

Christian Peter
544 posts






In March 2025 I completed one cycle of daratumumab—one injection a week—for #Sjogren’s with small-fiber neuropathy, dysautonomia, and severe exercise intolerance #MECFS. For the first few months after the last dose I honestly felt no change. But from August 2025 until today the improvement has been remarkable: I’m walking every day again and even doing resistance training. I paid for daratumumab out of pocket because it isn’t approved for my indication. I’d repeat the cycle to keep the momentum, but it’s simply too expensive to self-fund. It’s frustrating that in Belgium’s “social” healthcare system, some conditions are fully covered while others like mine are left behind.





13/ So today: the paradigm is shifting. From overactive fight/flight (psychosomatic) → to impaired fight/flight reserve (neuroenergetic/autonomic dysfunction). 🧠









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