#MEActionNC

We’re celebrating these wins at a Virtual Blue Sunday Tea Party for ME on 5/17 @ 1PM ET.  All invited! Tea & cozy fun.   Join us! (Optional $5 donation, no box req’d, See $30 tea/treat box info below.) #BlueSunday #mecfs #MEAction #MillionsMissing 2/3 meaction.net/event-details/…

🤩 Let's celebrate all 23 second wave orgs who have signed the open letter to @rcpsych! 😍 ME/CFS San Diego 🎊 Bury & Bolton ME/CFS & Fibro Support Group 🎈 Long Covid Aoteroa (New Zealand) 🪅 Alianca Millions Missing 🎏 Long Covid Schweiz 🎖️ Cambridge ME & Long Covid Support

International ME Conference Week begins 25 May Save the dates also for 2027 investinmeresearch.org/meconferencewe… #mecfs #IMECW2027 #research

Delighted to get this coverage in the Sunday World, one of the newspapers with the largest readership in Ireland #MEcfs #PwME

George Monbiot describes the treatment of #MECFS as “The Greatest Medical Scandal of the 21st century”. Repost of the introduction to my 27-minute explainer video for #MEAwarenessMonth — now optimised for phones.

This is tomorrow. Still time to register for the zoom social.

Blue Sunday ,The Tea Party for M.E., is tomorrow - May 17, 2026! Everyone is invited! A huge thank you to Anna Redshaw for creating this event. More info: the-slow-lane.com/blue-sunday-20… @meactionNC invites everyone at 1 pm. meaction.net/event-details/… #BlueSunday202 #TeaPartyForME2026

Real wins. Real relationships. Real next steps. Help us keep fighting for the healthcare our community deserves. We have a NEW $7,000 matching grant to help us fund our advocacy. Every $ will be matched from now UNTIL MONDAY. Give here: millionsmissing.funraise.org/fundraiser/adv… #MECFS

Today is ME Awareness Day. We’re furious about the reality of life with this illness. ME/CFS is serious, a complex disease leaving 3/4 of victims disabled, yet patients are not recognized as “medically frail." TY @NC_Governor @JoshStein_ & Raleigh Mayor Janet Cowell for...

The advocacy we’re rolling out is phenomenal & can only be done with your support! millionsmissing.funraise.org #MEAction is meeting with HHS to fight for Medicaid & we’re meeting w/ NIH to discuss funding for the ME/CFS Research Roadmap. Then Congress alongside #NotJustFatigue!

This week, advocate Rebecca Groble shared information about ME/CFS at the Evanston Public Library in honor of World ME Month. Thank you, Rebecca, and health librarian Irene, for doing your part to educate people about this disease. Visibility matters! #WorldMEDay #UnitedForME

Thank you to all the individuals and organizations, doctors, nurses, researchers, family, allies, working to help those with ME live with more dignity, acceptance, and quality treatment and testing.

Above all, my heart goes out to those who suffer from ME and their families. [❤️]

A letter of support from @NC_Governor @JoshStein_ .

NOW, THEREFORE, do I, Janet Cowell, Mayor of the City of Raleigh, North Carolina, do hereby proclaim May 12th, 2026 as ME AWARENESS DAY

WHEREAS, May 12 is internationally recognized as ME Awareness Day, honoring the strength and resilience of the ME community and highlighting the need for increased understanding, research investment, and comprehensive systems of care and support;