Dr Ahmad Al-Khleifat@AhmadAlKhleifat
🙌 Grateful for all contributors to our #ALS #MND survey, now in its second report!
📊 Key non-motor symptoms: cold limbs (60.4%), appetite loss (29.7%). Evening coldness in weak limbs and shock-like pain reported.
👥 Cold limbs in weaker limbs suggest immobility or autonomic neuropathy. Research is crucial. Interventions may include physiotherapy, passive movements, and gabapentin.
🩹 Pain, often electric or cold, affects 58% of pwALS, mostly moderate. Itching is unique. Nuanced strategies are needed for pain management.
🍽️ Loss of appetite links to mood and extended eating time; medication shows no significant impact. Strategies should prioritize mood improvement and support in eating. Nursing care is crucial.
✨ It's crucial to integrate non-motor symptom management into standard ALS care. Further research is needed for tailored interventions.
open access link : tandfonline.com/doi/full/10.10…
Huge thanks to our funders
@mndassoc @alsassociation @DarbyRimmerMND
@AliShojaie_KCL @AmmarAlChalabi
