Karine

#LongCovidAwarenessDay #ConfrontLongCovid Le 14 mars 2020, je suis tombée malade, depuis j'ai un #CovidLong. Ma santé s'est détériorée, j'ai perdu mon emploi, ma vie sociale. Mener une vie normale me manque. Ceci est ma nouvelle vie.

« Les oubliés du Covid », une enquête poignante au cœur du #CovidLong. 🙏Immense merci à Nora Sahara ! 📚 À découvrir dès le 8 avril ! #ApresJ20

Science takes ~17 years to reach clinical practice. The science in 2026 is clear: we don’t have another decade to wait on SARS-CoV-2. If you’re doing what you can to avoid (re)infection, your behaviour is 100% aligned with best current available evidence.

Long COVID: The Renal System Long COVID can affect the renal and urinary systems through microvascular injury, endothelial dysfunction, immune activation, autonomic instability, and neuroinflammation. Reported impacts include acute kidney injury (AKI), reduced estimated glomerular filtration rate (eGFR), progression of chronic kidney disease (CKD), elevated creatinine, proteinuria, hematuria, electrolyte imbalances, fluid retention, new or worsening hypertension, and in severe cases, kidney failure requiring dialysis. Renal injury is thought to result from persistent vascular and inflammatory stress, thrombotic microvascular changes, dysregulated immune signaling, and hemodynamic instability. Risk may increase over time, particularly with repeated infections that compound cumulative vascular and inflammatory burden. Long COVID can also affect bladder and urinary function, often through autonomic and neurologic disruption. Patients report urinary frequency, urgency, nocturia, incontinence, hesitancy, pelvic discomfort, and symptoms resembling overactive bladder or interstitial cystitis. Importantly, renal and urinary involvement may be underrecognized and can remain clinically silent in early stages. Ongoing monitoring, appropriate laboratory evaluation, and awareness of subtle changes are essential to prevent delayed detection and progression. We are all #OneInfectionAway Learn more about #LongCOVID and visit our #LongCOVIDAwareness Month page to take action, get involved, and spread the word! longhauler-advocacy.org/lcamonth2026 Access the video here: youtu.be/pxIjyQ7-j_o

Long COVID affects millions of people worldwide. The experiences shared here are just a glimpse into what daily life can look like for those living with Long COVID. If you’re living with Long COVID, we want to hear from you. Fill out the survey below to share your story and have it featured. Your voice helps raise awareness, inform research, and push for real change. docs.google.com/forms/d/1wedgY… #LongCOVID #PublicHealth #COVID #COVID19 #LongCOVIDAwareness

my theory is that people get triggered by strangers wearing masks for potentially two reasons: 1) they have been affected by covid and are in denial 2) their inherent biological intelligence is aware there is a danger but their ego overrides that, causing anger they then project.

Long COVID: The Endocrine System Long COVID can disrupt endocrine and metabolic regulation, altering hormone signaling, glucose homeostasis, and cellular energy production. Impacts include new-onset diabetes, glucose intolerance, thyroid dysfunction signals, menstrual irregularities, testosterone changes, metabolic instability, and persistent fatigue. Reported manifestations include new-onset diabetes, impaired glucose tolerance, thyroid dysfunction, menstrual irregularities, altered testosterone levels, metabolic instability, and persistent fatigue. These changes may reflect pancreatic involvement, hypothalamic–pituitary axis disruption, autoimmune activation, and systemic inflammatory stress. Endocrine and immune pathways are tightly integrated. Dysregulation within one system can amplify inflammatory signaling, autonomic instability, sleep disturbance, vascular dysfunction, and multi-organ symptoms. Cutaneous and inflammatory manifestations — including rashes, alopecia, photosensitivity, acne, hypersensitivity reactions, and recurrent infections — may reflect broader immune–endocrine interplay. Endocrine dysfunction in Long COVID may both result from and contribute to multisystem disease burden. Evaluation should be individualized, mechanism-informed, and guided by evolving evidence. We are all #OneInfectionAway Learn more about #LongCOVID and visit our #LongCOVIDAwareness Month page to take action, get involved, and spread the word! longhauler-advocacy.org/lcamonth2026 Access the video here: youtu.be/Oq3rq14jD10

Covid can still kill you. Covid can make it easier for other things to kill you. Just because it doesn’t kill you right away doesn’t mean it won’t kill you or contribute to killing you eventually. Covid kills. Long covid kills. Immune damage kills. Chronic inflammation kills.

“Each infection is a new stress on the body. Repeated infections may increase the risk of #LongCovid by cumulatively affecting the immune system, inflammation & organ systems. In addition, each infection carries its own independent risk of triggering LC” —Dr. Guzmán-Vélez

If your safety protocol requires the most vulnerable person in the room to take all the risk,
it’s not medicine—it’s abandonment.

Le 15 mars 2026 à Bruxelles, se tenait une journée de sensibilisation pour le covid long. Le Covid Long pédiatrique y a été mis en valeur. Charlotte, comme d'autres malades enfants/adultes, n'ayant pu se joindre à cause de sa santé, y était représentée par son ours en peluche.

