Cholangiocarcinoma Foundation

Incredibly honored to be invited to this highly informative 🌎panel on the rapidly evolving role of #transplantoncology for #metCRC and #cholangiocarcinoma @AHPBA #AHPBA26 @curecc @ASTSChimera @OHSUKnight

Broadcasting live🖥️from @AHPBA #AHPBA26 on advances in #cholangiocarcinoma @curecc Many thx 🙏to @EAHPBA for the opportunity and for those who joined the discussion

Are you living with cancer and want to know more about how #biomarkertesting can play a role in your treatment decisions? Register now for the webinar “Understanding Biomarker Testing for People with Cancer." Register today at: bit.ly/4aNGm4Z. @clopezcorrea, @DrHaleyEllis, and Marie-Claire Platt.

@Patrici65195855 @JavleMilind @Jarurat_care @MDAndersonnews We are here for you! Please send an email to our advocacy team at advocacy@curecca.org for 1:1 support and to help answer your questions. You can also visit curecca.org for more info. 💚

@JavleMilind @curecc @Jarurat_care @MDAndersonnews Newly diagnosed with Stage IV CholangioCarcinoma. How do I prepare for the road ahead? What helped you navigate this Cancer?

@curecc @Jarurat_care @MDAndersonnews

🔬 Webinar: The Role of Histotripsy in the Care of Patients with Cholangiocarcinoma Join us for a webinar exploring histotripsy, a noninvasive, focused-ultrasound therapy, for the management of patients with cholangiocarcinoma. Dr. Brock Hewitt, Assistant Professor of Surgery and Co-Director of the Histotripsy Program at @nyulangone, will review the technology’s mechanism of action, its potential advantages over traditional ablative approaches, and early clinical experiences. Attendees will gain insight into how histotripsy may expand treatment options for patients with this challenging disease. 📅 March 26, 2026 | 4:00 PM ET 🔗 curecca.link/march26

We’re proud to partner with Triage Cancer for the Triage Health Conference. This FREE virtual event covers health insurance options, advocacy, managing finances, and more. Health care professionals can earn free CE. May 15–16 TriageCancer.org/Conferences #TriageTalks #HealthCareRights

What began as a benefit to support a local family after a devastating loss became something even bigger. On March 7, Jeep clubs and community members gathered at Hartville Hardware & Flea Market in Hartville, Ohio to support Tom and Amy Lowry, whose family business was destroyed in a fire earlier this year. In an incredible act of generosity, the Lowrys chose to have the proceeds from the event donated to the Cholangiocarcinoma Foundation in memory of Bobby. The evening was filled with kindness and connection. •48 Jeeps rolled in, with supporters traveling from as far as West Virginia. •Raffle baskets, a food truck, and visits from the Hartville Fire Department made it a special night for families and kids. •Bobby’s Ducks and shirts were shared alongside handmade items and crafts sold by friends and supporters. Together, this amazing community raised $2,800 in support of the Cholangiocarcinoma Foundation. Moments like this remind us how powerful community can be. Thank you to Tom and Amy Lowry, the Jeep clubs, volunteers, and everyone who showed up to make a difference. Most importantly, thank you Katie and Asher Courtney for your continued advocacy of CCF’s mission and support in loving memory of Bobby. #BobbysDucks #CureCCA #Cholangiocarcinoma

Boston, we’re almost full 👀 Join us for a day packed with: ✨ Hosted by @DrHaleyEllis & the CCF New England Care Team 🧠 Research updates, including CCF Fellow @Vindhya_Vijay 💬 A powerful patient perspective from Matt Paradise 👩‍⚕️ A live multidisciplinary tumor board 🤝 Time to connect with others who truly understand Plus… 🚗 free parking Just a few spots left—don’t miss this. 🔗 Register now: curecca.link/boston.

