TogetherForVictor

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TogetherForVictor

TogetherForVictor

@Together4Victor

Victor has SMA-1! He won the 1st battle against a $2.1 mil treatment (Zolgensma)| Follow his adventure at @SVictorUniverse

Romania Katılım Mayıs 2022
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TogetherForVictor
TogetherForVictor@Together4Victor·
SVU comic-book cover HEROES ASSEMBLE ACT-0 will be minted on CHRISTMAS EVE (24.12.2022) at 20:00 UTC.💖 Price 1.5 $EGLD , supply 1000. 💕 Every mint will grant you one physical CB.📘 PS: I kindly ask you to help me with the delivery fees.🙏 #TogetherForVictor #SVU #ComicArt
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Valentin Dinescu
Valentin Dinescu@dnsv123·
Since Monday morning we’ve been in Italy. We came to visit the physiotherapist who has been guiding us from the beginning, the one who helped us understand how to support Victor in becoming independent, gaining autonomy and learning to handle things on his own. Because he is capable.💙 She was very happy with Victor’s progress. As parents, we sometimes feel like things are slowing down… but in reality, Victor has become more motivated, and with his long orthoses he can now walk on his own. He’s been training a lot in the last weeks and we can see the results. The plan now is to continue with these current orthoses to strengthen his walking even more, and then move to the next level: a new type of orthoses with mechanical locking joints, which will require more effort from Victor, but also bring bigger improvements. If everything goes well, February will be the upgrade moment. 💪🏼 Right now, we’re also preparing special night orthoses (to encourage knee flexion) and small flexible ones for playtime and to fit inside his shoes. The video below is from last night, the first time Victor walked inside a Lidl supermarket, choosing products and putting them in the cart all by himself. For most people this is nothing. For us, it’s huge! Never give up!✌🏻
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Valentin Dinescu
Valentin Dinescu@dnsv123·
A dream begins with a wish, and a journey begins with a single step. Two years ago, on May 10th, 2023, Victor received Zolgensma, an injection filled with hope, strength, and a future. Just three days ago, we returned from Oradea after two intense weeks of DMI therapy. And today I’m sharing something with you that moved us to tears.🥹 Step by step, Victor is building his superpowers. Thank you to everyone who’s been by our side!🙌 True strength comes from love, perseverance, and community. Never give up!✌️
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MultiversX Builders
MultiversX Builders@MvXBuilders·
A new builder has joined our spotlight platform, and he is a special one🤗 Here is @SVictorUniverse & @Together4Victor, the little one we met on #ElrondNetwork, now growing up and winning in #MultiversX multiversxbuilders.com/projects/view/… Let’s unveil the story of Victor and his family, their journey to fight #SMA and their projects launched on #MultiversX 📰🔗 multiversxbuilders.com/news/builders/… 👇 It all started with #TogetherforVictor, a dedicated website to raising funds for Victor, a child suffering from Spinal Muscular Atrophy (SMA) Type 1. His family aimed to gather over $2+ million for life-saving Zolgensma treatment and therapies, as this condition impacts his motor functions and can be fatal if left untreated. The treatment needed to be administered before he was turning two, making the fundraising a life-saving race against the clock: togetherforvictor.ro Here is a series of articles about their journey: x.com/dnsv123/articl… In their ask for help, Victor’s parents @dnsv123 shared their story with the formerly #ElrondNetwork #community, now #MultiversX, and so many builders joined in and contributed. To widespread the story and help with fundraising, the @Together4Victor #NFT project was created. In May 2023, they got the approval to have the Zolgensma treatment for free!🤯 x.com/dnsv123/status… The story could have end here, but their fight become an inspiration for many and so the @SVictorUniverse project emerged. supervictornft.com The SuperVictor Universe project emphasises community involvement, gaming, and partnerships to create a meaningful impact, supporting world-changing donations with 0% fees and focusing on: ➱ real-life inspiration ➱ innovative fundraising platform ➱ addressing charity sector challenges ➱ introducing the Victor League App ➱ next-gen products ➱ audience ➱ revenue streams @SVictorUniverse/supervictor-universe-is-an-interactive-world-like-marvel-and-dc-based-on-a-real-story-bbe8bd02ad64" target="_blank" rel="nofollow noopener">medium.com/@SVictorUniver… It consists of NFT collections featuring 8,000 "BEEF Underlings," 2,000 "Mini Bosses," and 500 "Smarugon" villains, creating a storyline around the superhero "SuperVictor." It includes a comic series, a gamified app focused on charity, the @VictorLeague_ app coming soon, and more: linktr.ee/supervictor Just to mention their premium-quality merchandise, which made a big splash at #XDay October 2023! They lit up the Parliament Palace with their vibrant windbreakers and handed out SuperBoxes packed with high-quality merch to supporters of the project. It was an unforgettable experience, bringing together the #MultiversX community and celebrating not just the progress of the project, but also the success of Victor’s life-saving treatment. What's even more exciting is the MiniBosses #NFT collection, which includes 21 unique 1/1 NFTs. Those lucky enough to claim one by burning four Beef Underlings will receive a SuperBox V2, creating a unique bridge between the web2 and web3 worlds! More in-depth details in the project’s white paper: supervictoruniverse.gitbook.io/super-victor-u… .#TogetherforVictor has been an inspiration for many in the #MultiversX ecosystem; tagging all who contributed would make this thread way longer. Please feel free to engage,❤️,🔄 & re-post it if you were part of the story🙌 The SuperVictor Universe project is an example of never giving up and continuing to build. We hope this article ages well so Victor can share his story with his children and help others in their journeys. .#MultiversX is more than high-end #Blockchain technology, it’s about #community and succeeding together. Let’s go! #EGLD #MvXNews #MvXSpotlight #EGLDSqueeze #BuildOnMultiversX #MultiversXCommunity
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Valentin Dinescu
Valentin Dinescu@dnsv123·
Let's move a mountain together and help a 2 year old girl, Rebecca, to fight against neuroblastoma! Every bit of support counts, from likes, reposts, bookmarks, to donations. Please share this message far and wide! find out more : hopeforrebecca.com We can do this together!
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vgoldMV - | Open to Work in Web3@vgoldMV

