Scott Leezer

Met with Christine Wenzl and Cardiologist Dr. Jonathan Cramer from the Adult Congenital Heart Association to discuss the unique challenges faced by adult patients born with a heart defect. Thank you for your important work.

Last week, @SenatorDurbin met with ACHA on Capitol Hill to discuss building support for the Congenital Heart Futures Reauthorization Act (CHRFA) of 2024. This week, you can keep the momentum going by attending Wednesday’s webinar to learn more about CHRFA, what it means for the #CHD patient and provider communities, and how to advocate for its passage. Visit ow.ly/Kgey50QKL6j to learn more and register—we hope to see you there! #CHDAdvocacy #CHDAwareness #CHDCare4Life

It was a pleasure to meet with my old boss yesterday about th importance of continued #CHD research & education funding at CDC.

For every extra year on Medicaid, a child earns 0.5% more annually in adulthood, the CBO says. The implication? Medicaid is both cheaper and cutting it more expensive than thought. Tax Cuts Don’t Pay For Themselves. A New Paper Says Medicaid Might. huffpost.com/entry/medicaid…

@CrackedSidewlks I shared this picture FIL… he replied… Love it. I had a classic MU ND t shirt years ago. Kept it good a long time. Was a hand with MU on it choking a chicken with an ND logo. Long gone but maybe I can find a picture online. It would be 1982 ish vintage.

Breaking out The Classic t-shirt from 1988. Thanks to all who funded our beer budget at the time. Ring out Ahoya!! #BeatND #MUBB

This week I spent a night in-patient for a pacemaker replacement and had someone give me a Uber Eats gift card. I can’t tell you how appreciated that simple kindness was and how much it went towards at improving my stay.

And if you would like to contribute to the in-patient Christmas dinner fund to reach more families, please DM me too.

This Christmas I plan to buy 10 in-patient #CHD families and #achd patients dinner through Uber Eats gift card. If you’d like to nominate a family who you’d like to brighten their holiday season, please DM me with their details. #congenitalheartdisease #chdaware #1in100

@MendedHearts @MLH_CHD hosted >30 of its board members, leaders and staff in Albany, GA for its annual meeting, awards, and training. I facilitated an advocacy training for the orgs’ ACTION NETWORK. @curastrategies is excited to continue to help grow the program.

Mystery solved. Equipment fire. Will land in Baltimore nearly 4 hrs after scheduled arrival. I’m just glad I wasn’t one of the ones diverted to Pittsburgh. Ouch! fox5dc.com/news/faa-issue…

Ground stop heading from ATL to #BWI. Pilot says a cable was cut at DCA so no one is allowed in or out of #DCA #BWI or #IAD @nbcwashington @DCNewsNow @fox5dc @wusa9 @NewsChannel8 can you confirm?

People have asked me, “What’s the purpose of an ACHD registry?” 👇👇 @Leigh_KC does a great job explaining the vision and purpose of the @ACHD_CHI in her most recent HeartDialouges newsletter.

It was an incredible experience participating in an all-day workshop working towards building a roadmap to provide better maternal care research, care, and outcomes for women with ACHD. More to come!

We're on the Hill today with @Honor_The_Gift urging members of Congress to sign a letter addressing a recent billing article limiting Medicare patients' access to non-invasive tests for organ rejection in transplant patients. Learn more here: ow.ly/6B8i50OQKP1

New Medicare guidance on the coverage of post-transplant tests has led health providers to cancel orders and left patients in the lurch.⁠ trib.al/JjGqcBw

"Fighting for the least, the lost, and the left behind" - Minority Leader Hakeem Jefferies

Mayor McNamara @tmcrkfd Did you see that the Rockford Ready campaign is up for Best in Health Equity by PRWeek? #hometownproud

ACHA staff and volunteer leadership were back on Capitol Hill this week meeting with Senate and House offices regarding workforce legislation impacting the ACHD community. #chdadvocacy #chdawareness #achalive #chdworkforce

Today’s Hill advocacy was personal. We had great conversations with 8 House and Senate offices advocating for ACHD/CHD research and care. Thank you @ACHA_Heart for entrusting CURA as your advocate!

We are so excited to share that CURA has won @Provoke_News Boutique Agency of the Year award! It has been a great evening in NYC at the award ceremony! This wouldn't be possible without all of our great clients! #SABREAwardsNA #SABREAwards