Wishing you shamrocks, smiles, and a little extra cheer this St. Patrick’s Day!  From all of us at the Cholangiocarcinoma Foundation. 🍀🌈💚🎩

The chilly weather today has me thinking about the team's upcoming trip to New England for the Boston Symposium. We are looking forward to it! 🗓 April 7 ⏰ 8:00 AM 📍 Simches Research Center 🔗 Register curecca.link/boston.

💚 Grief looks different for everyone — and that’s okay. At CCF, we recognize that love and legacy aren’t measured by time, and that healing can take many small, meaningful forms. For families facing loss, finding ways to support children and young adults through grief can make all the difference. That’s why we created the Grief Care Kit Project — a collection of thoughtful, practical resources designed to help families navigate loss with compassion and understanding. Thanks to the generous support of AstraZeneca, we’re able to make these kits available free of charge to families in need. If you know a grieving child or young adult who could benefit, request a free Grief Care Kit here: curecca.link/GriefToolKit.

Join us for this informative 🖥️ GR webinar on the management of #cholangiocarcinoma Thx 🙏 to @EAHPBA for the opportunity @AHPBA @IHPBA @curecc @CcaEns #precisiononcology @OHSUKnight

Time toxicity in patients w BTC receiving gem/cis/durva. 14% total time toxicity while on treatment. How much time toxicity is too much? @curecc @FlavioRochaMD @JavleMilind @AHPBA @MiteshBorad @ChildersBg @VautheyMD @SocSurgOnc @ASCO @BiachiTiago ascopubs.org/doi/10.1200/OA…

📍 2026 Boston Cholangiocarcinoma Regional Symposium Join leading experts, researchers, healthcare professionals, patients, and advocates in Boston on April 7, 2026 for a day dedicated to advancing understanding of cholangiocarcinoma. This regional symposium will bring the community together to share the latest developments in research, treatment, and care, while addressing the challenges facing those impacted by this rare cancer. 🗓 April 7, 2026 ⏰ 8:00 AM – 4:00 PM 📍 Simches Research Center, Charles River Plaza 185 Cambridge St, Boston, MA Hosted by Dr. Haley Ellis and the CCF Northeast Care Team. 🔗 Register at curecca.link/boston.

“Grateful doesn’t quite cover it. Being a CholangioConnect mentor is a profound privilege. To walk alongside someone in moments of uncertainty—to listen, to witness, to remind them they’re not alone—is an honor I never take lightly.” -Matt Pardise Through CholangioConnect, patients and caregivers can connect one-on-one with trained mentors who understand the cholangiocarcinoma journey. 💚 If you’re looking for support, you don’t have to navigate this alone. Request a mentor: curecca.link/cc.

The 2026 Birmingham Cholangiocarcinoma Symposium 2026 convened experts, researchers, healthcare professionals, patients, and advocates in Birmingham, Alabama to share insights and explore the latest advancements in cholangiocarcinoma research and treatment. View the recording from February 20, 2026. youtube.com/watch?v=ZIp_ww…

🔬 Webinar Recording Now Available Learn about a global study exploring inherited genetic risk factors for cholangiocarcinoma, based on research involving 2,366 individuals with CCA and 11,750 controls. The webinar also highlights how patients and families can help advance this important research. 🎤 Presented by Amerti G., PhD student at the Mayo Clinic Graduate School of Biomedical Sciences. ▶️ Watch the recording: youtu.be/TQVS94XSWqo.

GI oncology insights, all in one place. Explore PER’s online resource center from the 2025 International Symposium of Gastrointestinal Oncology, featuring expert perspectives and on-demand learning. Start learning here: bit.ly/4qeVYTz.

#LegacyContent: Cholangiocarcinoma Targeted Therapies: Mechanisms of Action and Resistance. Authors from @MGHCancerCenter, @harvardmed @UofGlasgow, @curecc, and @OfficialUoM. Free in the #OpenArchive: ajp.amjpathol.org/article/S0002-…