Patty Burks

@MillardSusie Congratulations to all!!

My guys-David on the end is getting married tomorrow to Alexa Santiago & we couldn’t be happier! The rehearsal dinner tonight was amazing!

@wdavidmueller @CF_Foundation So incredibly happy this approval helps your family! Really quite overwhelmed.

To all of those at the @CF_Foundation and all of those families and individuals that have helped through their time, talent, and donations to our events—Thank you. This is life altering news for our family. There are not enough words. cff.org/News/News-Arch…

@jmeekmueller @wdavidmueller Thank you. You guys are the rockstars!!!

@wdavidmueller @PattyBurks65 Thank you Patty!!!!

Honored to get to know my hero, @PattyBurks65, who has dedicated her life to #CFadvocacy. Her work and advocacy the pst two+ decades has changed my daughter’s life. Thank you, Patty, for everything today and beyond.

When the Foundation began in 1955, little was known about #cysticfibrosis. Thanks to people like you, today people with CF are living longer than ever & achieving all kinds of dreams. This #GivingTuesday, help us reach our goal of 1,955 gifts. on.cff.org/1955gifts

@JoeyHaegele @CF_Foundation Oh you are so sweet. Miss you!!

@CF_Foundation @PattyBurks65 You are my hero! Thank you for all you do. We miss you in STL.

@bekah_kimberlin So much fun!!

It’s happened again! twitter.com/bekah_kimberli…

Today, advocates from the cystic fibrosis community are in Washington, D.C. to make sure the needs of people living with CF are being heard on Capitol Hill. Thank you Patty, Christie, Matthew, Carly and Andrew for speaking to our Missouri representatives today! #CFadvocacy

At the Volunteer Leadership Conference- medical and researcher update. #CFFVLC

March on the Hill #cfadvocacy

Vertex selected 2 potential next-generation CFTR modulators, VX-659 and VX-445, to advance to Phase 3 clinical trials – an important next step in bringing modulator treatments to about 90% of people with #cysticfibrosis. on.cff.org/2Epemnj #CFresearch

@KSabadosa Insurance coverage is not impacted by clinical trial participation. Ask the research team for specifics.

RC Mentoring Program is underway. Could not be more proud of this group!!

Parade of PIs underway at the 2017 Spring Meeting #cff

Dinner.

Spring Meeting tattoo!

More good news. Anti-Inflammatory Drug Shows Promising Early Results for CF cff.org/News/News-Arch… via @cf_foundation. #CFresearch

11 days till the 2017 TDN Spring Meeting where over 400 CF clinical researchers will gather for training, updates and community. Can't wait!