Orice share conteaza! Rebecca este fetita surorii mele! instagram.com/p/C9KMQpXI8Ah/… Va rog share pe story si cu linku de mai jos sa poata apasa lumea sa doneze direct: hopeforrebecca.ro facebook.com/share/ho6ApvCx… Share si pe facebook!

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TogetherForVictor
TogetherForVictor@Together4Victor·
Today we celebrate 1 year since we had the gene therapy Zolgensma ❤️‍🔥 Thank you for this blessing ! God bless you ! 🙏🏻
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Valentin Dinescu@dnsv123

Today we celebrate 1 year since we had the Zolgensma gene therapy shot, and I can say that since then my boy teaches me what’s important in life, how to be better daily, how to improve, how to NEVER GIVE UP! 🦸🏼 We thank you gratefully for making this possible, we thank you for this and I wish to all the people that got in contact with us to be healthy and to never stand back when they encounter any challenge, fight and NEVER GIVE UP! 🫂 I love you my boy, my superhero, my Victor, my SuperVictor! ❤️‍🔥 Please listen/read my wife’s words ✌🏻 “Dear Victor, I am preparing to create this video for you, to show you how strong and wonderful you are. Since the moment we learned of the diagnosis, you have shown us that life can take various forms, with greater or lesser difficulties... We've experienced various states, but we've done it together, in our quiet, sometimes cold. Perhaps we've always wondered why... my dear, know that we still haven't found the answer, but time will show us that nothing is in vain... Every small gesture actually has great importance, and joy cannot be fully experienced without going through every small percentage. We thank you for choosing us to be your parents and for showing us how sweet and beautiful life can be, even when it's laden with burdens... Joys often hide in small things, and we discover true values along the way. Finding joy in every smile of yours, we discover that happiness hides in the most unexpected moments. You are our light in the darkest moments and our inspiration in the search for meaning. Through your courage and strength, you have taught us that there is no obstacle too great or dream too daring. You have been our source of inspiration and the guide who has shown us to never give up. In the face of challenges, you have shown us that power lies in perseverance and that every failure hides a precious lesson. We've learned that there is no path without obstacles, but that every obstacle can be overcome with determination and confidence. You are our example of courage and resilience, and every step we take with you is a life lesson. Our journey together is one filled with trials, but also unexpected joys, and every moment spent with you is a blessing that we cherish with all our hearts. We love you beyond words and are proud to be your parents, guiding you with love and wisdom on the path of life.” #NeverGiveUp 🦸🏼

