Elizabeth McCormick

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Elizabeth McCormick

Elizabeth McCormick

@emmccormick2005

Hope is a verb. Hope is the only alternative in the face of uncertainty. Today more than ever. Mobilize. Fight. Make right real.

Katılım Haziran 2012
580 Takip Edilen446 Takipçiler
Elizabeth McCormick retweetledi
Seth Abramson
Seth Abramson@SethAbramson·
RETWEET if you consider Rep. Adam Schiff an American hero.
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Nicole Cimbura
Nicole Cimbura@nicolecimbura·
Grateful for the leadership of @RepAnnaEshoo & her fabulous staff who lean in & help the ALS community.
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Shah Minokadeh, M.D.
Shah Minokadeh, M.D.@MinoShah·
My family and I are grateful for you @RepAnnaEshoo.🙏❤️ I, like @jamieroseberryy & so many others, have suffered horribly for years while knowing that #NurownWorks, but unable to have access & hope. We NEED Congress to advocate on our behalf & DEMAND that the @FDACBER exercise regulatory flexibility & grant #Nurown Accelerated Approval with a Phase 4 postmarketing study. @DrCaliff_FDA HORRIFIC 100% FATAL ALS IS NOT RARE & the incidence is rapidly increasing. #EndALS @SenAmyKlobuchar @SenatorWicker @SenKevinCramer @JohnBoozman @SteveDaines @RepStephenLynch @RepMariaSalazar @RepJenniffer @RepPaulTonko @RepChuck @RepDonBacon @Congressman_JVD @RepDavids @kevinmullin @RepChrisPappas @SenRickScott @RepGuthrie @RepLarryBucshon   @SenBillCassidy @SenMullin @lisamurkowski @SenatorBraun  @RepJasonCrow @TeamCalvert @RepBrianFitz @RepTerriSewell @ChrisCoons @RepAndyHarrisMD @DickDurbin @SenJohnThune @RepDonBacon @SenSanders @RepMMM @RogerMarshallMD @RepDianaDeGette @RepMikeQuigley @janschakowsky @rosadelauro @RepJohnCurtis @DorisMatsui @RepBarragan @RepAngieCraig @RepKimSchrier @RepLoriTrahan @cathymcmorris @PattyMurray
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Elizabeth McCormick
Elizabeth McCormick@emmccormick2005·
Thanks everyone for the birthday wishes. It has been a great day surrounded by people I love and who love me back. Can't ask for more than that. Grateful for the chance to celebrate another year of this great life. #NotTodayALS
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car128
car128@crayne128·
Please help us @SecBecerra. #NurOwn has shown real world evidence, Nfl biomarker, and safety data. We are #dyingwaiting! #ALS happens to 1 in 300 people!!! The #FDA is failing us!!
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Sister Helen Prejean
Sister Helen Prejean@helenprejean·
Former Alabama governors Bentley and Siegelman: “We missed our chance to confront the death penalty and have lived to regret it, but it is not too late for today’s elected officials to do the morally right thing.” washingtonpost.com/opinions/2023/…
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Tal Gazanda
Tal Gazanda@Tal_Gazanda·
More than anything, #ALS is a heart-breaking disease that can affect anyone. They're #DyingWaiting and pleading for the approval of #Nurown because #NurownWorks. We urge @US_FDA @FDACBER @DrCaliff_FDA to listen to their pleas and take action. #EndALS. @RepJenniffer @RepDonBacon
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Shah Minokadeh, M.D.@MinoShah

39-year-old Alan died of #ALS 18 months after diagnosis, leaving behind his wife & 1-year-old son. #ALS= 100% FATAL since 1869. You/your loved one could be next. CONGRESS, help END the @FDACBER regulatory RIGIDITY. DEMAND NUROWN be granted Accelerated Approvalwith a Phase 4 postmarketing study. #NurownWorks #NurownIsSafe HORRIFIC ALS IS NOT RARE & the incidence is increasing. You're MISTAKEN if you believe that ALS can't happen to YOU. HOW MANY MORE HAVE TO DIE before the #FDACBER treats 100% FATAL #ALS with the same URGENCY & FLEXIBILITY as cancer treatments?@DrCaliff_FDA @SenAmyKlobuchar @SenatorWicker @SenKevinCramer @JohnBoozman @SteveDaines @RepStephenLynch @RepMariaSalazar @RepJenniffer @RepPaulTonko @RepChuck @RepDonBacon @Congressman_JVD @RepDavids @kevinmullin @RepChrisPappas @SenRickScott @RepGuthrie @RepLarryBucshon @RepAnnaEshoo @michaelcburgess @RepGusBilirakis @RepBillJohnson @RepRichHudson @DrNealDunnFL2 @cathymcmorris @RepDebDingell @RepMMM @RepAnnieKuster @RepBarragan @BernieSanders @PattyMurray @SenBobCasey @SenatorBaldwin @SenatorHassan @SenMarkey @SenBillCassidy @SenMullin @lisamurkowski @SenatorBraun @RogerMarshallMD @RepJasonCrow @RepBrianFitz @ChrisCoons @RepAndyHarrisMD @DickDurbin @RepMikeQuigley @janschakowsky @rosadelauro

