Dr Ian Frayling 🇺🇦 #LongCovid

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Dr Ian Frayling 🇺🇦 #LongCovid banner
Dr Ian Frayling 🇺🇦 #LongCovid

Dr Ian Frayling 🇺🇦 #LongCovid

@Doctor_IMF

Past-President Association of Clinical Pathologists, patient, retd NHS. I usually do hereditary cancer. Trustee of @Long_Covid Support. Views my own.

Wales, United Kingdom Katılım Ocak 2015
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Dr Ian Frayling 🇺🇦 #LongCovid
Dr Ian Frayling 🇺🇦 #LongCovid@Doctor_IMF·
I'd go further: this adds to the increasing evidence showing breast is NOT part of Lynch. That said, when breast cancer does occur in women with Lynch it tends to loose mismatch repair (so a potential target for immunotherapy) and be medullary in type. doi.org/10.1093/jnci/d…
JMG@JMG_BMJ

🆕 Cancer risk estimates for Lynch syndrome: ▶️ Large population-based cohort: @uk_biobank ▶️ 830 carriers of pathogenic or likely pathogenic MMR gene variants ▶️ Results suggest that Breast Cancer is not an LS-related cancer 📌 bit.ly/3WgBA7t 👤 @Doctor_IMF

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Dr Ian Frayling 🇺🇦 #LongCovid
Dr Ian Frayling 🇺🇦 #LongCovid@Doctor_IMF·
Well done, in more ways than one by the look of it! @DrAnnAger & I got married 41y ago on Tuesday. Had to get a mate (later the deputy CMO for Nigeria) to take the cardiac arrest bleep @addenbrookes at 4am so I could get some kip before picking my suit up. Those were the days ...
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Dr Ian Frayling 🇺🇦 #LongCovid retweetledi
Long Covid Support
Long Covid Support@long_covid·
📣 Are you conducting/planning research in to #LongCovid? 🌟Book a slot with our newly launched Research Involvement Consultancy!🌟 Ensure your study is relevant, robust and keeps the patient voice at the centre. More info.: tinyurl.com/longcovidRIC #PatientInvolvement
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neil ryan
neil ryan@neilajryan·
The proudest moment of my professional life. To win #teamscirnce @AACR 2024 is beyond amazing. I cannot thank @ProfEmmaCrosbie, Prof Evan’s and the team everything. So proud to have impacted the care of #lynchsyndrome carriers. We do it for the patients. @FBMH_UoM @EdinUni_CRH
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Judy Hamilton
Judy Hamilton@secretspartacus·
@long_covid @ClaireHastie1 @ruairidhm @Know_HG @JoD66 @Doctor_IMF Be warned, Govt know this and that’s why they’re sending DWP minister’s out to claim that people with mental health problems are just wimps & need to get back to work. As they have with MEcfs, they will try to claim LC can be fixed with 6 wks CBT or similar!
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Long Covid Support
Long Covid Support@long_covid·
We just want to do a shout-out and say a huge ‘thank you’ to our fantastic Trustees & Members who were involved in this work - @ruairidhm, @Know_HG, @JoD66, Mike Ormerod & @Doctor_IMF. We know when you have #LongCovid how much work like this takes out of you, so thank you all.🙏
Cambridge Econometrics@CambridgeEcon

🧵Our new macroeconomic impact report on Long Covid in the UK reveals #LongCovid could cause job losses across the UK economy, with the service sectors, women and low-income households experiencing most of the effects.➡️bit.ly/4anCzIx 1/7

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Kelly Kohut
Kelly Kohut@kohut_kelly·
@LynchSyndromeUK well done & thank you for another fantastic conference on Saturday at U of Warwick. An inspiring gathering of dedicated people with #lynchsyndrome, researchers and clinicians with shared goals to improve knowledge, care experience and outcomes for families.
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Resia Pretorius
Resia Pretorius@resiapretorius·
Our microclots methods finding traction! @dbkell Amyloid-Fibrinogen Aggregates ("Microclots") Predict Risks of Disseminated Intravascular Coagulation and Mortality PDF: ashpublications.org/bloodadvances/…
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Dr Ian Frayling 🇺🇦 #LongCovid
Dr Ian Frayling 🇺🇦 #LongCovid@Doctor_IMF·
Maybe @vaughangething and @WelshGovernment will now sit up, take notice and do something, such as providing medical Consultant-led #LongCovid clinics. If they don't then they will be discriminating against those disabled by #LongCovid @covidinquiryuk @long_covid
Cambridge Econometrics@CambridgeEcon

🧵OUT TODAY: New economic analysis reveals Long Covid could be a long-term drag on economic growth and add pressure to already strained NHS 📊🔍 1/8 Find out more here: bit.ly/3PtysTs #LongCovidAwareness #LongCovid #PublicHealth #EconomicInactivity

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Long Covid Patient Action Group UK
Long Covid Patient Action Group UK@LC_UK_Action·
@Doctor_IMF @long_covid There was a deliberate, concerted effort on Friday to poison public perception through the media. Even if corrections/retractions are made, the damage is already done. LC advocates don't have journalists in our pockets like these people do. We need scientists/Drs to speak up.
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Prof Nisreen Alwan 🌻
Prof Nisreen Alwan 🌻@Dr2NisreenAlwan·
Shame, shame, shame on @guardian for publishing such headline & on #LongCovidAwarenessDay of all days. Study DID NOT find it’s time to stop using the term #LongCovid which shouldn’t be between quotation marks. Ask yourself in whose interest this dismissal & stigmatisation is in.
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Keşfet

@DrAnnAger @addenbrookes @LancsHospitals @Moorfields @AACR @ProfEmmaCrosbie @FBMH_UoM @EdinUni_CRH