Super Man
8.3K posts

Super Man
@js02
Veteran with ALS I block idiots.
Florida Katılım Nisan 2009
404 Takip Edilen458 Takipçiler
Super Man retweetledi

Understanding disease progression: bit.ly/4qHqxkY
ALS affects everyone differently, but learning about common stages can help with planning, expectations, and support decisions over time.
#ALS #ALSStages #ALSAwareness #LivingWithALS #CaregiverSupport #RareDisease #Bionews #ALSNewsToday

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What kind of halfwit prosecutors are they? The guy voted in 5 separate elections, or more, and he only gets charge with "one count"?
LAME
Canadian Man Accused Of Voting In Multiple US Elections protrumpnews.com/canadian-man-a…
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This woman reported her own sister for HIPAA violations… and it got her sister fired.
Her sister works in nurse staffing and was taking work calls at home in the living room, discussing patient information out loud and even making comments about patients while the family was sitting right there watching a movie.
The woman says she’s a mandated reporter herself, so she felt she had no choice but to report it.
So here’s the question — was she right to report her own sister, or should family loyalty have come first?
Would you have done the same thing in her position?
If I felt this strongly about what my sister was doing, I would have had a conversation with her first, not just report her.
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@HistorianUSA1 A nurse in NY makes well over 150k/yr.
If you cannot pay off the debt in 10 years, you have a budget problem, and you are not a victim.
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You have $170k in PRIVATE student loans to become a nurse and you’re filming this in scrubs like we owe you sympathy.
Lady, you signed the papers. Every. Single. One.
No new clothes in 6 years? Shoes with holes? Can’t eat out? Cut your own hair?
That’s not ‘the system.’ That’s adult choices with compound interest. Private loans don’t get forgiven by crying.
You ‘chose this’ — now own it instead of guilt-tripping the rest of us who didn’t take out a mortgage for a degree.
Taxpayers aren’t your co-signer. Work harder, live leaner, pay it back.
The entitlement is louder than the debt.
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So true!!
"This is the hour the prophets warned about. Isaiah saw it coming: a day when men would call good evil and evil good, when darkness would be mistaken for light and light treated as a threat."
thegatewaypundit.com/2026/05/pastor…
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@SarahNauser Are you taking Lion's Mane Mushroom Supplements? It stimulates NGF and BDNF. I'm taking it (1800mg 2x/day), and it seems to help (11 years surviving July 27, 2026).
See BDNF and NGF info here.
x.com/i/grok/share/8…
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Day 18
Can you still talk?
I can, and after battling ALS for so long, that is such a blessing. Does my voice sound perfect? Not even close. It can be frustrating at times, but I constantly remind myself how fortunate I am to still have the ability to speak.
I rely on my BiPAP to do all of the work of breathing for me. It uses air pressure, not oxygen, to push air into my lungs and then help force it back out as I exhale. That process prevents dangerous CO2 buildup, which can be life-threatening.
The tricky part is that my BiPAP would really prefer that I don’t talk because speaking throws off its rhythm. Over the years, I’ve learned how to essentially talk around the ventilation. When you hear me pause while speaking, it’s because I need to allow the machine to breathe for me. Without it, I’m unable to speak at all, and it has been that way for several years now.
As my muscles continue to weaken, talking around the ventilation has become more difficult. I have to pause more often and speak slowly, otherwise the machine gets all out of sync. So if I’m talking with you, I ask for a little patience.
My voice is also extremely quiet now. If I’m out somewhere and you stop to say hi, please know that I hear you. ALS has not affected my hearing one bit. I’m probably responding back, but there’s a good chance you simply can’t hear me. I promise I’m not ignoring you.
The more I talk, the weaker and quieter my voice becomes. Thankfully, technology has given me a pretty incredible backup plan: my voice clone. Through an app called Talk To Me Goose, I can type whatever I want to say and it speaks out loud in my own voice. It honestly feels like a human cheat code.
Eight years ago, when I was diagnosed, technology like this was nowhere near where it is today. While ALS has taken a lot from me, it has not taken my ability to connect with people, share my thoughts, tell my story, or say “I love you.” Whether it comes through my own voice or a computer speaking for me, my voice is still mine, and I’m incredibly grateful for that. Don’t worry, I am still very capable of running the show in our house! 😂
#ALS #ALSawareness #FightLikeAGirl

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Super Man retweetledi

@TargetALS_fdn Where are the large comparative studies of pALS who have survived for 10 or 20 years compared with those who have survived for only 2 or 3? What makes us survivers different?
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When the people building the treatments are as All In as the people waiting for them, that's when things change. Damon Wang, Co-Founder and CEO of NuCyRNA, shares what he’s #ALLIN for.
Join him: ow.ly/A17n50YZLWx
#EveryoneLives #ALSAwarenessMonth #ALSResearch #ALS


