Elizabeth McCormick
4K posts

Elizabeth McCormick
@emmccormick2005
Hope is a verb. Hope is the only alternative in the face of uncertainty. Today more than ever. Mobilize. Fight. Make right real.

a blessing for the life you didn't choose Blessed are you when the shock subsides, when vaguely, you see a line appear that divides before and after. You didn’t draw it, and can barely even make it out. But as surely as minutes add up to hours and days, here you are, forced into a story you never would have written. Blessed are you in the tender place of wonder and dread, Wondering how to be whole when dreams have disappeared and part of you with them, where mastery, control, determination, bootstrapping, and grit, are consigned to the realm of before (where most of the world lives), in the fever dream that promises infinite choices, unlimited progress, best life now. Blessed are we in the after, loudly shouting: is there anybody here? We hear the echo, the shuffle of feet, the murmur of others asking the same question, together in the knowledge that we are far beyond what we know. Show us a glimmer of possibility in this new constraint, that small truths will be given back to us. We are held. We are safe. We are loved. We are loved. We are loved. And best of all: We are not alone.










39-year-old Alan died of #ALS 18 months after diagnosis, leaving behind his wife & 1-year-old son. #ALS= 100% FATAL since 1869. You/your loved one could be next. CONGRESS, help END the @FDACBER regulatory RIGIDITY. DEMAND NUROWN be granted Accelerated Approvalwith a Phase 4 postmarketing study. #NurownWorks #NurownIsSafe HORRIFIC ALS IS NOT RARE & the incidence is increasing. You're MISTAKEN if you believe that ALS can't happen to YOU. HOW MANY MORE HAVE TO DIE before the #FDACBER treats 100% FATAL #ALS with the same URGENCY & FLEXIBILITY as cancer treatments?@DrCaliff_FDA @SenAmyKlobuchar @SenatorWicker @SenKevinCramer @JohnBoozman @SteveDaines @RepStephenLynch @RepMariaSalazar @RepJenniffer @RepPaulTonko @RepChuck @RepDonBacon @Congressman_JVD @RepDavids @kevinmullin @RepChrisPappas @SenRickScott @RepGuthrie @RepLarryBucshon @RepAnnaEshoo @michaelcburgess @RepGusBilirakis @RepBillJohnson @RepRichHudson @DrNealDunnFL2 @cathymcmorris @RepDebDingell @RepMMM @RepAnnieKuster @RepBarragan @BernieSanders @PattyMurray @SenBobCasey @SenatorBaldwin @SenatorHassan @SenMarkey @SenBillCassidy @SenMullin @lisamurkowski @SenatorBraun @RogerMarshallMD @RepJasonCrow @RepBrianFitz @ChrisCoons @RepAndyHarrisMD @DickDurbin @RepMikeQuigley @janschakowsky @rosadelauro










Opinion | The Broader Significance of a New Drug for a Rare Form of ALS (a good review / history) medpagetoday.com/opinion/second… "indicates that a measurable therapeutic effect in ALS may take longer than just 28 weeks."











