Sabitlenmiş Tweet
Stacey Alexander
5.4K posts
Stacey Alexander
@Stace_Alexander
Educator, lover of the outdoors, first wave covid longhauler, views are my own.
Corner Brook Katılım Nisan 2012
980 Takip Edilen772 Takipçiler
Stacey Alexander retweetledi
Stacey Alexander retweetledi
The 🇨🇦 Novavax story just keeps getting better!
👏👏👏
.@sanofi
ShaneForrow.bsky.social 🇨🇦☮️🇵🇸🇬🇱🇺🇦🇸🇩@ShaneForrow
@BarryHunt008 @tommyjtookalook I contacted the Health Minister in New Brunswick and was informed they are procuring Nuvaxovid/Novavax as a non-mRNA COVID-19 vaccine option for the 2026/2027 season.
English
Stacey Alexander retweetledi
Long Covid cambia tu vida, millones de personas se ven afectadas. Las personas que padecieron SARS prolongado nunca se recuperaron 22 años después. Doctor Danny Altman 👇
youtu.be/AtnIbgMSzXw?si…
YouTube
Sue [email protected]@inkblue01
Long Covid changes your life, millions of people are impacted. People that have Long SARS never recovered 22 years later. Danny Altman PhD 👇 youtu.be/AtnIbgMSzXw?si…
Español
Stacey Alexander retweetledi
This is an incredible $10M donation to our PolyBio Long COVID Cure Initiative (LCCI) Program. Funds are from the Park-Pagliuca Fund: a philanthropic collaboration between the families of Todd Park & Steve Pagliuca, each of whom have family members impacted by Long COVID
PolyBio@polybioRF
Breaking: Park-Pagliuca Fund Donates $10 Million to PolyBio Long COVID Cure Initiative PolyBio Research Foundation today announced a $10M donation to support the Long COVID Cure Initiative (LCCI), a program designed to deliver treatments to millions of Long COVID patients by translating key academic findings into real-world diagnostic tests, faster and more targeted clinical trials, and accessible, patient-ready therapies. prnewswire.com/news-releases/…
English
Stacey Alexander retweetledi
1. Most people don't always act according to the best scientific evidence, but rather according to habit, convenience, social pressure, political messages, or risk perception. History is full of cases where the majority was wrong at first and a minority was right.
English
Stacey Alexander retweetledi
They called it anxiety for 5+ years…turns out it was my heart. 💔
Long Covid can cause and hide heart disease. It happened to me.
For 5 years I was told:
“Just anxiety.”
“ECG normal.”
“Labs normal.”
Meanwhile I was in my 30s, teaching exercise classes, suddenly getting chest pain, shortness of breath, heavy/weak limbs, high blood pressure, dizziness, sudden headaches, crushing fatigue.
A NICU nurse taking my workout class noticed my lips turned cyanotic when my arms were overhead. That was the red flag.
Bubble study + TEE confirmed it. Heart surgery next month. Covid dramatically enlarged a congenital PFO and caused it to become highly symptomatic.
Heart issues don’t always look textbook. Covid affects the heart. Check the heart.
sophia•of•the•Crows🐦⬛@DSEDunn
You know, I’ve begun to wonder how many of us LC folk have *big* heart problems. My OH thought he had long covid fatigue. He was running on empty al the time, brain fog, couldn’t keep his head up, could barely move some days. It certainly sounded like long covid fatigue. It wasn’t until a routine GP check of his BP revealed skyrocketing BP, that attn turned to his heart. After a year of investigation, he has serious afib, & it turns out his heart is running on less than 30% capacity. No wonder he’s fatigued‼️ He now needs 3 heart operations. If you have debilitating fatigue with your LC, don’t assume it’s the inflammation/ME/CFS variety. Get your heart checked! Covid often causes serious heart damage & cardiac complications. If your heart function is impaired, you will be very, very fatigued. Or as Jizō says, “Daddy’s very, VERY tired!”
English
Stacey Alexander retweetledi
"We want medications for our lungs, our hearts, our stomachs, our immune systems, our brains — damaged by the Covid virus." "Real care, not cognitive behavioral therapy. Not meditation."
France, this week. At a psychologists' conference, Long Covid patients refused to be ignored. Grabbed. Pushed. Still speaking.
The full statement ⬇️ Translation: @GreeneWendy
Association Winslow Santé Publique@winslow_la
La psychologisation des #CovidLong, ça suffit. Action non-violente de patient·es CL de Winslow et @ActionCovidLong lors d’une conférence européenne sur le COVID long organisée par les Pr Lemogne/ Ranque, de l'unité Casper 👇
English
Stacey Alexander retweetledi
"I might be coughing or sneezing but I'm not sick - why would I need a respirator?"
