bartonella

Is today a good day or a bad day? 💚💚 #LymeAwareness #LymeDiseaseAwareness #LymeNow #lymesymptoms #lymewarrior #lymelife #chroniclymedisease #lymetreatment #lymesucks #lymediseasesucks #lyme #lymestrong #lymesurvivor #chronicpain #yolandahadid #spoonie #lymedontkillmyvibe

The feds (#CDC) & others who have kept #lymeDisease medicine from advancing & have ensured millions to go undiagnosed while becoming very sick, immune compromised, & disabled (1/2)-you have no idea who you have turned us into: Survivors. We will eventually be writing the history.

January to March 2020, a total of 581, 599 so half a million people people died due to ..... alcohol! There’s a reason opioid deaths include ILLEGAL DRUG USE & span 19 years (1999-2018), there just aren’t that many deaths from legal prescriptions so they can’t justify torture.