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@JackDangerLIVE The most likely first use for these will be against the Chinese population.
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Most research bars entry into drug trials if you have been 2 years since you first had symptoms. It took them 4 years for my diagnosis, so I could not participate in any drug trials.
I have been in some research, but the truth is, it gets old. After 3 or 5 years of the same old stuff, I lost interest because there were no advances.
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Day 16
Have you participated in any trials?
The only trials I’ve participated in were research studies where no medication was administered. Not because I didn’t want to — I absolutely would have welcomed the opportunity — but because I was never eligible at any point in this journey.
By the time I was diagnosed with ALS, my breathing capacity had already diminished to less than half of what is considered normal for a healthy adult. That’s very uncommon. For most people with ALS, the breathing muscles are affected much later in the disease. But as I always say, no two people experience ALS the same way.
A respiratory test called FVC (Forced Vital Capacity) measures lung function. At diagnosis, my FVC was 42%. For reference, healthy adults are typically near or above 100%. Most clinical trials automatically disqualify anyone below 65%. As you can imagine, that was incredibly discouraging.
And even if my breathing hadn’t already been compromised, I still would’ve been ineligible for most trials. Because ALS progresses so aggressively, many studies require participants to be within two years of symptom onset. Looking back, my symptoms had actually started nearly three years before my diagnosis — effectively disqualifying me from almost everything before I even had answers.
It’s frustrating, because people facing a terminal illness often have the least access to the very treatments that could potentially help them. I understand trials need structure and safety measures, but it’s hard not to wonder why those of us with the most to gain are so often excluded.
I don’t believe there will be one miracle drug that suddenly “cures” ALS. I think progress will come through layers of treatments, therapies, research, and individualized care. Different things will likely work for different people. I’m not a scientist, just someone living this reality every day — but I do know this: people with ALS deserve hope, options, and the chance to fight for more time. #ALS #ALSawareness #FightLikeAGirl #EndALS

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Conspiracy to overthrow the US Govt, 2016-2020, guilty as charged:
The primary federal crime fitting this description is conspiracy to defraud the United States under 18 U.S.C. § 371. (Through the scheme to remove the POTUS based on false testimony)
Key Statute: 18 U.S.C. § 371 - This general conspiracy statute makes it illegal for two or more persons to: Conspire to commit any offense against the United States, or
Conspire "to defraud the United States, or any agency thereof in any manner or for any purpose."
That includes all agencies of the Executive Branch, Congress, and the Justice system.
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James Comey just went on national television and basically told the entire federal bureaucracy to sit quietly in the shadows, wait out President Trump, and hold the line until Democrats can take power again. And somehow we’re supposed to pretend this is normal? The former FBI Director openly talking like government agencies are supposed to resist elected leadership instead of serving the American people is exactly why millions of Americans no longer trust these institutions the way they once did.
What really set people off was Comey saying “hang on 2.5 years, then we can rebuild,” because it sounded less like a former law enforcement official and more like a political activist rallying unelected insiders to outlast the administration. That’s the part fueling outrage across conservative America right now. Americans vote for presidents to run the executive branch, not to spend years battling entrenched bureaucrats who think they answer to their own political ideology instead of the Constitution.
Then Comey tried framing the situation as career prosecutors and agents being “forced out” over investigations the president disliked, but critics argue the bigger issue is whether parts of the federal government became openly politicized against Trump from the very beginning. After years of investigations, leaks, raids, and nonstop media coordination, a lot of people hear comments like this and feel like the so called Deep State is not even hiding anymore. That’s why this interview exploded online so fast. Millions of Americans are tired of watching unelected power centers act like they should control the country regardless of who voters put in office.
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Super Man retweetledi

@SJWinfoot @raminrealtalk @JennyRaeCA @Herb4Controller @MichaelGatesESQ Climate change? You mean like global freezing now? Or was it global warming, like last year?
IGNORANCE IS NOT A GOOD SHIP TO SAIL!!
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@raminrealtalk @JennyRaeCA @Herb4Controller @MichaelGatesESQ At least California doing something to fight climate change unlike the RED STATES!
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California gave ONE nonprofit $1 BILLION.
To put solar panels on poor people's roofs.
You know how much solar they actually installed?
$72 million.
That's it.
So where the FUCK is the other $928 MILLION?
I'll tell you exactly where.
The same nonprofit that WROTE the law that gave them the money ALSO got the contract to run "community outreach."
Same guy runs the nonprofit AND the program. Chris Walker. Two paychecks. Look it up.
And their SISTER organization — same building, same staff, same donors — is a 501(c)(4) that endorses Democrat candidates and runs door-knocking operations in the EXACT SAME NEIGHBORHOODS.
Connect the dots, idiot.
You pay $7.50 a gallon for gas.
Cap-and-trade takes a cut at the pump.
That money flows to "climate justice nonprofits."
Those nonprofits funnel it into Democrat get-out-the-vote machines.
You. Are. Funding. The. People. Who. Are. Robbing. You.
Every time you fill up your fucking tank, you're paying for a Democrat campaign volunteer to knock on a stranger's door and tell them how amazing Gavin Newsom is.
$928 MILLION.
GONE.
And not one journalist in this state asked a single question until @jennyraeca and CAL DOGE pulled the receipts.
You think this is the only one?
There's a hundred more like it.
This is how California works now.
This is how a "blue state" stays blue when only 48% of the voters are Democrats.
Wake the fuck up.
@patrickbetdavid @VincentOshana @FoxNews @WallStreetApes @CalDOGEgov @elonmusk @libsoftiktok
We're standing in front of the building right now.
@raminrealtalk" target="_blank" rel="nofollow noopener">youtube.com/@raminrealtalk
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