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Valentin Dinescu
Valentin Dinescu@dnsv123·
Today we celebrate 1 year since we had the Zolgensma gene therapy shot, and I can say that since then my boy teaches me what’s important in life, how to be better daily, how to improve, how to NEVER GIVE UP! 🦸🏼 We thank you gratefully for making this possible, we thank you for this and I wish to all the people that got in contact with us to be healthy and to never stand back when they encounter any challenge, fight and NEVER GIVE UP! 🫂 I love you my boy, my superhero, my Victor, my SuperVictor! ❤️‍🔥 Please listen/read my wife’s words ✌🏻 “Dear Victor, I am preparing to create this video for you, to show you how strong and wonderful you are. Since the moment we learned of the diagnosis, you have shown us that life can take various forms, with greater or lesser difficulties... We've experienced various states, but we've done it together, in our quiet, sometimes cold. Perhaps we've always wondered why... my dear, know that we still haven't found the answer, but time will show us that nothing is in vain... Every small gesture actually has great importance, and joy cannot be fully experienced without going through every small percentage. We thank you for choosing us to be your parents and for showing us how sweet and beautiful life can be, even when it's laden with burdens... Joys often hide in small things, and we discover true values along the way. Finding joy in every smile of yours, we discover that happiness hides in the most unexpected moments. You are our light in the darkest moments and our inspiration in the search for meaning. Through your courage and strength, you have taught us that there is no obstacle too great or dream too daring. You have been our source of inspiration and the guide who has shown us to never give up. In the face of challenges, you have shown us that power lies in perseverance and that every failure hides a precious lesson. We've learned that there is no path without obstacles, but that every obstacle can be overcome with determination and confidence. You are our example of courage and resilience, and every step we take with you is a life lesson. Our journey together is one filled with trials, but also unexpected joys, and every moment spent with you is a blessing that we cherish with all our hearts. We love you beyond words and are proud to be your parents, guiding you with love and wisdom on the path of life.” #NeverGiveUp 🦸🏼
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Valentin Dinescu
Valentin Dinescu@dnsv123·
10 months since we had the Zolgensma shot 🙌🏼 Victor evolved, he’s fighting like a champ, he is like a super athlete at the moment, having therapy 5 times a week. 🙌🏼 Not pushing him, he has a good relation with his physical therapist, he basically doesn’t feel like he is having a therapy session , it feels like playing! 🙌🏼 He enjoys every moment! ❤️‍🔥 Grateful! God is great 🙌🏼 Thank you again for all the support 🙌🏼
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SuperVictor Universe
SuperVictor Universe@SVictorUniverse·
📚 Our comic book is on Amazon! Wow ! It's being produced in : • US • UK • DE • FR • ES • IT • NL • PL • SE • JP • CA • AU Available worldwide! 🙌 Order now for only $9.55. Link : t.co/dt4AUufItk Don't forget to leave a review to help us out with the @amazon algo! 🙌 Every share on X (videos and pictures) will be appreciated and possibly rewarded.👀 #ComicBook #AmazonOrder
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SuperVictor Universe
SuperVictor Universe@SVictorUniverse·
We've got a story to tell.📖 It's not just any story, but one that's close to our heart. Imagine a Universe where every page you turn tells a real, true story. Excited? We are too. 🫶
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SuperVictor Universe
SuperVictor Universe@SVictorUniverse·
Friday night on X : Heroes Assemble Space ! A huge thank you to our community! Together, we're making a difference, one story at a time. 📅 𝗪𝗵𝗲𝗻: This Friday ⏰ 𝗧𝗶𝗺𝗲: 19:00 UTC 📍 𝗪𝗵𝗲𝗿𝗲: On Elon's X See you there! 👇🏼 twitter.com/i/spaces/1lDxL…
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Bearzilla $FEDUP 🤡 #SRB🐻#R.I.F.T
🐻keep their promises🙏 Join us today ⏰19.00 UTC on our 🐻 Discord discord.gg/SuperRareBears to raise some needed funds for @docdaniel We have teamed up with @dnsv123 @VictorLeague_ and @SVictorUniverse they are providing the 🏆 💟 Together we are stronger #MultiversX
SRB LABS 🧪🐻@SuperRare_Bears

