Cure MND

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Cure MND

Cure MND

@CureMND

Six people a day die with Motor Neurone Disease (#MND) / UK. @MHRAgovuk & @NICEcomms should conduct an Accelerated Review for existing treatments.

Oxford شامل ہوئے Kasım 2019
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Shah Minokadeh, M.D.
Shah Minokadeh, M.D.@MinoShah·
Remembering my friend Elsie today. Elsie died while fighting so hard for a chance to access #Nurown to see if she would also respond. The broken system failed her despite a 100% fatal #ALS diagnosis. They left her to die. #BloodOnYourHands #PeterMarks @FDACBER @DrWoodcockFDA
elsie johnson@elsiejo22955940

pALS on NUROWN-WHEELCHAIR TO STANDING pALS DENIED ACCESS TO NUROWN-STANDING TO WHEELCHAIR SAME WINDOW OF TIME

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Shah Minokadeh, M.D.
Shah Minokadeh, M.D.@MinoShah·
It supports a rapidly growing expanded access program. Its leaders are committed to URGENTLY finding treatments & cures. ALL DONATIONS go to research/treatments, NOT salaries. PLEASE encourage fundraisers, friends & family to donate.🙏🙏 #HealeyHope giving.massgeneral.org/donate/healey-…
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Shah Minokadeh, M.D.
Shah Minokadeh, M.D.@MinoShah·
I still hear other orgs brought up. This can't be stressed enough!!! The CLEAR LEADER for #ALS treatment access/research is the @MGHNeurology Healey Center.  NO OTHER ORG COMES CLOSE. Uniting behind them advances ALS at all trial sites across the country. #PlatformTrial
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MND Scotland
MND Scotland@MNDScotland·
Approaching ✨50,000✨ If everyone who's signed our petition with @mndassoc and @MNDoddie5 got one other person to sign, we'd be a step closer to securing a vital debate in the UK Parliament. #United2EndMND Let's make it happen! 👇
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Cure MND
Cure MND@CureMND·
@suvankarpal @EuansCentre @MeritCudkowicz Dear Dr Pal Thank you for the initiative. Is the first drug indicated below Namenda / Namzaric (Memantine & Donepezil)? What is the second drug on the platform trial? The first drug is already used to improve the (1/3)
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Brian Wallach
Brian Wallach@bsw5020·
I cannot wait for the day that enough people are invested in the fight against ALS that a tweet saying “end ALS” can go viral alongside tweets about politics. On that day, this guy with ALS will get out of his wheelchair and dance like no one is watching.
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Dan Walker
Dan Walker@mrdanwalker·
Still wrapping my head around the fact that Kev Sinfield is a couple of quid away from raising £2.5 million for his friend @Rob7Burrow. There are plenty of examples of poor leadership around but Kev is strong, loyal and selfless. Once a captain, always a captain. What a fella👏🏻
Dan Walker tweet media
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