🫀Quand le cœur est touché, l’autonomie est impactée. Le Covid long ne relève pas uniquement du médical. Ses impacts sont aussi sociaux. #ActionCovidLong #LongCovidAwareness #EveryHeartbeatCounts #CovidLong #SantéPublique #Handicap

Porter un masque est l’un des moyens les plus simples et les plus efficaces de vous protéger et de protéger les gens qui vous entourent. Protégez-vous. Protégez les autres. Illustration de Janine Vangool

A review of 49 MRI studies shows that COVID-19 is associated with structural and functional brain changes. ➡️ Abnormalities are most commonly seen in the frontal, temporal, and parietal lobes, as well as the limbic system and subcortical regions. ➡️ These findings suggest widespread brain involvement, not limited to a single area. ➡️ The changes may explain both acute neurological symptoms and long-term effects (LongCOVID). 👉 COVID-19 is not just a respiratory disease—it has measurable, widespread effects on the brain academic.oup.com/cercor/article…

Ils sont 2 millions en France. Dont 700 000 enfants. Et pourtant, on ne les voit pas. Les oubliés du Covid est une enquête au cœur du Covid long 📚 Disponible le 8 avril chez @HarperCollinsFR @apresj20 @CLsolidaire @winslow_la @LongCFoundation @co19longcours #covidlong #EM

This alone should be ringing alarm bells. There are people who are working in high stakes professions who are working through cognitive impairments caused by covid. And the current gameplan is for everyone to keep getting reinfected over and over again.

🟥🟩🟪"Patients with post-COVID19 conditions exhibited significant deficits in attention, executive functions, phonemic and semantic fluency, verbal learning, and episodic and visuospatial memory. All of this impacted their quality of life, daily functioning, and work capacity".

In response to a question from @ZackPolanski on #LongCovid, @DrAmirKhanGP says “I feel really helpless when I see them.” People who were healthy just a few years ago, a lot of them have lost their independence and ability to earn and there’s nothing in place to look after them.

My new research is out "Overview and Pathophysiology of Long Covid" I provide an updated overview of key concepts, terminology and epidemiology of LC. I also offer an analysis of key mechanisms of pathology and multi-organ involvement in #LongCovid mdpi.com/2673-8112/6/3/…

Hey @courrierouest, y a pas à faire un quizz sur votre site pour que les gens décident si le covid long existe ou pas, vous ne le feriez pas pour un type de cancer ou la mononucléose. La vraie question c'est : faut-il continuer de financer des scientifiques qui affabulent ?

Overview and Pathophysiology of Long COVID 🚨200–400 MILLION people worldwide are crippled by Long COVID. That's not a 'mild' virus aftermath, it's multi-organ destruction that persists for years. Wake up. #LongC0vid ➡️Authored by @elisaperego78 , a Long COVID patient-researcher and advocate (with lived experience of chronic illness), it brings authenticity and depth rarely found in traditional academic reviews, blending rigorous synthesis with real-world urgency.💪👏 ➡️Summary: 1. Long COVID affects an estimated 200–409 million people globally, with pooled prevalence around 36% across studies. Risks persist across all ages, even in mild/asymptomatic or vaccinated/Omicron cases, though attenuated by vaccination, 2. It is a heterogeneous, multi-system condition involving dozens of symptoms (e.g, fatigue, brain fog, dyspnea, pain) that evolve over time, often relapsing, with potential for subclinical damage, disability, and increased mortality, 3. Major pathophysiological mechanisms include viral persistence in tissues, immune dysregulation (e.g, lymphopenia, T-cell exhaustion, autoantibodies, complement issues, mast cell activation), autoimmunity, endothelial dysfunction, micro/macro-thrombosis (including fibrinolysis-resistant microclots), chronic inflammation, microbiome dysbiosis, and reactivation of latent pathogens, 4. Organ-specific involvement is widespread: cardiovascular/endothelial (e.g, vasculopathy, accelerated aging, perfusion defects), heart (myocarditis, arrhythmias, ischemia), lungs (fibrosis, thrombosis, perfusion abnormalities), CNS (neuroinflammation, Gray matter loss, BBB disruption), PNS (neuropathy, dysautonomia/POTS-like), GI (dysbiosis, barrier impairment), hepatobiliary/pancreas (injury, new-onset diabetes), kidney (progression to CKD, thrombotic microangiopathy), 5. Evidence draws from imaging (e.g, CMR showing up to 78% cardiac involvement post-mild infection), histology/autopsy (viral presence, thrombi, NETs), and large meta-analyses (e.g, 97 million people showing elevated autoimmune disease risk), 6. Challenges include heterogeneous case definitions (WHO, NICE, etc.), limited biomarker access, surveillance gaps post-2022, and reinfection contributions. ➡️‼️In short, this isn't just another review, it's a patient-powered wake-up call exposing Long COVID as one of the most complex, widespread, and under-addressed biological crises of our era. ‼️So, Long COVID represents a profound, enduring public health crisis driven by persistent viral and immune-mediated multi-organ destruction, with no resolution in sight without urgent, scaled-up research and intervention. #WAKEUP #AvoidSars2 #AvoidReinfections