In the face of unfathomable challenges, it's heartwarming to witness our community rallying together. Amidst the turmoil, there's a glimmer of hope for humanity 🙏 @PulsarTransfer send 300 RARE to 300 reactions For those who haven't heard, we're extending our support to @docdaniel, fondly known as Erin. She's bravely battling cancer while also recovering from a recent scam that tragically wiped out her entire bank account 😢😢 We cherish our community ❤️ and each individual within it. Thanks to a generous donation from @dnsv123, who deeply understands the strength of community bonds, we're orchestrating an auction on our Discord channel. discord.gg/SuperRareBears All proceeds will directly benefit Erin, transferred to her in $EGLD. Here's what's up for grabs: - 20 Hypeys - FP - 0.162 - 1 Globees Letter - FP - 6 - 4 Hypey Portals - FP - 0.19 - 1 Emidas Genesis - FP - 3 - 8 SRBs - FP - 0.64 - 8 Mice City - FP - 0.189 - 2 Vapor Republic - FP - 0.35 - 1 OCS - FP - 1.45 - 5 BAXC - FP - 0.17 - 1 EApe - FP - 3.5 - 10k $RARE Come & make your bid Today, 19.00 UTC If you have any spare funds, you can send $EGLD directly to her @coinbase wallet (EGLD only) erd18xkxwtzht9jkxh6wzcg87hahm6rycj2s40a0gsrv4f5754z0jqqq9967w6 Let's come together and make a difference for Erin! #MultiversX #community #auction #NFT

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Valentin Dinescu
Valentin Dinescu@dnsv123·
Let’s move mountains again, together! 🙌🏼 All the NFTs will be sent to the auction winner, and the funds will go directly to @docdaniel ! 🙌🏼 We can do this ❤️‍🔥 See you tonight at 19:00 UTC in @SuperRare_Bears discord channel! 🐻 @Gnogen @Globees_Project @EAPESCLUB @MiceCityClub @OnChainSmokers @VaporRepublic @BoredApeXClub #Payitforward #MultiversX $EGLD
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SRB LABS 🧪🐻@SuperRare_Bears

