Prof Ros Gleadow FAA

Here’s the recording of my talk for @GlobalPlantGPC on my personal journey in science - the QandA ended up being a career advice session. Frank and personal.

Study: COVID-19 may Enduringly Impact Cognitive Performance and Brain Haemodynamics in Undergraduate Students 40% of the undergraduate students reported brain fog due to COVID-19

"This is serious neglect, and in some situations, abuse... As a former child protection social worker, I've seen some harrowing things and the way some people with severe ME are treated is up there.” Sonya Chowdhury, CEO of @actionforme #MECFS

@1goodtern over 80? That's insane. I get one every 6 months

People in other countries often don't believe me about how badly we are provided with Covid vaccines here. The government has just limited the age availability to *over 80s*. The government itself is antivax.

@AnilvanderZee So long as it's not CBT and GET. NOrway haven't had a great record on proper ME treatment

1) This video shows a unique care unit in Norway called Røysumtunet for people with #severeME & very severe ME. It is one of the only places where the sickest patients can receive specialised care. We need this everywhere!! #pwme #myalgicE #millionsmissing #severeME

Many in our community need longer appointments to get wrap-around care for complex health conditions, yet the government refuses to lift rebates to support this model of care. I asked about this in question time today.

@_Klein___ If you have ME, you're nodding and saying "I'll believe it when I see it"

Najděme laskavější způsob, jak obvinit dlouhodobě nemocné pacienty s covidem

@Illusionist999 @WIRED Also true of ME

@WIRED A little bit too late for this “psychological” narrative. The actual medical science is discovering biological mechanisms behind Long Covid. x.com/virusesimmunit…

Six years since the height of the pandemic, the scientific community remains baffled by long Covid. But there might finally be a way forward for long Covid treatment—if only you were allowed to talk about it. wired.com/story/the-pain…

@LauraMiers People with ME have been doing this for 30-40 years. The denialism and persecution of very ill people is bizarre. They actually don't want to be bedbound.

I just want to thank all the people who are loudly pushing back on the propaganda & pseudoscience featured in the Wired LongCovid article. We’ve been doing this for 6 long years now. I used to be able to discuss these articles with tens of thousands of people from around the world, but now I just talk to the tumbleweeds since the people who are sick & suffering have been isolated & driven off this app, while the grifters & corporate-funded chaos agents are allowed to go viral. Everyone gets to walk around patting themselves on the back for a job well done, as the record disability & death quietly continues & the kids get sicker. Our futures are evaporating into thin air, & the only treatment on offer is talk therapy & meditation. We aren’t allowed to talk about any of it unless we’re pretending it can be fixed with psychiatry. Watching everyone destroy themselves & their families is so deeply sad. After 7 years of HIV/AIDS, people weren’t dying yet, & they didn’t think many people would get it. Living with AIDS 2.0 while all of society gaslights you & humiliates you is not for the weak. This IS the plan for LongCovid. You’re looking at it.

@louise_today @WIRED not an isolated case

@WIRED 'The family hoped the 13-year-old with fatigue syndrome would recover from the “Lightning Process” [Brain Retraining] course. Instead, he had a breakdown and attempted to take his own life' nrk.no/nyttig/forsokt… .

📅 2026 webinar: Assessing function in ME/CFS. Join Senior OT Melanie Weeks on 25 June, 6:30–8pm AEST, for guidance on documenting fluctuating function, PEM and cognitive impacts to support care and service access. Health professionals only. Register: zurl.co/zSMGd

“People with ME have sadly had to endure far too much disbelief and delay.” Clip of Dr Hans Kluge, WHO Regional Director for Europe, opening the @Invest_In_ME 2026 International ME Conference #IIMEC18.

'STORM' is a short documentary about Scott Hugo. A story of Long COVID's impact on his life and family - a reminder of what is at stake in research on Long COVID. His resilience humbles me. Please watch and share 🙏🏼 youtu.be/rLtXh28Eejw

@atranscendedman This would be fantastic. I have anosmia. Smell training gets a bit back but I have to repeast every 3-4 months

University of Hong Kong and WesternU scientists found in human sensory cells and hamsters that COVID can damage smell neurons and the stem cells that repair them. Blocking TRPV1 reduced this damage, suggesting a path to treat long COVID smell loss. cell.com/iscience/fullt…

“The injustice of it, I couldn’t believe it” Former Team GB rower @oonagh_cousins talking about the #MECFS “scandal” where patients were told they were deconditioned & needed Graded Exercise & CBT It is the “opposite of what they needed” & that legacy still runs “super deep”

"Avoiding COVID… but also missing people? Help map cleaner-air spaces, COVID-conscious meetups, and safer community spots so people can reconnect without giving up their health." Click on this link to learn more 👇 airspothealth.com/a/blog/help-co…

Is there an association between human herpesviruses (HHVs) reactivation and Long COVID? We analyzed HHV DNA shedding in saliva and found that HHV-6 correlates with Long COVID severity. Claire Laxton, @S_Tabachnikova, Lily Cooke, Kexin Wang et al. medrxiv.org/content/10.648… (1/)

Recognising #PEM early in your patients is critical for safe and #MECFS informed care. PEM can be hidden - patients may appear well during appointments but experience significant deterioration afterwards. You can learn more about PEM and #pacing - zurl.co/nnY1W

People who tested positive for #COVID have a higher risk of being diagnosed with other infections in the following months. This has been shown for years and hundreds of publications in the topic. Covid has an impact on the immune system we still don't fully understand.

#AusME Biobank now in WA Collection sites are now open across metro #Perth, making it easier for people with #mecfs, #longcovid & healthy volunteers to take part in research. 🩸 One donation can support vital research 👉 zurl.co/sShAY #HealthResearch #emergeaustralia

@CaroleBruce17 I care

Yesterday we tried to draw attention to our illness, #ME, in the hope that healthy people would care and start to advocate for us. To the MSM, government, social media, medics. Today most of us can barely move from our effort and its uselessness. Anyone can get ME! Anyone care?