William Koren IV

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William Koren IV

William Koren IV

@WillKoren

A Louisiana born politically progressive Climate Policy Advocate + ADHD-C + Long COVID (c. March 2020) #CCL | #PriceCarbon | #ADHDtwitter | #LongCovid | #MECFS

New Orleans, Louisiana Katılım Mart 2009
4.2K Takip Edilen702 Takipçiler
William Koren IV
William Koren IV@WillKoren·
Invite Trailblazers to return and win surprise rewards such as Stellar Jades, PS5, and iPhone 15!
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Dr.Marjorie Roberts
Dr.Marjorie Roberts@DrMarjorieRobe1·
After contracting Covid-19 at work 3 years ago and choosing to resign because I had spots on my liver swollen lymph nodes in my lungs loss of every single tooth in my mouth sarcoidosis in my lungs l lost in superior court told by the judge 👩‍⚖️ basically she wishes me well 😢
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Hannah Davis
Hannah Davis@ahandvanish·
So proud of @LisaAMcCorkell & @netiamccray, both commended by @AyannaPressley in convo about the #LongCovid moonshot! "Shoutout to Lisa McCorkell who authored that article, we've worked closely with her & I want to name her & encourage folks to share it!" #t=4292s" target="_blank" rel="nofollow noopener">vimeo.com/877702738#t=42…
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Nate Postlethwait
Nate Postlethwait@nate_postlethwt·
Being behind in an area because you had to focus on survival and/or healing is not something to be ashamed of. It’s something to be proud of. That was wise. It was a sacrifice. I hope you feel bold in taking up space as and where you are.
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Whitney Dafoe
Whitney Dafoe@DafoeWhitney·
I want to start a new tradition that I hope this community will keep doing every Severe ME/CFS Awareness Day no matter what happens to me (I’m not planning on going anywhere ;) New post on my blog: whitneydafoe.com/mecfs/?post=se…
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#MEAction Network
#MEAction Network@MEActNet·
Today we honor and recognize #SevereMEDay. Severe ME Day is a day of remembrance when we think of those we have lost to myalgic encephalomyelitis (ME) and focus on those living with severe ME. For all those who have severe ME, we love you and we are fighting with you. #pwME
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Dr. Nicole LePera
Dr. Nicole LePera@Theholisticpsyc·
People's biggest fear isn't public speaking or death. It's that their thoughts might be true. Why You Are Not Your Thoughts:
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William Koren IV
William Koren IV@WillKoren·
I’m just beginning the process of filing for disability due to #LongCovid #MECFS. Though too soon to have hit an issue it is one I’ve heard much about. Thankfully I have savings but those will only go so far without the physical ability to work a traditional full-time job.
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Harry Boby
Harry Boby@HarryBoby4·
Long Covid is not deconditioning. I’ve been off training for 6 months with a broken ankle, I know when I'm deconditioned. Here’s the difference.
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Natalia
Natalia@NataliaHodgins·
Whenever I gain a little function, I quickly forget how bad things used to be. My brain is hardwired to erase the pain & suffering. I recalibrate my life around these new & improved limits, forgetting that all it takes is one wrong move, & the whole thing will come crashing down.
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Kopis Pelekis
Kopis Pelekis@Epifulax·
The earliest decription of post infectious syndromes and manifestations like #LongCovid I could find was in 430 B.C. During the plague of Athens called "Λοιμός" in Greek, documented by Thucydides, a historian who was fortunate to survive the disease himself.
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William Koren IV
William Koren IV@WillKoren·
@BynThereDoneTht Lots of canned soups, beans, rice, and sandwiches. I manage to cook for myself about once per week and save the leftovers for quick meals. The rest are meals delivery through grubhub, etc.
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Byn's Weird Brain
Byn's Weird Brain@BynThereDoneTht·
Those of you struggling with disability/chronic illness that keeps you from being able to prepare meals, what kind of easy foods do you keep on hand? 3 years in, and I am getting so bored of meal replacement shakes, apples, & trail mix. 😬 #Disability #pwLC #pwME #chronicillness
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William Koren IV
William Koren IV@WillKoren·
@sorenable It’s pure genius. I’ve never seen it done so well. I literally found myself laughing at a non-satirical archaeological documentary simply imagining what Philomena Cunk would say.
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William Koren IV
William Koren IV@WillKoren·
@Myrmec @shelleyjules @morganstephensa I’ve slowly come to accept the fact that I’m effectively disabled. Yet anyone who sees me would never know until I suddenly have to spend the next week alone in a blacked out room.
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Ryan McCullough
Ryan McCullough@Myrmec·
@shelleyjules @morganstephensa Having been retired on the back of LC, sad to say it doesn’t change much. The illness doesn’t care about your needs, plans, hopes or dreams. I wish I could be more positive, March 20 original infection, recovery plateaued Sept 20.
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Morgan Stephens
Morgan Stephens@morganstephensa·
Now that ‘pacing’ is getting its day in the sun. Let’s discuss making it financially feasible to rest/pace without losing the ability pay bills, feed yourself and family, and keep your home and job—where, here in America, a job often means health insurance. 1/2
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