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Elizabeth McCormick
Elizabeth McCormick@emmccormick2005·
@sandrawmarlowe @USCIS @sandrawmarlowe I spent my professional life advocating for immigrants, asylum seekers especially, before my diagnosis. That fight is as hard as the fight to beat ALS but the folks fighting for what's right in our immigration system are equally inspiring.
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Sandra W. Marlowe
Sandra W. Marlowe@sandrawmarlowe·
A week ago my husband and I added a family of 3 to our household. We're sponsoring them through a new @USCIS program. They're legally here and able to work for 2 yrs while they file for asylum. Grateful for this path for US citizens to step up and help families in crises. #ALS
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Elizabeth McCormick
Elizabeth McCormick@emmccormick2005·
Thank you @lizzo & @maya_bulmer for a night of pure joy & positivity, the perfect antidote to any day where life seems hard and sparkles feel few & far between. In case nobody told you today, you're special. #NotTodayALS
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Mayuri Om Saxena
Mayuri Om Saxena@Mayuri_Saxena·
RT if you agree there is always room for compassion! 400 compassion care kits for the homeless: 100 for each time @biogen rejected my family's plea to access life saving treatment #Tofersen, a now @US_FDA approved drug to slow and possibly halt #SOD1 #ALS. I was just in a wheelchair when we requested for #ExpandedAccess. Now I am trached, quadriplegic and on a ventilator. Clinical trials targeting life threatening diseases should incorporate Expanded Access programs into their design because there is always room for compassion. Thanks to many of you who helped make this vision become a reality. You show others what this world is capable of. #ALSAwarenessMonth
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Equal Justice Initiative
Equal Justice Initiative@eji_org·
On this day in 1954, the Supreme Court decision in Brown v. Board of Education sparked massive resistance among white communities committed to segregation. To overcome racial inequality, we must confront our history. calendar.eji.org/racial-injusti…
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KIND
KIND@supportKIND·
The Biden Admin's new asylum rule is not only contrary to domestic and international law but also goes against our values as a nation. This policy will only deepen the vulnerability of children, families, and others seeking safety
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Elizabeth McCormick
Elizabeth McCormick@emmccormick2005·
"The success of the tofersen trial teaches us a few things about ALS and ALS trials. First and foremost, the study suggests ALS is a treatable disease, and therapeutic intervention has the potential to provide clinically meaningful therapeutic effects."
L Brielmaier@BrielmaierL

Opinion | The Broader Significance of a New Drug for a Rare Form of ALS (a good review / history) medpagetoday.com/opinion/second… "indicates that a measurable therapeutic effect in ALS may take longer than just 28 weeks."

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Shah Minokadeh, M.D.
Shah Minokadeh, M.D.@MinoShah·
I created a YouTube channel for the ALS videos I put together. I don't know if these videos will make an impact, but I've tried to get those in power to see that ALS can happen to ANYONE. They need to see our terrible suffering & be moved to act. I humbly offer this channel as a way to share our advocacy. I'm happy to also send the original video files to anyone who wants to share any of them as their own. I email all of the videos to hundreds of congressional staffers, but if you have a relationship with your Congressional offices, it would be a big help to our cause to urge them to speak to the FDA about the importance of FDA regulatory flexibility for 100% fatal ALS. Perhaps one of these videos may help. youtube.com/channel/UCXKFl…
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#WOMENSART
#WOMENSART@womensart1·
Frida Kahlo with her lover, singer Chavela Vargas, 1945 #WomensArt Happy Friday all! ❤
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Governor Bill Anoatubby
Governor Bill Anoatubby@GovAnoatubby·
We join leaders of the Five Tribes in calling on the Oklahoma Legislature to overturn recent vetoes by Governor Stitt.
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