Sasha

One year since ME Australia met with Health Minister @greghuntMP, asking for biomedical research funding & new clinical guidelines. @MyalgicE invited Alison Hunter Memorial Fdn, Hummingbird Fdn for ME, @emergeaus and Prof Paul Fisher @latrobe. #pwME meaustralia.net/wp-content/upl…

@RogueM2020 THC has a pretty established relationship with short term memory loss so I’ll try moving to more CBD.

@sashanimmo Anyway to test whether that’s the contributing factor?

What helps #pwme with your cognitive impairment?

@DrBradMcKay @TomPMarshall @AustSkeptics @SkepticZone @TomPMarshall Why are you retweeting this years later? Brad admitted he was wrong about graded exercise and CBT being useful treatments for ME and CFS. No agenda, just scientific evidence.

@sashanimmo You will always hear bad advice if you cherrypick information to suit your own agenda @AustSkeptics @SkepticZone

@libbyboone Thanks Libby, I appreciate the advice. I feel like I should know and once did know but the knowledge can’t be retrieved from my brain.

@sashanimmo Oh that's too bad Sasha. Ugh. Yeah, maybe a delicate kind of dip a toe in the water with antivirals and see how you go.

@ezchili Thanks for the reminder. This is why asking is so valuable! I have vials and needles but have to wait until I can get back into my house. Will swig sublingual until then.

@sashanimmo Mecobalamin B12 injections. When I started them it was like getting a piece of my brain back. Absolutely what has helped me the most with cognitive impairment. #pwME

@RogueM2020 That’s good! My CBD has THC and I fear that’s contributing to the problem.

@sashanimmo I have found that CBD oil helps with brain fog especially and concentration issues. I used it a lot when taking my PhD classes and will again in the future when I return to school to write my dissertation. My old naturopath recommended.

@HealThruHistory Thanks.

@marilyngavrano1 So many alarms set on my phone! You are right about routines, I’m itinerant at the moment so that is taking a big toll.

@sashanimmo Routines, post it notes, colour coding, to do lists!

@libbyboone Glutathione IV didn’t seem to help my brain much and unfortunately I’m now sensitive to it (burning in my veins). Arghhh! Perhaps I should revisit antivirals.

@sashanimmo Nutritional IV's with a push of glutathione. It's like waking up into clarity but very expensive. IV saline alone does wonders. High-dose antiviral meds.

@chaostocosmos I’d forgotten about that, thanks.

@sashanimmo Severely reducing my consumption of carbs, has been the biggest help to allowing clearer thought.

@CarmenTorija2 I’d like to order some online, seems I’m out 🙂

@Zoe__V Wonderful! 💐

Monday motivation ✨🌻

TW // alcohol, sobriety. Girls night last night was my first real test since I decided to stop drinking. And I’m happy to report that it ended with the clock ticking over to 3 weeks alcohol free.

@_memyselfandwhy Do we get a discount for bulk orders?

hello I would like 1 health please

@TimHuttonAu Come on, that’s not fair. We also cover pathology collection, nurse visits and dealing with 5 different pharmacies.

@itmePZ Thanks for the reminder to get that off the shelf and actually take it. LDN is great. I’ve had to move places three times in the last three weeks and I’m sure that’s not helping.

@sashanimmo I'm finding LDN helps me feel a bit more clear minded, but I wouldn't say I'm sharp (which I would have described myself as before...) I'm also taking acetyl l carnitine in the morning which is meant to help with cognitive function but not sure of effect yet.

@KCSteckel Thanks Colleen, good advice. Vit D is probably what I’m lacking…and acceptance! Two litres of IV fluids pumped into me a few days ago 🙂

@siobhansimper your sewing is great! The post on the support worker paradox is so accurate.

@TraceySpicer I wonder if @GregHuntMP thinks of 2019 and hearing me explain my post-viral disease, scientists explain the urgent need for research funding for ME, shaking my hand and assuring me of $9m funding, then only giving $3m. Instead more and more suffer. #pwME

Every word of this.

@sibylle_berlin I have a lot of feelings about this, going for a walk outside with friends would be wonderful. #pwme

@madeleinedaisyr This is appalling and yet unsurprising. I hope treatment goes well and you recover quickly and completely. Such a stressful time to be negotiating treatment, hope you have a good support network. Sending you best wishes.

i tested positive for COVID today and have chronic illnesses that compromise my immune system but because ME/CFS and Fibromyalgia are not officially listed as immune system conditions, i don’t qualify for PBS and have to pay $1000+ for anti-viral medication