Gemma Monaghan

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Gemma Monaghan

Gemma Monaghan

@gemchem

Mummy to beautiful boy with cystic fibrosis. Lover of science, tea and gin! Work in R&D consultancy for government funding.

Edinburgh, Scotland Katılım Ağustos 2011
299 Takip Edilen154 Takipçiler
Gemma Monaghan
Gemma Monaghan@gemchem·
@BBCMorningLive @xandvt Creon, both 10,000 and 25,000 for pancreatic insufficiency! So stressful, suspected shortages to 2026, and some awful advice on treating the symptoms with Imodium!
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BBC Morning Live
BBC Morning Live@BBCMorningLive·
With suggestions that many are struggling to get the medicine they need due to nationwide shortages, @xandvt joins us on Monday to explain what you can do if you're affected. Have you found it difficult to get prescriptions from your local pharmacy or GP? Let us know!
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Gemma Monaghan
Gemma Monaghan@gemchem·
@NathanEvanss my 6yo is a huge fan! Here you are singing Leave her Johnny at the concert we’ll see you at in August 🥰 he loves you singing for the ⚽️ fans! He’d love a hello 👋
Gemma Monaghan tweet media
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Gemma Monaghan
Gemma Monaghan@gemchem·
@novice1965 @Edinburgh_CC We’re in eh17 too -rubbish is now blowing places & people resorting to not recycling, which will significantly impact our environment.I understand there’s a catch up,but when is the EH17 collection scheduled for?We don’t have a car to get to a centre.
The City of Edinburgh Council@Edinburgh_CC

@novice1965 Hello, the team will get to this as soon as they can, You can also take household waste to a recycling centre bit.ly/389k6yS thanks, Sophie

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Gemma Monaghan
Gemma Monaghan@gemchem·
@Edinburgh_CC @novice1965 I should add, I don’t think the website is up to date. It’s not clear that the Mortonhall area hasn’t had green bin collection.
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Gemma Monaghan
Gemma Monaghan@gemchem·
@Edinburgh_CC @novice1965 Hi Sophie, I’ve viewed this and reported it, the first time it was missed. EH17 has now had 2 missed recycling collections. Can you please tell me when we will get a collection?
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Gemma Monaghan
Gemma Monaghan@gemchem·
@asda my order is late, I’ve had no update, and no-one is answering the phone. Am I just to wait? Usually a text comes through with an updated estimated delivery time.
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Gemma Monaghan
Gemma Monaghan@gemchem·
@HeatherDoranDr Edinburgh are now removing funded places at private nurseries for those living outside the city. So hammering working parents commuting in and having the childcare local to their work!
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Arnold Schwarzenegger
Arnold Schwarzenegger@Schwarzenegger·
One of the highlights at this year’s @ArnoldSports was bringing together The Pump app village in person for the first time. Talking to all of you, hearing your success stories, and seeing you connect, I realized we’ve succeeded at building the positive corner of the internet.
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Gemma Monaghan retweetledi
FrogstonPS
FrogstonPS@FrogstonPS·
A massive thank you to @standrewstimber who kindly donated some materials to help us build a new, stronger chicken coop, as well as some soil for our farm to fork project.
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Gemma Monaghan
Gemma Monaghan@gemchem·
@OSICild what is the timeframe on someone reviewing an online form? My husband filled one out re membership and accessing data for his Masters, but hasn’t heard back. Thanks, Gemma
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Gemma Monaghan
Gemma Monaghan@gemchem·
@cftrust A few things - does this impact people in Scotland? Of someon me is on Orkambi does that mean they’ll progress onto Kaftrio as part of the deal, or do you need to be on the specific modulator to keep access? Is there any guidance on what to put in the consultation ?
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Cystic Fibrosis Trust
Cystic Fibrosis Trust@cftrust·
Although this is an initial decision based on the cost and not the final say - and it is important to emphasise that those already taking any of the modulator drugs are not affected by the NICE process because of the agreements in place - (3/7)
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Cystic Fibrosis Trust
Cystic Fibrosis Trust@cftrust·
NICE have today given an update on their evaluation of the cost-effectiveness of the modulator drugs Kaftrio, Orkambi and Symkevi. ➡️ ow.ly/h4JG50Q3POq (1/7)
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Gemma Monaghan
Gemma Monaghan@gemchem·
@JoshLJ24 My 5 year old is struggling doing his physio - he doesn’t think anyone else has CF and it’s become super hard. I don’t suppose you have an inspirational video in the bank for him? 😩😊 xx
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Gemma Monaghan
Gemma Monaghan@gemchem·
@BenMudge_ my son (5) has CF and is struggling with physio and feeling down about his CF. I’ve shown him photos and videos of you; he said he’d love to meet you! Impossible I know, but could send him a message??
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Rachael Fleming
Rachael Fleming@RachaelBass15·
I came across this on Twitter & have just finished it - a brilliant read to understand what it’s like for someone living with #CysticFibrosis, sprinkled with humour & a light hearted approach. Definitely worth a read if you want to know more about CF 👏🏻 @abihalstead #OneTinyFault
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