Rachel R

@Michigannurse @Michell81009841 It's happening more and more at the moment 😢

The relief that hubby isn't suffering anymore has passed, the bubble of 'thankduckitsover' is finished. Now I'm just fed up that he's not here anymore. I miss him 😔

@GeneralCJ77 Love the glass! Cheers! 🍻

@lunamaud3 @bsw5020 I would have reacted with a 'wow' emoji but not an option! Seriously?!

@bsw5020 I left a Facebook group as they refused to accept any comments that said ALS MND was terminal.

Hypothetically, if one group is responsible for much of the misinformation that causes the ALS community to be divided, what steps would you take?

@JoanneAngell5 He's a smasher! Well done Tom!

Exceptionally proud Mum of all Tom’s hard work.

@lunamaud3 @AasmahMir @lucypgeridoc @mndassoc @MNDANorWave Ignore it. We still have an iPad to send back that they sent a reminder for within a fortnight then contacted the speech and language to get them to ask us! It's on my to do list!

How do you keep smiling when your heart is broken? I’m now moving into the post death system. Everything is accusatory “you have to return equipment within 28 days” it took you 3months to deliver the wrong thing! @AasmahMir @lucypgeridoc @mndassoc @MNDANorWave

@lunamaud3 @douglasadams @mndassoc @MNDANorWave @DioceseNorwich @TimesRadio @AasmahMir I'm so sorry to hear this, I hope you're doing ok and that it was peaceful at the end. Sending hugs xx

16-11-58 to 24-08-24 “so long and thanks for all the fish” ⁦@douglasadams⁩ ⁦@mndassoc⁩ ⁦@MNDANorWave⁩ ⁦@DioceseNorwich⁩ ⁦@TimesRadio⁩ ⁦@AasmahMir⁩

@katearnold90 Bleugh! Hope your nose has recovered!

Help. On a rail replacement bus and the man across the aisle has: 1. Watched TikTok non-stop with no headphones so we can all listen 2. Taken his shoes off so his stinky-socked feet are free When did it become acceptable to behave like this?!

@JoanneAngell5 Well done Tom!

Lovely sunny day for Tom’s graduation.

Last night at second french campsite before moving on tomorrow and considerably more tanned, relaxed and pickled than I was 11 nights ago! #caravanlife #camping

@katearnold90 @thosethatcan You could always get L to decorate some for you?

@thosethatcan A new tooth and 2 new tyres. Getting old is boring, I just want sparkly shoes.

Why being a grown-up is overrated #3890 Things my money has disappeared on this month: - Gutters - Tyres - Insurance - Tax - White goods repairs - Wardrobe to replace broken one What exciting things have drained your account? 1/2

6 months today 😢 We're doing ok but I miss him with every fibre of my being.

@shirley_cocks I'm so sorry to hear this. I'm nearly 6 months in from the same loss so I can empathise with all the emotions you will feel over the coming weeks and months. Sending love xx

Heartbroken to have said goodbye to my beloved husband who died yesterday having been cruelly ravaged by Motor Neurone Disease. His wishes to stay at home were fulfilled and we are thankful for the support we had .#MNDA 💔

@bikerwise Yep 🫣 had an opportunity as new candidate but no one campaigned particularly effectively so new face but same old, same old 🤦🏼‍♀️

Whilst I feel euphoric for the country as a whole, I am gutted about our local result.

Hubby's work colleagues are raising money for the @mndassoc doing something he loved. @atkinsrealis your company along with #accesstowork enabled Paul to continue working until 3 weeks before he died. It gave him an identity beyond #mnd. Thank you 🥰 justgiving.com/page/atkinsrea…

@donnajsalkeld Congratulations! How can he be that grown up already? 🤔😆

@NorthantsCodger Be careful, at some point they will want it back. When my husband died they contained paying his for another 2 weeks afterwards but very quickly sent a letter requesting it back. Luckily I was prepared and it was only a relatively small amount but could have been a real problem.

Apart from us wanting an answer, they continue to pay our PIP at the old level. Potentially this is costing the state more than it needs to.

@IsabelOakeshott I've read your article in today's @Telegraph about the delays with your Probate and totally sympathise. My wife's PIP is up for renewal so submitted the forms. Previously had a decision in a couple of months. This time, 4 months and still waiting.

@mrscmway Me too, just taken no 1 to his this evening as well. He's wearing his dad's bow tie and cummerbund, looks so smart and I'm incredibly proud of how he's managed over the exams. Feeling a bit meh now though 😢 sending hugs x

It’s prom night. Our youngest child is amazing and brave and beautiful and I just wish he was here to see this.

It's a truly beautiful place where hubby is buried. I've come here for a chat with him as kids are both out. Back to work on Monday, I've got to get on with the next chapter. But damn, it's hard 😢

@geraintjohn_ Well done and sending hugs. I did the hubby's stuff within a week, I knew it would be too hard the longer I left it. But now left with a few things I couldn't bear to part with that no1 child can wear, but it chokes me up when I see him in it 😢

The dust is a reminder that it’s almost been two years since she floated away. It’s choking me and dust is not welcome.