PossAbility: ME, Long COVID & Work

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PossAbility: ME, Long COVID & Work

PossAbility: ME, Long COVID & Work

@mypossability

Disability specialists with Long Covid & ME researching accommodations, job modifications, assistive devices & supports to help those who are able stay working.

Canada Katılım Eylül 2022
526 Takip Edilen247 Takipçiler
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PossAbility: ME, Long COVID & Work
PossAbility: ME, Long COVID & Work@mypossability·
Lots of work #accommodation ideas too. - flexible schedules - easily accessible rest areas - ergonomic furniture/devices - mobility aids - meeting recordings/notes - employer education re. non-trad illness - parking permits - support #LongCovid #MECFS #MEandwork #longcovidwork
Tom Kindlon@TomKindlon

🧵 "Accommodating University Students with ME/#CFS" I liked this. Has lots of ideas (though only some would likely be instigated in any one case). US authors but many/most of the ideas would translate elsewhere Also useful for other #spoonies meaction.net/wp-content/upl… #MEcfs 1/

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PossAbility: ME, Long COVID & Work
PossAbility: ME, Long COVID & Work@mypossability·
Join us for the 2025 International Forum on COVID Rehabilitation this Friday, April 25 - FREE @mypossability will be part of Panel Discussion 2 @ 3:40 pm ET Challenges, Tips and Strategies for Return to Work with #LongCovid Registration for FREE Virtual Forum still open!
Rehabilitation Science Research Network for COVID@UofTCOVIDRehab

Don't miss out on the 2025 International Forum on COVID Rehabilitation next week! In-person registration closes on Thursday April 17 and online registration closes on Thursday April 24. Register at forms.office.com/r/9GUY7HJ25For or visit rehabcovidnetwork.med.utoronto.ca/2025-internati… for more information.

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PossAbility: ME, Long COVID & Work
PossAbility: ME, Long COVID & Work@mypossability·
Guidelines for a Sustainable Return to Work with #LongCovid The Society of Occupational Medicine UK (SOM UK) has developed excellent resources for #returntowork See the latest from Occupational Medicine Specialists and #pwLC . Includes links to other resources. #RTWLC
SOMCEO@somceo

Long COVID- The Society of Occupational Medicine has produced detailed guidelines to try and achieve a sustained RTW, aimed at managers, employers, occupational health professionals and workers. academic.oup.com/occmed/article… @LongCovidAP @LCCampaign @LongCovidSOS @LongCovidNL @SOMNews

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Scott Simpson -- Remedies Online Counseling 🏳️‍🌈
Scott Simpson -- Remedies Online Counseling 🏳️‍🌈@RemediesPodcast·
This morning as Gladys and I set out for a walk, she found a big twig on our front yard to munch as I'm standing watching her chow down, I'm ruminating on my father's battle with stage 4 #cancer and his decision to proceed with #MAiD, when a young man stops about a metre away and stares into our front yard I wonder if he's sees a rabbit like a mom and her kid did last week but he seems to be staring at our big maple tree. After a minute, I ask him what he's looking at he says "The tree" then says "I'm meditating and it's my tree of gratitude" I said "Oh, well then I'll leave you to it" For the next few minutes Gladys continued to consume the maple tree twig and the young man continued to meditate about the maple tree and I felt grateful to have Gladys and to the young man both gently reminding me to appreciate the moment because life is fleeting.
Scott Simpson -- Remedies Online Counseling 🏳️‍🌈 tweet media
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PossAbility: ME, Long COVID & Work
PossAbility: ME, Long COVID & Work@mypossability·
In Edmonton, Alberta, Canada for the 2nd Cdn Symposium on #LongCovid @LongCOVIDWebCA Will be participating in Friday mornings roundtable discussion on Long COVID & Work with Jessica DeMars @BreathewellPT Erin Branton Quentin Durand-Moreau #longcovidandwork @JCeoltaSmith
Long COVID Web@LongCOVIDWebCA

We are less than 24 hours from launching the 2nd Canadian Symposium on Long COVID: Affecting One, Affecting All. To learn more and register, please visit: bit.ly/3zUozcy #LongCOVID #LongCOVIDWeb #LCWSymposium

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PossAbility: ME, Long COVID & Work retweetledi
Long COVID Web
Long COVID Web@LongCOVIDWebCA·
Join us in Edmonton on October 3-4 for the 2nd Canadian Symposium on Long COVID: Long COVID – Affecting One; Affecting All Find more info & register here: app.groupize.com/e/2nd-canadian…
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PossAbility: ME, Long COVID & Work retweetledi
Daniel Missailidis, PhD
Daniel Missailidis, PhD@DanMissailidis·
If you are a researcher entering the LC or ME/CFS spaces: please have patients tear apart your study protocols beforehand. Otherwise you are bound to do things like expose someone with multiple chemical sensitivity to strong perfume, or send somebody fogged out too much to read.
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PossAbility: ME, Long COVID & Work
PossAbility: ME, Long COVID & Work@mypossability·
Activity. Rest. Activity. Rest. Best advice I've got. Thanks Dr. Allison Bested of @NSU_INIM #mantra #mecfs #pwME #ME #LongCovid #pwLC #energylimitingconditions #postviralillness
🕸️Dr.T, PhD@chydorina