In the face of unfathomable challenges, it's heartwarming to witness our community rallying together. Amidst the turmoil, there's a glimmer of hope for humanity 🙏 @PulsarTransfer send 300 RARE to 300 reactions For those who haven't heard, we're extending our support to @docdaniel, fondly known as Erin. She's bravely battling cancer while also recovering from a recent scam that tragically wiped out her entire bank account 😢😢 We cherish our community ❤️ and each individual within it. Thanks to a generous donation from @dnsv123, who deeply understands the strength of community bonds, we're orchestrating an auction on our Discord channel. discord.gg/SuperRareBears All proceeds will directly benefit Erin, transferred to her in $EGLD. Here's what's up for grabs: - 20 Hypeys - FP - 0.162 - 1 Globees Letter - FP - 6 - 4 Hypey Portals - FP - 0.19 - 1 Emidas Genesis - FP - 3 - 8 SRBs - FP - 0.64 - 8 Mice City - FP - 0.189 - 2 Vapor Republic - FP - 0.35 - 1 OCS - FP - 1.45 - 5 BAXC - FP - 0.17 - 1 EApe - FP - 3.5 - 10k $RARE Come & make your bid Today, 19.00 UTC If you have any spare funds, you can send $EGLD directly to her @coinbase wallet (EGLD only) erd18xkxwtzht9jkxh6wzcg87hahm6rycj2s40a0gsrv4f5754z0jqqq9967w6 Let's come together and make a difference for Erin! #MultiversX #community #auction #NFT

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SuperVictor Universe
SuperVictor Universe@SVictorUniverse·
Hello everyone! 🦸‍♂️ We're happy to present the Super Victor Universe 2024 roadmap. 🗺️ It's all about the fun, excitement, and the great things ahead ! 💖 💠𝗦𝘂𝗽𝗲𝗿 𝗩𝗶𝗰𝘁𝗼𝗿 𝗨𝗻𝗶𝘃𝗲𝗿𝘀𝗲 🔸BRANDING & IP 🔸Token Development ($VICTOR) 🔸Cross-chain exploration 💠𝗕𝗘𝗘𝗙 𝗨𝗻𝗱𝗲𝗿𝗹𝗶𝗻𝗴𝘀 𝗖𝗼𝗹𝗹𝗲𝗰𝘁𝗶𝗼𝗻 𝗠𝗶𝗻𝘁 (𝗺𝗶𝗻𝘁 𝗼𝗻𝗴𝗼𝗶𝗻𝗴): 🔸Mini Bosses Claim Platform development 🔸Smarugon Claim Platform development 🔸Ongoing interactive community mini games 💠 𝗖𝗕 𝗔𝗖𝗧-0 𝗦𝗙𝗧 𝗨𝗽𝗱𝗮𝘁𝗲𝘀 (𝗺𝗶𝗻𝘁 𝗼𝗻𝗴𝗼𝗶𝗻𝗴) : 🔸Reducing supply - 500 new supply 🔸Physical Comic Book Launch 🔸HQ CB Delivery for CB ACT-0 Holders 💠Developing 𝗦𝗶𝗱𝗲𝗸𝗶𝗰𝗸𝘀 Program for : 🔸Super Victor MegaCollectors 🔸Super Victor Animated 🔸SMARUGON 💠𝗘𝘅𝗽𝗮𝗻𝗱𝗶𝗻𝗴 𝗦𝗩𝗨 𝗕𝗲𝘆𝗼𝗻𝗱 𝗪𝗼𝗿𝗹𝗱𝘀 : 🔸SVU SuperStore development 🔸Gaming planning 🔸Partnerships with web3, web2 entities and individuals 🔸Planning educational program 💠𝗣𝗹𝗮𝗻𝗻𝗶𝗻𝗴 𝗩𝗶𝗰𝘁𝗼𝗿 𝗟𝗲𝗮𝗴𝘂𝗲 𝗹𝗲𝗴𝗮𝗹 𝗳𝗿𝗮𝗺𝗲𝘄𝗼𝗿𝗸 ℹ️ Stay tuned for detailed explanations of every 💠 and 🔸! ℹ️ We'll be unveiling them one by one in the coming days. 💫 Get ready for an exciting dive into each aspect of our roadmap! 2024 will be LEGENDARY! 🔥 #MultiversX $EGLD
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Valentin Dinescu
Valentin Dinescu@dnsv123·
Today, with joy, we celebrate 7 months since the Zolgensma infusion! 🙌🏼 And looking at our little fighter, we notice how determined he keeps his balance for a few seconds. 🥲 This little fighter reminds us every day that when resources seem exhausted, there is still the power to do a little more, a lesson of perseverance and determination that he brings into our daily life. ✌🏻 Happy Sunday everyone!❤️‍🔥
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Valentin Dinescu
Valentin Dinescu@dnsv123·
The B.E.E.F Underlings are coming on #MultiversX ! 🔥 Save the date 👇🏼 📆 Monday 27th NOV , at 19:50 UTC. ⏰ How it works : 💠 WhiteList Phase Drop: 3000 NFTs! 💰Mint Price: 0.16 $EGLD 📲 Max 10 per wallet! ✨✨✨✨✨✨✨✨✨✨✨ 📆 Tuesday 28th NOV , at 19:50 UTC. ⏰ 💠 Public Phase Drop: 5000 NFTs! 💰Mint Price: 0.16 $EGLD 📲 Max 15 per wallet! ✨✨✨✨✨✨✨✨✨✨✨ 𝗨𝘀𝗲𝗳𝘂𝗹𝗹 𝗟𝗶𝗻𝗸𝘀 : Mint + Semi KYC Link : mint.supervictornft.com/login Super Victor Universe Website : supervictornft.com Discord : discord.gg/RjVJWevEWf Whitepaper : supervictoruniverse.gitbook.io/svuwhitepaper/ ✌🏻
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SuperVictor Universe@SVictorUniverse