6% of apparently healthy people are actively shedding respiratory virus at any given time
57-93% of positive respiratory virus samples come from asymptomatic individuals
Human bacterial pathogens (S. aureus, H. influenzae, MRSA) have been detected in exhaled breath of healthy carriers
Your respiratory microbiome is real
Whether it's pathogenic to the person next to you depends on THEIR immune status, not yours
📄 Asymptomatic shedding: journals.asm.org/doi/10.1128/ms…
📄 Exhaled breath pathogens: pmc.ncbi.nlm.nih.gov/articles/PMC70…
English
Stacey Alexander retweetledi
We received feedback that folks are not so eager to enter a placebo-controlled trial for fear of being in the placebo arm. So, for our trial looking at low-dose rapamycin for #LongCOVID we now have an open-label extension added to the trial so everyone gets to try it! Reach out!
English
Stacey Alexander retweetledi
great action in france, where long covid activists interrupted a long covid conference held by profs ranque and lemogne, who monopolize the field and funding for long covid research in france by framing it as psychosomatic and advocating for meditation as a treatment
Association Winslow Santé Publique@winslow_la
La psychologisation des #CovidLong, ça suffit. Action non-violente de patient·es CL de Winslow et @ActionCovidLong lors d’une conférence européenne sur le COVID long organisée par les Pr Lemogne/ Ranque, de l'unité Casper 👇
English
Stacey Alexander retweetledi
Excellent piece in New Scientist on exercise research in #LongCovid and #MECFS.
Highlights studies ignoring post-exertional malaise, the PACE trial, and comments from David Tuller, Tom Kindlon and Todd Davenport.
Full article:
archive.is/2026.04.22-142…
English
Stacey Alexander retweetledi
#2: The Beat Goes On (April 21, 2026) - Early Stage 1, 2, & 3 Breast Cancer:
In a breaking news presentation at #AACR26 today, Dr. Aditya Bardia at UCLA that Post-COVID lymphopenia results in a 2.46-fold increased risk of distant recurrence occurs in patients with lymphopenia even in early stage breast cancer (Stage 1, 2, 3) with a p=0.009. This finding was highly significant and in contrast, patients without lymphopenia did not suffer a recurrence. An important demonstration that low NK and T cells affect the progression of the disease even in patients in remission.
aacrjournals.org/cancerres/arti…
English
@DrPatrick Would you consider doing a clinical trial for people with long covid and T cell exhaustion?
English
We are treating a patient under an FDA authorized Single patient IND with this issue. This is a clinical study and not an approved indication but we are finding what is known as T cell exhaustion. More clinical trials are being planned with this interesting finding that the potential exists to reverse it. The trials will explore this hypothesis.
bflo pa-c@Memeremo2
@DrPatrick Oh lovely. Now what exactly is the plan here with all this post C19 lymphopenia??
English
Stacey Alexander retweetledi
The independent research by a world renowned breast cancer oncologist at UCLA, Dr Aditya Barda, breaks news today at AACR that consistently shows regardless of the stage of BREAST CANCER, that post Covid lymphopenia results in poorer prognosis, poorer response to treatment and even 2x higher recurrence when patients are in remission. The relationship of low NK and low T cells to breast cancer ( and frankly all cancers ) is so clear.
Will share his data that he presented at major breast cancer conferences and now at AACR next. Very compelling
English
Stacey Alexander retweetledi
Last in the session, Hannah Cowan discusses Navigating fragmented care: How young people with Long Covid build and maintain alternative networks of care. #COVIDrehab
English
Stacey Alexander retweetledi
Key messages:
📌 Exercise triggers microclot fragmentation in people with Long COVID.
📌 Microclot fragmentation correlates with inflammation and vascular injury markers.
📌 Physiological performance worsens after repeated exertion.
English
Stacey Alexander retweetledi
Mark Faghy shares an update on Submaximal exercise-induced changes in microclot and cytokine profiles - shaping what we know about Long COVID rehabilitation.
#COVIDrehab
English
Amazing presentations so far! If you have the opportunity to watch recordings after the fact, please do!
Some of the world’s greatest experts discussing #LongCovid in Toronto today!
🇨🇦
@RobWust @UofTCOVIDRehab
Rehabilitation Science Research Network for COVID@UofTCOVIDRehab
First up, we hear from #COVIDrehab Keynote Speaker, @RobWust, on skeletal muscle alterations and post-exertional malaise in patients with Long COVID
English
Stacey Alexander retweetledi
Lisa Caldana opens up Research Evidence Session 2: Rehabilitation across COVID Care Contexts. She speaks about work on Long COVID and Infection-Associated Chronic Conditions Curricula within Entry-to-Practice Rehabilitation (OT, PT, SLP) Programs in Canada: An Environmental Scan
English