Flyaway622

2.3K posts

Flyaway622

Flyaway622

@Flyaway622

She/Her

انضم Ocak 2011
676 يتبع97 المتابعون
تغريدة مثبتة
Flyaway622
Flyaway622@Flyaway622·
@FilmUpdates Please tell these people about Burnt Toast Theory....@grok Consider this a Blessing! No one should be threatening Ari for something beyond her control.
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Pop Base
Pop Base@PopBase·
PCOS is being renamed to PMOS. (Polyendocrine metabolic ovarian syndrome) The change comes from experts that say the old name was misleading, stating that it inaccurately suggested ovarian cysts as a defining feature.
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Isanthrope
Isanthrope@Isanthropia·
@envidreamz My completely uneducated guess is angioedema associated with mast cell activation syndrome - something that commonly appears after SARS2 infection for many.
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Envidreamz
Envidreamz@envidreamz·
Scrolling through social media lately and I keep seeing story after story of people suddenly waking up with severely swollen, puffy eyes. These are just a handful of the photos I’ve come across. It happened to me too during Long Covid in 2024. One day it’s just there, out of nowhere. Doctors almost always call it allergies or an allergic reaction. Yet even folks in allergy groups say this level is unusual for them. People point to mold, contact dermatitis, infections, or random triggers, but it often isn’t any of those. Then, after a a few days, it mysteriously fades. What is really going on here? Why does no one want to connect the dots to Covid?
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Flyaway622
Flyaway622@Flyaway622·
@wearegoldeninc @robs_jl In the video you're commenting on he is in the throes of PUBERTY! The autopsy report proves that is a LIE.
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Flyaway622
Flyaway622@Flyaway622·
@Namine1of1 @HealthRanger The body detoxes itself! The liver, kidneys, digestive system and lungs. That's it! That's your detox.
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Rissa ♡
Rissa ♡@Namine1of1·
@HealthRanger Yeah sounds nice in theory. Chinese probably can do this, Europeans maybe. But with the duality of food here in the US, we need routine detox systems.m like periods. That stuff is suppose to come out. Now if there's a detox program we can implement into our routines then maybe!
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All day Astronomy
All day Astronomy@forallcurious·
🚨: Chinese biologist Hongmei Wang seeks to extend women's fertile life by making menstruation occur every 3 months. Which would theoretically preserve more eggs and extend the fertile period.
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Rename MECFS
Rename MECFS@renamemecfs·
I am so sad about my life, I still can’t believe any of this is real, why me? This is so fucking unfair I had an amazing life that I loved. I miss myself so much! Every single day heartbroken.
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Skyler
Skyler@taksky_·
@makemevisible24 No I’m the same way. I don’t think anyone can pace well because it’s so incompatible with life
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Make ME Visible
Make ME Visible@makemevisible24·
I'm the only person with MECFS I know who knows that not pacing worsens the illness and still doesn't do it properly. At least others I've spoken to don't do it cos they aren't aware of what pacing is. But me, I'm an idiot. I know everything and still don't follow it.
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Flyaway622
Flyaway622@Flyaway622·
@Catinmyfamily @makemevisible24 Well not it makes sense why I struggle so much with it! I had ADHD to begin with, and just like you my Executive Functioning took a huge hit after 2 infections.
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Cat
Cat@Catinmyfamily·
@makemevisible24 Don’t beat yourself up. Pacing requires executive functioning. Not sure about you, but my executive functioning took a hit with LC/ME so things I used to do easily are now much harder. 💙
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Flyaway622
Flyaway622@Flyaway622·
@makemevisible24 I get the concept, but is HARD!!! Real life doesn't exactly care about our need to pace.
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Brad
Brad@AutonomicBrad77·
All roads lead back to the Autonomic Nervous System every single time. Every single disabled person that I have met or talked with has Autonomic Dysfunction. It’s not different diseases it is all the same disease. Stop letting these lying “experts” brainwash you. #LongCovid #POTS #pwME #Dysautonomia
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Stefan Arce ME/CFS
Stefan Arce ME/CFS@stefan_arce·
I’m sorry for venting so much, and thank you to my parents for everything they do for me. Severe ME/CFS is not just fatigue. It affects my body, mind, movement, speech, senses, emotions, and ability to act. I don’t refuse help or care because I “don’t want it”; everything has to be timed, tolerated, coordinated, and survived. I live with severe pain, movement disorders, sensory overload, brain fog, PEM, fear, guilt, and exhaustion. My parents are exhausted too. We all love each other, but illness, trauma, and caregiving burnout make everything harder. I’m not asking strangers to fix my life. I only ask to be believed, heard, and treated with patience and humanity. I need safe, integrated support, advocacy, and care that my body and mind can actually survive.
Stefan Arce ME/CFS tweet media
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Flyaway622
Flyaway622@Flyaway622·
@D_Bone @ABrokenBattery ME/CFS can be cause by any acute infection. ME/CFS is a Post Viral Syndrome, hence her getting it AFTER having COVID.
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Adam
Adam@ABrokenBattery·
“To fight for ourselves is dangerous.” Maggie Boxey has #MECFS following a suspected Covid infection. In her TEDx talk, she explains that after speaking to Congress, she spent several days in a crash and that if she’s not careful, it could permanently lower her baseline.
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Flyaway622 أُعيد تغريده
Adam
Adam@ABrokenBattery·
A gentle reminder during ME/CFS Awareness Month to pace, rest, and take care of yourselves. 💙 Watch the full video. (15 mins) youtu.be/JzKfi8LOMQU?si…
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Flyaway622
Flyaway622@Flyaway622·
@useless_priest It was time to rethink the whole cruise ship thing like 6 years ago(Or longer).
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Brian Fog
Brian Fog@useless_priest·
Seriously though: maybe it’s time to rethink the whole cruise ship thing.
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Flyaway622
Flyaway622@Flyaway622·
@healingfromlc @plagueprose You're not pathetic. And you're not alone in this. That's PTSD. I'm chronically ill as well and have had some horrible experiences between having chronic pain and post COVID sequale. By chance, do you prepare for your appointments ahead of time?
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Céline
Céline@healingfromlc·
@plagueprose So humiliating. Makes me feel pathetic.
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Céline
Céline@healingfromlc·
I can’t stop myself from sobbing uncontrollably when I speak to a doctor now. So traumatized.
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𝓲𝓬𝓮
𝓲𝓬𝓮@be_like_ice·
Did anyone else live most of their life not knowing they had ADHD?
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rene𓈒⋆♱
rene𓈒⋆♱@breakoftime·
wanting jaafar to go on tour as Michael ARE YOU OUT OF YOUR DANM MIND
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FearBuck
FearBuck@FearedBuck·
Fabio Jackson shows off his dance moves as he wants to play Michael Jackson in a future movie.
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