Rare Disease Conversations

Vegas Speaker to Rare Disease Warrior: My Journey #RareDisease #HeartFailure #VegasSpeaker #Amyloidosis #Mindset @pfizer @Alnylam @ionispharma @Oncology_at_AZ @AstraZenecaCA @BridgeBioPharma @JNJHealthEquity @AlexionPharma @CaelumBio @Regeneron @eidos @GSK_bio @bmsnews

Amyloidosis Outreach, Education and Empowerment program - Somebody To Talk To: Join Us Wednesday, June 11th, 3pm PST / 6pm EST - How to Thrive Through Setbacks. Register Below: somebodytotalkto.com/amyloidosis-se…

Join Us this Wednesday, June 4th at 3pm PST / 6pm EST for our #Amyloidosis outreach, support and empowerment program - Somebody To Talk to. This Week's expert - Meet the Neurologist. Register here: somebodytotalkto.com/amyloidosis-se… #MindsetMatters @AstraZenecaUS @BridgeBioPharma @Alnylam @pfizer @JNJNews

Found this old video... saw the oncologist who missed my #diagnosis ... said to me: "I'd didn't know if I'd see you again" #amyloidosis #amyloidosissupport #MindsetIs #mindsetmatters #raredisease #AdvocateAnjaliAwasthi @pfizer @BridgeBioPharma @AstraZenecaUS

Join Us this Wednesday, June 4th at 3pm PST / 6pm EST for our #Amyloidosis outreach, support and empowerment program - Somebody To Talk to. This Week's expert - Meet the Neurologist. Register here: somebodytotalkto.com/amyloidosis-se… #AmyloidosisOutreach #mindsetmatters #amyloidosissupport @AstraZenecaUS @BridgeBioPharma @BayerPharma @pfizer @GSK @JNJNews

Happy Memorial Day 🇺🇸

90% of Success is #Mindset In business, life and as a #RareDisease patient as well. My mindset is the only reason I'm here today! 🔥 #mindsetmatters #qol #patient #advocate @pfizer @BridgeBioPharma @Alnylam @BayerPharma @GSK @JNJNews

Join Us! Amyloidosis Outreach, Education & Empowerment - 3pm PST / 6pm EST- Somebody to Talk to. Topic: 5 Keys to Thriving with Amyloidosis. somebodytotalkto.com/amyloidosis-se… @pfizer @AstraZenecaUS @ProthenaCorp @HopkinsMedicine @BridgeBioPharma @BayerPharma @AstellasUS @GSK #amyloidosis #raredisease #advocate

"Didn't Know If I would see you again!"... my original oncologist who missed my #amyloidosis diagnosis. #raredisease #mindset #HEALING #advocate #patient #belief

As an #Amyloidosis patient, it's amazing to see all the progress in the #RareDisease space along with other advances with other indications. #advocacy #mindset @pfizer @AstraZenecaUS @BridgeBioPharma @Alnylam @BayerPharma @RocketPharma @GSK @VertexPharma @AstellasUS @fwpharma @patientsrising

Join us on Wednesday, May 14th at 3pm PST / 6pm EST for the #1 #Amyloidosis outreach, education and #empowerment program - Somebody To Talk to. Welcoming @mahwash_kassi , cardiologist at Houston Methodist. Register Here: somebodytotalkto.com/amyloidosis-se…

Looking for #Speaker for upcoming #conference or #event #Amyloidosis patient and recognized speaker @eventprofs @eventprofstalk #Patient and #Advocate @AstraZenecaUS @pfizer @Novartis @BridgeBioPharma @Alnylam @JNJNews @abbvie @VerveTx @RareDiseases

@ClevelandClinic Yes!!

Therapeutic massage targets specific health concerns by working on muscles and soft tissue to reduce pain, improve mobility and support recovery. It's often used alongside other treatments and tailored to your individual needs.

@AbcuroInc @OrphanConf Excellent!

Our COO, Karen Tubridy, participated in a panel at @OrphanConf on women redefining healthcare, discussing topics including overcoming barriers in the healthcare industry and creating impactful solutions in rare diseases. #WorldOrphanUSA

@ClevelandClinic 🙏🏻🙏🏻

Happy #NursesWeek to all our nursing caregivers. Your presence at the bedside, in clinics, and in our communities makes a lasting difference. You make the world a better place with each life you touch.

Moving the #RareDisease conversations forward at @OrphanConf after #keynote presentation. #worldorphandrugcongressUSA #WorldOrphanDrugUSA #worldorphancongressUSA #advocate #amyloidosis

#Amyloidosis Update - Just removed bandage from pacemaker procedure. Healing well. Thanks to @bswhealth_ATX @bswhealth #raredisease #cardiac #pacemaker #cardiacamyloidosis @DanLier__

Join Us this Wednesday, May 7th, Amyloidosis Support, Somebody To Talk To 3pm PDT / 6pm EDT. Why Many Fail at Reaching Goals, and HOW to DO IT RIGHT! ... followed by questions and discussion. Register here: somebodytotalkto.com/amyloidosis-se… #amyloidosis #raredisease #amyloidosissupport #somebodytotalkto #advocate

*** New QR Code at end of video *** Free Copy of our new book: The Rare Disease Playbook - Winning with Mindset, Strategy & Teamwork. The #WorldOrphanUSA event in Boston was incredible. #RareDisease #Amyloidosis #Patient #Advocate #Mindset #worldorphandrugcongress #wodcusa