For me personally what seems to make the most difference in terms of triggering PEM is constraining how long i engage in an activity. How 'long' I let my HR peak and remain 'too high'. I can walk if I rest/sit every few minutes. I can cook if i do it in 5min chunks and sit every few minutes. Once I start an activity keeping HR low by actually taking breaks, sitting down, waiting for it to decline and then re-starting - has actually had the greatest payoff in terms of function.

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PossAbility: ME, Long COVID & Work
PossAbility: ME, Long COVID & Work@mypossability·
An oldie, but goodie!
shelley-lee waller@shellchat

@colocha_rachel My wise OT. “If you cannot safely & repeatedly do the thing, then no, you cannot do this thing.” If choosing to shower means giving up leaving the house that day, you can’t do the thing. It’s NOT about doing a thing - it’s abt the body’s failure to recover from doing that thing!

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Sabrina Poirier (On Hiatus) 🇨🇦
Sabrina Poirier (On Hiatus) 🇨🇦@Sabrina_Poirier·
I often have to explain how a #biopsychosocial or #BPS approach harms the #MyalgicEncephalomyelitis and #ChronicPain communities. For us, it is used against us to place blame and shift responsibility. Maria does an excellent job in a few tweets of explaining it.
María Richardson@_diatoma

BPS, but drop the B and misinterpret & weaponize the PS. #GreatestMEdicalScandal #MECFS #LC As @marydimmock @mfairma explain: "The biopsychosocial theory has been touted as avoiding the “mind-body duality” that can lead to a discounting of social and emotional factors..." (1/3)

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PossAbility: ME, Long COVID & Work
PossAbility: ME, Long COVID & Work@mypossability·
🚨Resource: #LongCovid Manager's Guide #RTW 🚨 som.org.uk/sites/som.org.… "Often #pwLC need: - a very slow, gradual return to work - an individualized, regularly reviewed Return to Work Plan - Managers need information and advice..."
crr@crr7310

Today SOM releases a package of publications and advice about long Covid and work. 1.updated long Covid for Leaflet managers leaflet.). 2.1 page infographic 3. themed issue of occupational medicine journal @SOMCEO @SOMNews 1/ som.org.uk/support-people…

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PossAbility: ME, Long COVID & Work
PossAbility: ME, Long COVID & Work@mypossability·
@LudmilaPraslova Such an important conversation. Little has been written about how to accommodate @pwLC & @pwME at work. It's not the 'typical" #rtw employers are used to. They need guidance for a very, very gradual return to work & supports/strategies to sustain work. Thx for writing this!
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PossAbility: ME, Long COVID & Work
PossAbility: ME, Long COVID & Work@mypossability·
@workaccommodations is the missing piece in #longcovid research. @AngelaMCheung @EzeugwuVictor @UofTCOVIDRehab @KellyOBrien25 @iwhresearch @herlifeinpixels @LisaAMcCorkell @ahandvanish @JCeoltaSmith @WorkingWithLC @OT_Skiff @SimonDecary @ScribblerPen @somceo @LongCOVIDWebCA
PossAbility: ME, Long COVID & Work@mypossability

🚨VERY important #LONGCOVID & WORK article! ACCOMMODATIONS for return to work/sustaining work #pwLC Quiet workplace "Spoon Planning" Ergonomic workstation Talk-to-text software Earplugs/noise cancelling headphones Anti-glare screen Scent-free Wheeled bag Scooter Mtg transcript

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PossAbility: ME, Long COVID & Work
PossAbility: ME, Long COVID & Work@mypossability·
🚨VERY important #LONGCOVID & WORK article! ACCOMMODATIONS for return to work/sustaining work #pwLC Quiet workplace "Spoon Planning" Ergonomic workstation Talk-to-text software Earplugs/noise cancelling headphones Anti-glare screen Scent-free Wheeled bag Scooter Mtg transcript
Katie Bach@kathrynsbach

Latest piece: Ludmila Praslova, Beth Pollack, and I wrote a guide on #LongCovid accommodation and #inclusion in @HarvardBiz latest #bigideas issue. No shock: inclusive practices that are good for chronically ill employees are good for everyone. hbr.org/2024/05/long-c…

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Keşfet

@UHN @AHS_media @CanCovSoc @RougeMatisse @LongCOVIDWebCA @RemediesPodcast @AngelaMCheung @JCeoltaSmith