WorkingAndNotWorkingWithLongCovid

1/ We will add here links to resources for workers and stakeholders on #WorkingWithLongCovid some we were involved in. These are mainly U.K. but some have transferability to other countries. Please share and tag us to other resources 🐝 #LongCovid

Dr Amir said: "Long Covid is a really poorly understood condition, and it's a multi-system complex issue,and it will affect everyone differently. You know, everyone has a different version of long Covid because it is so multisystem, it is so inflammatory" archive.md/VspFK

#PIP #DWP PIP and work linked in appalling Timms review public consultation benefitsandwork.co.uk/news/pip-and-w…

Mid Jan. '20, I fell ill, & thought it was a 48 hour thing. It's now been 54,000 hours of Long Covid. My oncologist said my broken immune system lead to or exacerbated my stage IV cancer now in my bones. Last night, my shoulder, pelvis and ribs hurt. #longcovidawareness

Here we go (again). A short🧵

@DHSCgovuk @wesstreeting @UniKent @NHSEngland @UKHSA The following websites all state that meningococcus bacteria can spread via AEROSOL transmission (links in thread below ⬇️) ▪️UK Green Book ▪️WHO ▪️NICE ▪️ECDC What learnings are you taking from the Covid Inquiry about protecting against ALL plausible routes of transmission?

A tribunal has ordered the Department for Work and Pensions to release a report that describes the impact of its errors on disabled benefit claimants, following a three-year fight to keep the document secret. #DWP disabilitynewsservice.com/tribunal-dismi…

The PIP review consultation is now live, but what are they actually asking? I’ve broken it down in plain English so you can understand the key areas without wading through pages of policy language. This isn’t a quick survey. It’s detailed, and it matters. You can respond yourself, or feed your experience into charities and Disabled People’s Organisations who are submitting evidence. I’ve been working on this for months through the MS Society and wider DPO/charity work, so this is about making it easier for you to engage in a way that works. Watch to the end for how to access the consultation. #PIP #PIPReview #DisabilityRights #HaveYourSay #MSAwareness #DisabledVoices

In response to a question from @ZackPolanski on #LongCovid, @DrAmirKhanGP says “I feel really helpless when I see them.” People who were healthy just a few years ago, a lot of them have lost their independence and ability to earn and there’s nothing in place to look after them.

Aaarrrghh! The cover-up begins… The WHO page about Meningococcal Meningitis & its modes of transmission (including the word ‘AEROSOL’) has just been removed from their website. Original link: who.int/teams/health-p… Thankfully there’s an archived page: web.archive.org/web/2026012701…

Great summary of many of the key points from yesterday’s covid inquiry report by @LongCovidAdvoc Our team is running on empty today. So grateful for you summarising so well.

#CovidInquiry isn't in the past @wesstreeting @Keir_Starmer @SharonHodgsonMP @DHSCgovuk it's the present. NHS workers and patients are still exposed to Covid-19 daily in hospitals now without the correct (or any) Personal Protective Equipment They need FFP masks, not baggy blue👇

5/ Healthcare workers have been significantly affected. Many became ill while caring for others — with lasting impacts on their health and ability to work.

Long Covid groups say its findings validate the experiences of millions living with #LongCovid. However, they emphasise that many of the systemic issues identified in the early stages of the pandemic remain unresolved 6 years on, leaving many patients without the care they need.

Press release Long Covid groups are urging urgent action following the @covidinquiryuk module 3 report, which confirms widespread and ongoing failures in healthcare. #LongCovid #CovidInquiry #Covid19 #LongCovidAHPs

Tribunal dismisses #DWP appeal and tells it to release ‘worst case scenario’ report on claimant errors #BenefitDeaths #InformationRightsTribunal #FreedomOfInformation disabilitynewsservice.com/tribunal-dismi…

Any journalists covering Module 3 of the Covid Inquiry should really look at this. The sheer incompetence and arrogance of decision makers during one of the most horrendous times we’ve lived through, and they still aren’t acknowledging or following the evidence… @covidinquiryuk

If you are a healthcare worker with Long COVID, please fill out this survey twu.qualtrics.com/jfe/form/SV_0j…

My new research is out "Overview and Pathophysiology of Long Covid" I provide an updated overview of key concepts, terminology and epidemiology of LC. I also offer an analysis of key mechanisms of pathology and multi-organ involvement in #LongCovid mdpi.com/2673-8112/6/3/…

@barryjmjones @SafeDavid3 @karamballes @cjayanetti @BylineTimes @thenerve_news @hazardscampaign @cv_cev @1goodtern @_CatintheHat @LongCovidAdvoc @LC_Physio @DisRightsUK @Dis_PPL_Protest @WorkingWithLC @KeyWorkerPetUK @BigIssue @johnpringdns @DrFrancesRyan @RachelCDailey_ @RITB_ And this disabilitynewsservice.com/dwp-hides-scor… via @johnpringdns

@barryjmjones @SafeDavid3 @karamballes @cjayanetti @BylineTimes @thenerve_news @hazardscampaign @cv_cev @1goodtern @_CatintheHat @LongCovidAdvoc @LC_Physio @DisRightsUK @Dis_PPL_Protest @WorkingWithLC @KeyWorkerPetUK Some other things FOI requests have helped disclose is that disability welfare cuts in PIP and UC affect mostly older people (40s, 50s, 60s) including workers, rather than "young NEETs", and other DWP misinformation. @BigIssue @johnpringdns @DrFrancesRyan @RachelCDailey_ @RITB_