WorkingAndNotWorkingWithLongCovid

1/ We will add here links to resources for workers and stakeholders on #WorkingWithLongCovid some we were involved in. These are mainly U.K. but some have transferability to other countries. Please share and tag us to other resources 🐝 #LongCovid

5/ Healthcare workers have been significantly affected. Many became ill while caring for others — with lasting impacts on their health and ability to work.

Long Covid groups say its findings validate the experiences of millions living with #LongCovid. However, they emphasise that many of the systemic issues identified in the early stages of the pandemic remain unresolved 6 years on, leaving many patients without the care they need.

Press release Long Covid groups are urging urgent action following the @covidinquiryuk module 3 report, which confirms widespread and ongoing failures in healthcare. #LongCovid #CovidInquiry #Covid19 #LongCovidAHPs

Tribunal dismisses #DWP appeal and tells it to release ‘worst case scenario’ report on claimant errors #BenefitDeaths #InformationRightsTribunal #FreedomOfInformation disabilitynewsservice.com/tribunal-dismi…

Any journalists covering Module 3 of the Covid Inquiry should really look at this. The sheer incompetence and arrogance of decision makers during one of the most horrendous times we’ve lived through, and they still aren’t acknowledging or following the evidence… @covidinquiryuk

If you are a healthcare worker with Long COVID, please fill out this survey twu.qualtrics.com/jfe/form/SV_0j…

My new research is out "Overview and Pathophysiology of Long Covid" I provide an updated overview of key concepts, terminology and epidemiology of LC. I also offer an analysis of key mechanisms of pathology and multi-organ involvement in #LongCovid mdpi.com/2673-8112/6/3/…

@barryjmjones @SafeDavid3 @karamballes @cjayanetti @BylineTimes @thenerve_news @hazardscampaign @cv_cev @1goodtern @_CatintheHat @LongCovidAdvoc @LC_Physio @DisRightsUK @Dis_PPL_Protest @WorkingWithLC @KeyWorkerPetUK @BigIssue @johnpringdns @DrFrancesRyan @RachelCDailey_ @RITB_ And this disabilitynewsservice.com/dwp-hides-scor… via @johnpringdns

@barryjmjones @SafeDavid3 @karamballes @cjayanetti @BylineTimes @thenerve_news @hazardscampaign @cv_cev @1goodtern @_CatintheHat @LongCovidAdvoc @LC_Physio @DisRightsUK @Dis_PPL_Protest @WorkingWithLC @KeyWorkerPetUK Some other things FOI requests have helped disclose is that disability welfare cuts in PIP and UC affect mostly older people (40s, 50s, 60s) including workers, rather than "young NEETs", and other DWP misinformation. @BigIssue @johnpringdns @DrFrancesRyan @RachelCDailey_ @RITB_

The report’s findings provide important validation for the experiences of the millions of people living with Long Covid. However, many of the systemic issues identified in the report from the early years of the pandemic remain unresolved six years on.

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Have your say on the PIP review youtu.be/bPvM7zFbMfc?si…

Things FOI requests have helped uncover include things such as the misinformation about who is affected by disability welfare cuts (older people most of whom have worked, not "young NEETs") and, as revealed days ago by CATA, evidence concealed from the Covid inquiry @barryjmjones

Oh dear, it's almost as though some FOI requests have disclosed some things that ministers did not want disclosed. The backlog, of course, ft.com/content/2c34ad… UK considers FOI clampdown as requests soar

McFadden’s speech suggests ministers are set to renew efforts to pressure young disabled people into work #DWP disabilitynewsservice.com/mcfaddens-spee…

DWP hides scores of emails that discussed its role in claimant deaths #DWP #BenefitDeaths #RightOfAccessRequest disabilitynewsservice.com/dwp-hides-scor…

New Access to Work applicants being told they could have to wait 37 weeks for decision, MPs hear #AccessToWork #DWP @CommonsPAC disabilitynewsservice.com/new-access-to-…

🧵 Today the #LongCovid groups call for urgent action in response to the #CovidInquiry Module 3: Healthcare report which confirms widespread and ongoing failings. @LC_Physio Long Covid SOS Long Covid Support Long Covid Kids Longcovidsos.org/post/covidinqu…

1/ The UK Covid-19 Inquiry’s Chapter 8 confirms: Long Covid is real, serious, and for some, life-changing. But it also exposes systemic failures in how patients have been treated. 🧵 #LongCovid

I know a lot of people are feeling sceptical about the PIP review consultation, and I understand why. But we can’t disengage from a process that is asking for our lived experience. I’ve been feeding into this for months through the MS Society and wider charity and Disabled People’s Organisation work. That evidence doesn’t disappear, it forms part of the collective voice going into this review. Not everyone has the capacity to complete a full consultation response. That’s why DPOs and charities gather experiences and submit on behalf of many. That still counts. That is your voice. From a change management perspective, this is exactly how systems start to shift, through collective evidence, not silence. Is it perfect? No. Is the timescale tight? Yes. But opting out completely means others shape the narrative without us. However you engage directly or through organisations you are part of this. 🔗 Link in Wheelie Links above #PIPConsultation #DisabilityRights #HaveYourSay #MSAwareness #DisabledVoices