Amy Rader Olsson

@CareyPhoto I used to be a little irritated when people said “but you look great!” They don’t do that anymore

A woman in my support group suggested I join the local senior center to combat the isolation I face here, & now I'm just embarrassed over how much 5 yrs of cancer & chemo have aged me if I look that old. 😭

@silke4senate Done!

Friends and carcinomies - please sign. It’s ridiculous to have medical conferences in states that don’t value health care for women. #bcsm #lcsm #cancer #mbc

Move Medical Conferences Out of States Without Full Access to Reproductive Care - Sign the Petition! chng.it/qcdvyS2h via @Change

@NancysPoint Life

#Cancer treatment is such a thief. I miss my old hair, lashes & brows. Call me vain, but I hate how cancer tx took what I perceived to be my best physical features. I miss the old me. What's something cancer tx took from you? nancyspoint.com/since-chemo-ev… #breastcancer #hairloss #bccww

@mrmills1972 Shouldn’t e necessary

@arolsson1 It is. It's just not used that often so getting a port flush in between uses is what I was asking about.

What happens if I don't get my port flushed?

@silke4senate It can worsen my hypercalcemia so no more for me. I always took with vitamin k

Still no word on whether it has any influence on cancer, but if you’re taking it for bone health you can stop. I guess I’ll reevaluate after my current package of Vit D is gone. nejm.org/doi/full/10.10…

@em222222222 @ThanksCancer Im in the same place. Things are moving fast and instead of enjoying my final days it’s paperwork, lawyers and other preparations. Luckily I have good friends helping but even figuring out what my kids need (I’m alone) is too much)

@barteeellis Sounds similar to my experience. Enhertu didn’t any I still haven’t recovered from se after a half year hope your experience is better !

Found out today at Duke that I have to stop Enhertu because of grade 2 pneumonitis after only 3 treatments. My scan was stable but no Shri king or drastic response. My onc is suggesting a couple of treatments once I heal. #bcsm

@AMJohnston1315 @stales Congratulations!

@stales Coming off a high of an amazing scan after some miserable months and looking forward to Project LEAD next week and meeting people irl!! And right after that, the boys start school. #bcsm

#bcsm Roll call - check in and say hello. How are you today?

@silke4senate Welcome home!

I’m back in naturally air conditioned Santa Cruz, but here is a flower that I brought back from Boston for all of you. 💗

How to be a friend … to those managing a crisis. nohalfmeasures.blog/2022/07/25/how…

@LibbyMbc Seems reasonable. Not much hope for the hospital but might be worth the investment in babysitting if friends won’t/can’t help. Can palliative care help with light cleaning/cooking? Helpful hints Can be annoying so I hope I’m not just adding to your burden!

@arolsson1 Help with childcare and household tasks. And childcare at the hospital would really help

On Saturday I brought violet to a birthday party (see Minion pic). There was honestly not very much walking but by Sunday my body was screaming from extreme pain everywhere. My husband took violet to an airshow (see monster truck). I know parents with mbc who are single parents h

Time for my first rullator. Have barely been out of the house and hopefully it will help me be more independent I’m grateful but it feels like an ominous milestone 😥#mbc

@LibbyMbc What would help most in a practical sense?

Honestly i dont know how they do this without support. There are also very few resources for young people with cancer (in my experience) as it is thought of as an old person disease. I am constantly offered help taking baths but what would help me is different than older people.

@ehgkulow @Martha__Carlson @Dr_RShatsky Yes a saline drip. Plus drink 3 liters of water a day with a little salt and sugar.

@arolsson1 @Martha__Carlson @Dr_RShatsky IV drips? For hydration? I’ve read some people have an issue with dehydration and that causes more se

We need better curative intent and #mbc therapies for Luminal B (aka aggressive HR+/Her2(-)) breast cancer. Every day in clinic I struggle with this because these are nasty tumors that forge ahead no matter what we throw at them. 😡#bcsm

@ehgkulow @Martha__Carlson @Dr_RShatsky Just keep a close eye on your se and don’t do it if they won’t schedule regular IV drips. You can always stop

@Martha__Carlson @Dr_RShatsky I am having near panic attacks thinking about starting it 🥺

@BethKaufman3 Wow! Congratulations

My favorite four words Pet scan is clear! #cancer #cancercommunity

@silke4senate @laurenahan1 Great to hear you’re enjoying beantown!

Met up with @laurenahan1 today in Boston and it was the best. It’s just so amazing how great a connection us #mbc virtual friends have when we meet in real life. Since we both forgot a selfie here are some koi (that I didn’t feed)

@_BetsyKate @ThanksCancer Yikes!❤️

Welp, last night I unknowingly got tangled up in the tubes connected to my chemo ball, and took a tumble down the cement steps in front of my building. I fell headfirst, but it’s mainly my limbs that are paying for it. 🤦🏻‍♀️ @ThanksCancer