🔥Get ready!🔥 @SMARUGON is sending his underlings to invade #MultiversX! 💥 💠 WhiteList Phase Drop: 3000 NFTs! 💰Mint Price: 0.16 $EGLD 📲 Max 10 per wallet! 💠 Public Phase Drop: 24 hours after WhiteList with 5000 more NFTs! 💰Same mint price, 0.16 $EGLD, but now grab up to 15 per wallet! 📲 WHEN? 🤔 📆 Monday 27th NOV , at 19:50 UTC. ⏰ 𝐃𝐨𝐧'𝐭 𝐣𝐮𝐬𝐭 𝐰𝐚𝐭𝐜𝐡 𝐭𝐡𝐞 𝐚𝐝𝐯𝐞𝐧𝐭𝐮𝐫𝐞, 𝐛𝐞 𝐚 𝐩𝐚𝐫𝐭 𝐨𝐟 𝐢𝐭! ✨ ‼️to be eligible to mint you will have to get through the semi KYC process ‼️ 👇🏼👇🏼👇🏼👇🏼👇🏼👇🏼👇🏼👇🏼👇🏼👇🏼 𝗨𝘀𝗲𝗳𝘂𝗹𝗹 𝗟𝗶𝗻𝗸𝘀 : 🔹Mint Link : 👉🏻 mint.supervictornft.com/login 🔹Super Victor Universe Website : 👉🏻 supervictornft.com 🔹Discord : 👉🏻 discord.gg/RjVJWevEWf 🔹Whitepaper : 👉🏻 supervictoruniverse.gitbook.io/svuwhitepaper/ For any info please do not hesitate to join our discord channel ! ✨

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SuperVictor Universe
SuperVictor Universe@SVictorUniverse·
"Heroes vs Villains" AMA in SVU Super Space! ✌🏻 Big reveals, big fun! Be there! 👀 🗓️ Monday, Nov 20th at 20:00 UTC 👉 Spread the word & prepare your questions! 💪🏻 twitter.com/i/spaces/1MnGn…
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TogetherForVictor
TogetherForVictor@Together4Victor·
All our dreams come to life in this picture!❤️‍🔥 6 months since when we had the Zolgensma shot ! 🦸🏼✨
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Metaventis
Metaventis@metaventis·
Valentin, tatăl lui Super Victor a mutat munții din loc pentru a-i salva viața propriului fiu. Inspirat de toate hopurile întâlnite, are ca țel o platformă de strângere de fonduri 100% non profit. Cum? Mai ales dacă apare Smarugon și armata sa? twitter.com/i/spaces/1OdKr…
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