@Davemconte Most people gonna build up tolerance, one day you have to go off them..
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soloioloso
2.4K posts
Why does Ativan/Lorazepam work so well in #MECFS?
Immediately, you’ll hear folks shout, “IT’S A MAST CELL STABILIZER.”
Yes, we know. But for those of us without MCAS, it’s still extremely effective. Central nervous system depressant, yes.
Why can’t researchers manipulate that drug and combine it with another?
If I took 10mg of Ativan a day, I could probably lead a normal life.
Or make the drug safer. I dunno.
Just thinking out loud since some of us don’t have 15-20 years to wait for an approved treatment.
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@AlinaandMECFS @Davemconte You build tolerance.. did you stop it for some time and try it again?
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@Davemconte In my case (severe ME for 2,5 years now) it helped tremendously for the first year, but then it just suddenly stopped working completely
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@Der_Walla Fler hat sich an den tisch mit manu gesetzt 😂 was labbern die
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Animus muss natürlich auch was zu dem Angebot von Arafat sagen
Toni Pesto@wasbruda06069
Fler antwortet Pa
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@wasbruda06069 Nur dumm das fler damals mit manu an tisch saß 😂 dieser PA lebt so in einer anderen welt
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@grrdrrrbrmpf HBOT mache ich regelmäßig zu Hause seit dem letzten Tauchurlaub, wie im Blogartikel beschrieben. Hier kommt aber klar noch eine andere Wirkung hinzu m.E.
dirkpaessler.blog/2026/03/28/ger…
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Zum dritten Mal Tauchurlaub mit Long COVID. Zum dritten Mal passiert das Gleiche: Nach wenigen Tagen mit täglichen Tauchgängen auf 20–30 Meter Tiefe verschwinden meine PEM-Symptome fast vollständig.
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@DanielD59356591 @RSharmzz But at leats at inter lautaro comes back and get the ball.. with retegie and mois kean they both want to be the star ans score goals thats why they never fall back
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The lack of option between the lines for Italy is embarrassing.
Bastoni visibly frustrated.
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@surf4children No unfortunately not 😞. I tried so many things over the last 3 years. It’s hard to keep hope.
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do you still question why - not having better evidences now - I use IVIG and many people get better?
This study is indeed in my book since more than a year, supporting my pharmacological choices
tinyurl.com/4tsvhwat
Jeroen den Dunnen@DrDenDunnen
Our paper is (finally) out in @CellRepMed: antibodies from #LongCOVID patients transfer symptoms to mice, pointing to a potential causal role for autoimmunity: cell.com/cell-reports-m… @amsterdamumc @UMCUtrecht 1/12
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@Gmwetz Bin so dankbar das es menschen wie dich gibt.. wäre so lost alleine mit dieser kranheit
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I love when (patient) researchers are connecting with each other.
Only together - coming from different perspectives- we can solve these conditions.
Collaborate where you can!
Share data ! Run analysis! Speak about your findings and ask critical questions!
Efthymios Kalafatis@lifeanalytics
@Gmwetz @AnneliseBocquet @SitSilver @ZdenekVrozina Thank you @Gmwetz ! @AnneliseBocquet I believe we have been finding potential issues in certain efferocytosis-related topics for #MECFS as well. Please check the following thread and see related studies. FYI @ImmunoFever : x.com/lifeanalytics/…
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@xDevil_cod @PrimitiveAK This video is staged from a german streamer 🤣
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@PrimitiveAK THANK GOD SOMEONE POSTED THIS VID LMAO
People can’t act like mw19 was universally loved while it was out, people didn’t start loving it until after Cold War was already out, and half the “community” at that point was covid era refugees
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Ya'll really forgot just how ass this shit was to play. 🤣😂💀💀
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@rgsoosaa @rachioella most get better, not cured
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do you understand why i use IVIG for both #longcovid and #mecfs?
nowadays IVIG are the best and safest option for generilized idiopathic inflammation, and the most used since decades in countless diseases.
challenge me if you can, or ask me further if you’re curious
Jack | amatica health@JackHadfield14
A new brain scan study found widespread inflammation-related changes across the brain’s wiring in ME/CFS, and some matched worse mental health, more disability, and greater illness severity.
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ICYMI: The team at Raven announced that Solos is coming. Coming to Private Match first and then as a playlist option.
Details: 👇
Raven Software@RavenSoftware
Good news: We’ve heard your feedback on adding more ways to play Black Ops Royale, and Solos is coming! While this will require some backend work and a few changes that need to happen before it goes live, we're excited to get Solos into the game and we'll share more details on timing as we get closer to deploying. We plan to add Solos as a Private Match option next week to help gather early data on match pacing and overall balance. In the meantime, keep your feedback coming throughout the weekend!
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